Living with bile duct cancer
Bile duct cancer can make you feel sick (nausea) and lose your appetite. This can make you lose weight. And if you have jaundice, it can be difficult for your body to take in fat from your diet.
There are things you can try to help you keep eating. These include having snacks and small meals or using nutritional supplements.
You may find it easier to have lots of small meals through the day, rather than sticking to the traditional 3 meals a day.
It is a good idea to have plenty of nutritious snacks to hand that you can have whenever you feel like eating. If you can manage it, it's best to choose full fat versions of yoghurts and puddings, so that you get the most calories.
You could try:
yoghurts or fromage frais
other soft puddings such as trifle or chocolate mousse
dried fruit
stewed or fresh fruit (bananas are high in calories)
nuts
cheese
instant soups (make up with milk to boost calories)
cereal
milky drinks
flapjacks
Some of these ideas may not suit your digestion but they might be worth a try. If in doubt, check with your dietitian.
Try to think of quick ways of having the things you like to eat. If possible, get someone to prepare your favourite foods in advance and freeze them in small portions. A microwave makes defrosting and heating easier and quicker.
If you have lost weight you may need to increase the calories you eat. You might need to have nutritional supplements to help with this. Your dietitian will give advice on what to use and what you can get on prescription.
Some ways you can use supplements include:
sprinkling protein powders or high energy powders onto everyday foods. You can also add them to recipes
having complete meals in a drink - Ensure and Fresubin are well known makes. You get these on prescription from your doctor or buy them from a chemist. Some of these come in cartons about the size of a small fruit juice
sipping a supplement between meals throughout the day - this can really boost your calorie intake
Read more about managing diet problems
If you have distal bile duct cancer, your surgeon might remove your gallbladder, part of your and part of your . This can cause side effects including:
loose or watery poo (diarrhoea)
difficulty digesting food
if your surgeon had to remove a large part of your pancreas
You may also have nausea or feel full quickly. Tell your surgeon or specialist nurse about any digestive problems you have. They can give you treatment to control them. But it can take time to get things right.
Read more about surgery to remove bile duct cancer
Tell your healthcare team if you have diarrhoea. They may give you medicine to control your symptoms.
Ask them if you should make any changes to your diet. Generally, it’s best to have a healthy balanced diet, although this may not be possible. Depending on your situation, your team might suggest you cut back on very high fibre foods such as dried fruit and beans.
You should also drink plenty to try and replace the fluid lost. Aim for 8 to 10 glasses per day.
Read more about managing diarrhoea
Your pancreas makes digestive juices. This helps you digest your food.
You might not make enough digestive juices if you have bile duct cancer or if you had part of your pancreas removed. If this happens, you usually take an supplement. This helps you digest fat, protein and the sugar in food. The supplements usually come as capsules that you swallow.
Your pancreas also makes insulin. This is a that controls the amount of sugar in your blood. If you have diabetes your pancreas doesn’t make enough insulin.
If you had part of your pancreas removed, you will probably still make enough insulin. But your healthcare team will keep a very close eye on your blood sugar to make sure you don't develop diabetes.
Other treatments for bile duct cancer can cause problems with eating, drinking and digestion.
Chemotherapy, immunotherapy and targeted cancer drugs are all treatments for bile duct cancer. These can make some people feel sick and lose their appetite. Chemotherapy can also make your mouth very sore, making it painful to eat.
Speak to your health care team if you are having side effects from the treatment you are having. Doctors can manage most side effects, and there are things you can do to help you cope.
Last reviewed: 11 Oct 2024
Next review due: 11 Oct 2027
Your healthcare team can give you medicines to help control some of the symptoms of bile duct cancer. There are also practical things you can try.
Cancer and its treatment can cause eating and drinking difficulties in some people. But there are people that can help and things you can do to cope better.
Coping with bile duct cancer can be difficult. You might find it helpful to speak about your feelings and there are people who can support you and your family.
Advanced bile duct cancer has spread outside the bile ducts into nearby lymph nodes or organs. Or it has spread to parts of the body further away from the bile ducts.
Advanced bile duct cancer is cancer has spread outside the bile ducts. It can also mean bile duct cancer that has come back some time after you were first treated. There is support to help you cope. And the symptom control team can help you feel as well as possible.
Bile duct cancer is also called cholangiocarcinoma. It is a rare type of cancer that develops in the small tubes that connect the liver and gallbladder to the small bowel.

About Cancer generously supported by Dangoor Education since 2010. Learn more about Dangoor Education
Search our clinical trials database for all cancer trials and studies recruiting in the UK.
Meet and chat to other cancer people affected by cancer.
Questions about cancer? Call freephone 0808 800 40 40 from 9 to 5 - Monday to Friday. Alternatively, you can email us.