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Living with bile duct cancer

Diet problems caused by bile duct cancer

You might need to change what and when you eat if you have bile duct cancer or have had surgery to remove it. You might also need to take supplements. You normally see a dietitian for support.

Eating when you have bile duct cancer

Bile duct cancer can make you feel sick (nausea) and lose your appetite. This can make you lose weight. And if you have jaundice, it can be difficult for your body to take in fat from your diet.

There are things you can try to help you keep eating. These include having snacks and small meals or using nutritional supplements.

Snacks and small meals

You may find it easier to have lots of small meals through the day, rather than sticking to the traditional 3 meals a day.

It is a good idea to have plenty of nutritious snacks to hand that you can have whenever you feel like eating. If you can manage it, it's best to choose full fat versions of yoghurts and puddings, so that you get the most calories.

You could try:

  • yoghurts or fromage frais

  • other soft puddings such as trifle or chocolate mousse

  • dried fruit

  • stewed or fresh fruit (bananas are high in calories)

  • nuts

  • cheese

  • instant soups (make up with milk to boost calories)

  • cereal

  • milky drinks

  • flapjacks

Some of these ideas may not suit your digestion but they might be worth a try. If in doubt, check with your dietitian.

Try to think of quick ways of having the things you like to eat. If possible, get someone to prepare your favourite foods in advance and freeze them in small portions. A microwave makes defrosting and heating easier and quicker.

Nutritional supplements

If you have lost weight you may need to increase the calories you eat. You might need to have nutritional supplements to help with this. Your dietitian will give advice on what to use and what you can get on prescription.

Some ways you can use supplements include:

  • sprinkling protein powders or high energy powders onto everyday foods. You can also add them to recipes

  • having complete meals in a drink - Ensure and Fresubin are well known makes. You get these on prescription from your doctor or buy them from a chemist. Some of these come in cartons about the size of a small fruit juice

  • sipping a supplement between meals throughout the day - this can really boost your calorie intake

Read more about managing diet problems

Diet problems after surgery to remove bile duct cancer

If you have distal bile duct cancer, your surgeon might remove your gallbladder, part of your and part of your . This can cause side effects including:

  • loose or watery poo (diarrhoea)

  • difficulty digesting food 

  • ​ if your surgeon had to remove a large part of your pancreas

You may also have nausea or feel full quickly. Tell your surgeon or specialist nurse about any digestive problems you have. They can give you treatment to control them. But it can take time to get things right.

Read more about surgery to remove bile duct cancer

Managing diarrhoea

Tell your healthcare team if you have diarrhoea. They may give you medicine to control your symptoms. 

Ask them if you should make any changes to your diet. Generally, it’s best to have a healthy balanced diet, although this may not be possible. Depending on your situation, your team might suggest you cut back on very high fibre foods such as dried fruit and beans. 

You should also drink plenty to try and replace the fluid lost. Aim for 8 to 10 glasses per day.

Read more about managing diarrhoea

Difficulty digesting food

Your pancreas makes digestive juices. This helps you digest your food.

You might not make enough digestive juices if you have bile duct cancer or if you had part of your pancreas removed. If this happens, you usually take an ​​ supplement. This helps you digest fat, protein and the sugar in food. The supplements usually come as capsules that you swallow.

Diabetes

Your pancreas also makes insulin. This is a ​​ that controls the amount of sugar in your blood. If you have diabetes your pancreas doesn’t make enough insulin.

If you had part of your pancreas removed, you will probably still make enough insulin. But your healthcare team will keep a very close eye on your blood sugar to make sure you don't develop diabetes.

Diet problems caused by other cancer treatments

Other treatments for bile duct cancer can cause problems with eating, drinking and digestion.  

Chemotherapy, immunotherapy and targeted cancer drugs are all treatments for bile duct cancer. These can make some people feel sick and lose their appetite. Chemotherapy can also make your mouth very sore, making it painful to eat.

Speak to your health care team if you are having side effects from the treatment you are having. Doctors can manage most side effects, and there are things you can do to help you cope.

Read more about diet problems caused by cancer treatments

Last reviewed: 11 Oct 2024

Next review due: 11 Oct 2027

Controlling the symptoms

Your healthcare team can give you medicines to help control some of the symptoms of bile duct cancer. There are also practical things you can try.

Diet problems with cancer

Cancer and its treatment can cause eating and drinking difficulties in some people. But there are people that can help and things you can do to cope better.

Coping with bile duct cancer

Coping with bile duct cancer can be difficult. You might find it helpful to speak about your feelings and there are people who can support you and your family.

What is advanced bile duct cancer?

Advanced bile duct cancer has spread outside the bile ducts into nearby lymph nodes or organs. Or it has spread to parts of the body further away from the bile ducts.

Coping with advanced bile duct cancer

Advanced bile duct cancer is cancer has spread outside the bile ducts. It can also mean bile duct cancer that has come back some time after you were first treated. There is support to help you cope. And the symptom control team can help you feel as well as possible.

Bile duct cancer main page

Bile duct cancer is also called cholangiocarcinoma. It is a rare type of cancer that develops in the small tubes that connect the liver and gallbladder to the small bowel.

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