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Resources and support

Find organisations, support groups, videos and books to help you cope with bladder cancer and treatment.

Cancer Research UK

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website. 

Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.

If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.

We also have news, health awareness leaflets and other resources on cancer. 

Bladder cancer support organisations

This charity is run by bladder cancer survivors and their families. You can join a support network and a confidential online forum. You can find information about how treatments might affect you.

This UK based charity gives information and support to people affected by bladder cancer. They can also give you details of support groups in your local area.

Tel: 0300 302 0085
Email: info@actionbladdercanceruk.org

This is a self help organisation that runs a network of groups throughout the country. They can arrange for someone who has had a urostomy to visit you before and after your surgery.

They also provide booklets about what is a urostomy, guidance on diet and exercise, travel and sex life after a urostomy.

Tel: 01386 430140

Email: info@urostomyassociation.org.uk

The Bladder and Bowel Community supports people living with bladder and bowel disorders and has a telephone helpline. The service is confidential. They can also give you information about stoma products.

They have a 'Just Can't Wait' card which allows holders access to toilets in shops and when you are out. It's free to order on the website.

7 The Court
Holywell Business Park
Northfield Road
Southam
CV47 0FS

General enquiries: 01926 357220
Email: help@bladderandbowel.org

A patient led group that promotes understanding about pelvic radiation disease. Pelvic radiation disease is a late effect of radiotherapy treatment. They support patients and campaign for more research and better treatment for this condition.

Tel: 01372 744338
Email: info@prda.org.uk

General support organisations

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form

Disability Rights UK provides an information and advice service and campaigns for disabled people's rights. They also provide a Just Can't Wait card and radar keys that give access to toilets throughout the UK for people who might need to use a toilet in a hurry. 

Plexal
14 East Bay Lane
Here East
Queen Elizabeth Olympic Park
Stratford
London
E20 3BS

Phone: 0330 995 0404
Email: enquiries@disabilityrightsuk.org

The Department for Work and Pensions have information on the Industrial Injuries Disablement Benefit for people that have been exposed to chemicals that could cause bladder cancer.

The Sexual Advice Association provide lists of local specialist practitioners, as well as fact sheets on problems such as erectile dysfunction (impotence).

Offers private and confidential counselling, and psychosexual therapy to help with relationship problems. They provide counselling over the phone, through a webcam or face to face at a relate centre. They also have live chat on their website.

Telephone: 0300 003 0396

The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer. 

An independent network that provides free advice about money, legal issues, housing health and social welfare issues. Often provides advice in English and other languages.

Phone 020 7833 2181 or go to the website to find your nearest Citizens Advice office. 

Provides free advice about money, legal issues, housing health and social welfare issues. 

Telephone: 028 9023 1120

Email: info@citizensadvice.co.uk

Stoma appliances suppliers

B. Braun supply urine bags, catheters and other products. 

Tel: 0114 225 9000

Email: info.bbmuk@bbraun.com 

CliniMed has a delivery service for prescribed appliances.

Tel: 0808 1596 017 (freephone)

Coloplast supply stoma, continence, urology and wound care products. They also have booklets about using an internal urine pouch (continent urinary diversion) and essential things you should know before and after a urostomy. 

Phone: 0800 220 622
Email: gbccare@coloplast.com 

Delivers supplies of prescription colostomy and ileostomy equipment. Also gives information on all areas of stoma care. Has a helpline for anyone who has a stoma.

Tel: 0800 834 822 (Monday to Friday 9am to 5pm)
Email: stoma.webcare@convatec.com

Dansac UK supply a variety of stoma care products and appliances. They also provide booklets with hints and tips and how to change different urostomy bags. 

Tel: 0800 581 117

A company that provides products for people with stomas. They have a delivery service for prescribed appliances.

Tel: 0800 521377 (Customer Care team)

They supply colostomy, ileostomy and urostomy products. You can request samples. 

Tel: 0330 555 1250

OakMed provide a range of stoma products. You can request a sample. 

Tel: 0800 592 786

Peak Medical provide stoma and continence produts.

Tel: 0800 652 0424 (freephone)
Email: info@peakmedical.co.uk

Provide stoma products and information booklets. 

Tel: 0800 318 282
Email: contactus@pelicanhealthcare.co.uk

Salts Healthcare supply a range of different stoma products. You can sign up to receive their newsletter. 

Tel: 0800 626 388
Email: hello@salts.co.uk

Handcrafted covers made to fit every size of ostomy bag or pouch following surgery resulting in a stoma such as an ileostomy, colostomy or urostomy. The covers come in a wide range of fabrics and are specifically tailored to fit each individual stoma bag.

Tel: 01205 723327
Email: lindabutler59@hotmail.com

Books about bladder cancer

P Ellsworth and B Carswell
Jones and Bartlett Publishers, 2010
ISBN 978-0763795870

Answers the most common questions asked by people with bladder cancer, their friends and relatives. Gives information about the treatment options, life after treatment and support. It is an American book, but still useful to UK readers.

Dr Mark P Schoenberg
The Johns Hopkins University Press, 2001
ISBN 978-0801865190

An American book containing a lot of useful information about bladder cancer and its treatment. Covers risk factors, symptoms, diagnosis and the major treatments, including bladder sparing surgery.

Booklets and factsheets

Booklets from Macmillan Cancer Support

Information is available as booklets, audiotapes and CDs. 

  • Understanding non-invasive bladder cancer
  • Understanding invasive and advanced bladder cancer
  • Coping with hair loss
  • Healthy eating and cancer
  • Coping with advanced cancer
  • Controlling cancer pain
  • Controlling the symptoms of cancer
  • Lost for words - how to talk to someone with cancer
  • Sexuality and cancer
  • Understanding chemotherapy
  • Understanding radiotherapy
  • Talking to children and teenagers when an adult has cancer
  • Talking about your cancer

Videos of people's stories

Hear what it's like to live with and beyond cancer, from people who have shared their personal stories on film.

Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more. 

Find local cancer information and support

NHS Choices helps you to find local cancer information and support.

For support and information, you can call the Cancer Research UK information nurses on freephone 0808 800 4040, from 9am to 5pm, Monday to Friday. They can give advice about who can help you and what kind of support is available.

Information and help

Dangoor sponsorship

About Cancer generously supported by Dangoor Education since 2010.