Find organisations, support groups, videos and books to help you cope with bladder cancer and treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send us a question online.
Cancer Chat is our online forum where you can share experiences.
Bladder cancer support organisations
This charity is run by bladder cancer survivors and their families. You can join a support network and a confidential online forum. You can find information about how treatments might affect you.
This is a self help organisation that runs a network of groups throughout the country. They can arrange for someone who has had a urostomy to visit you before and after your surgery.
They also provide booklets about what is a urostomy, guidance on diet and exercise, travel and sex life after a urostomy.
Tel: 01386 430140
The Bladder and Bowel Community supports people living with bladder and bowel disorders and has a telephone helpline. The service is confidential. They can also give you information about stoma products.
They have a 'Just Can't Wait' card which allows holders access to toilets in shops and when you are out. It's free to order on the website.
17 High Street
General enquiries: 01926 357220
A patient led group that promotes understanding about pelvic radiation disease. Pelvic radiation disease is a late effect of radiotherapy treatment. They support patients and campaign for more research and better treatment for this condition.
Tel: 01372 744338
General support organisations
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
Disability Rights UK provides an information and advice service and campaigns for disabled people's rights. They also provide radar keys that give access to toilets throughout the UK for people who might need to use a toilet in a hurry.
14 East Bay Lane
Queen Elizabeth Olympic Park
Phone: 0330 995 0404
The Department for Work and Pensions have information on the Industrial Injuries Disablement Benefit for people that have been exposed to chemicals that could cause bladder cancer.
The Sexual Advice Association provide lists of local specialist practitioners, as well as fact sheets on problems such as erectile dysfunction (impotence).
Relate offers private and confidential counselling, and psychosexual therapy to help with relationship problems. They provide counselling over the phone, through a webcam or face to face at a Relate centre. They also have live chat on their website.
The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer.
An independent network that provides free advice about money, legal issues, housing health and social welfare issues. Often provides advice in English and other languages.
Provides free advice about money, legal issues, housing health and social welfare issues.
CliniMed has a delivery service for prescribed appliances.
Tel: 0808 1596 017 (freephone)
Dansac UK supply a variety of stoma care products and appliances. They also provide booklets with hints and tips and how to change different urostomy bags.
Tel: 0800 581 117
A company that provides products for people with stomas. They have a delivery service for prescribed appliances.
Tel: 0800 521377 (Customer Care team)
They supply colostomy, ileostomy and urostomy products. You can request samples.
Tel: 0330 555 1250
OakMed provide a range of stoma products. You can request a sample.
Tel: 0800 592 786
Handcrafted covers made to fit every size of ostomy bag or pouch following surgery resulting in a stoma such as an ileostomy, colostomy or urostomy. The covers come in a wide range of fabrics and are specifically tailored to fit each individual stoma bag.
Tel: 01205 723327
Books about bladder cancer
P Ellsworth and B Carswell
Jones and Bartlett Publishers, 2010
Answers the most common questions asked by people with bladder cancer, their friends and relatives. Gives information about the treatment options, life after treatment and support. It is an American book, but still useful to UK readers.
Dr Mark P Schoenberg
The Johns Hopkins University Press, 2001
An American book containing a lot of useful information about bladder cancer and its treatment. Covers risk factors, symptoms, diagnosis and the major treatments, including bladder sparing surgery.
Booklets and factsheets
Booklets from Macmillan Cancer Support
Information is available as booklets, audiotapes and CDs.
- Understanding non-invasive bladder cancer
- Understanding invasive and advanced bladder cancer
- Coping with hair loss
- Healthy eating and cancer
- Coping with advanced cancer
- Controlling cancer pain
- Controlling the symptoms of cancer
- Lost for words - how to talk to someone with cancer
- Sexuality and cancer
- Understanding chemotherapy
- Understanding radiotherapy
- Talking to children and teenagers when an adult has cancer
- Talking about your cancer
Videos of people's stories
Hear what it's like to live with and beyond cancer, from people who have shared their personal stories on film.
Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more.
Find local cancer information and support
The NHS website helps you to find local cancer information and support in England.