There are many organisations, support groups, books, videos and other resources to help you cope with anal cancer and treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Cancer Chat is our online forum where you can share experiences.
Anal cancer support organisations
The HPV and Anal Cancer Foundation aims to help and support anal cancer patients. They are also interested in improving prevention and research methods for anal cancer and the virus that causes the majority of cases, HPV.
Founded by Bobby Moore's wife, in partnership with Cancer Research UK, this organisation raises money for research into bowel cancer. It also aims to raise awareness of the symptoms so that people are diagnosed earlier.
Phone: 020 3469 8881
Bowel Cancer UK raise awareness of bowel cancer and campaign for better treatments and care. They provide information about bowel cancers, including anal and rectal cancers through their website and leaflets and they have an online forum.
Nurse email: firstname.lastname@example.org
Telephone: 020 7940 1760
General support organisations
A patient led group that promotes understanding about pelvic radiation disease. Pelvic radiation disease is a late effect of radiotherapy treatment. They support patients and campaign for more research and better treatment for this condition.
Tel: 01372 744338
Sexual Advice Association
The Sexual Advice Association provide lists of local specialist practitioners, as well as fact sheets on problems such as erectile dysfunction (impotence).
Bladder and Bowel Community
The Bladder and Bowel Community supports people living with bladder and bowel disorders and has a telephone helpline. The service is confidential. They can also give you information about stoma products.
They have a 'Just Can't Wait' card which allows holders access to toilets in shops and when you are out. It's free to order on the website.
17 High Street
General enquiries: 01926 357220
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff.
You can join a support group, take part in weekly sessions like relaxation and stress management, or learn about nutrition and health. You can also visit just to have a cup of tea and a friendly chat.
Phone: 0300 123 1801
Suppliers of stoma appliances
A company that provides products for people with stomas. They have a delivery service for prescribed appliances.
Tel: 0800 521377 (Customer Care team)
Handcrafted covers made to fit every size of ostomy bag or pouch following surgery resulting in a stoma such as an ileostomy, colostomy or urostomy. The covers come in a wide range of fabrics and are specifically tailored to fit each individual stoma bag.
Tel: 01205 723327
Books about anal and bowel cancer
An easy to read guide to bowel cancer. It includes information about lowering your risk, causes, tests, treatment and living with bowel cancer.
DS Bub, SL Rose and WD Wong
Jones & Bartlett Publishers, 2011
A comprehensive book about all aspects of colorectal cancer. It is an American book so some aspects will not apply to the UK.
Mark Davies, 2011
A personal story using male humour from Mark Davies who was diagnosed with bowel cancer at the age of 31. Some people may find it a little crude but others find it amusing. Discusses his diagnosis, treatment and the challenges of living with bowel cancer.
Information for children
K Chilman-Blair and S deLoache
American Cancer Society, 2013
An American illustrated book about bowel cancer aimed at children aged 10 to 16 years.
The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer.
The ACS provides information and support for people affected by cancer. As it is an American website, not all the information is relevant for a UK audience.
Books about cancer and treatment
A Ko, E Rosenbaum and M Dollinger
Andrews McMeel Publishing, 2009
The author and contributors of this book are all American cancer specialists. The book covers how cancer is diagnosed, treated and managed day to day.
Dr Terry Priestman
Sheldon Press, 2009
Gives information about chemotherapy, its side effects, and how to cope with them. Also discusses the effect of chemotherapy on everyday life, including tiredness, sex life and fertility, social life, work, holidays, exercise and diet.
Dr Terry Priestman
Sheldon Press, 2007
Gives information about radiotherapy, its side effects, and how to cope with them. Also discusses the effect of radiotherapy on everyday life, including social life, work, travel, exercise and diet.
J F Kelvin and L B Tyson
Jones and Bartlett Publishing, 2010
An American book which gives both doctor’s and patient’s views on coping with the symptoms of cancer and the side effects of treatment. It has information about treatment for pain, nausea, tiredness, and other symptoms.
Sheldon Press, 2012
Written by a cancer dietitian, this is a practical handbook for people with cancer. Filled with helpful tips and recipes.
A Bloch and others
American Cancer Society, 2010
An American book but most of the information is relevant to the UK. It covers issues such as preventing weight loss and coping with dehydration, fatigue, and infection. It also discusses eating problems and digestion issues, such as swallowing problems, feeling sick and dealing with mouth sores. Focuses on survivorship and how to eat well after treatment.
Videos of people's stories
Hear what it's like to live with and beyond cancer, from people who have shared their personal stories on film.
Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more.
For general health advice and information.