Support at home for you and your family

You might need some care and support at home due to your leukaemia or its treatment. A lot of practical and emotional support is available to you. 

GP and nursing support

Your GP manages your healthcare when you are at home. They can help with any medical problems that come up. They can also make referrals to a community service for you. The availability of the different community services may vary, depending on where you live.

District nurses

These nurses work in different places in your local area and may visit you in your home. They can:

• give medicines or injections
• check temperature, blood pressure and breathing
• clean and dress wounds
• monitor or set up drips
• give emotional support
• teach basic caring skills to family members where needed
• get special equipment, such as commodes or bed pans

Community specialist palliative care nurses

Community specialist palliative care nurses include Macmillan nurses and hospice nurses. They specialise in symptom management such as pain control, sickness, and other cancer symptoms. They also give emotional support to you and your carers.

Marie Curie nurses

Marie Curie nurses give nursing care to people with advanced cancer in their own homes. They can visit during the day or spend the night in your home to give your carers a break.

Social workers

Social workers can help to support you with your situation at home. They can arrange:

• home helps to help with shopping or housework
• home care assistants for washing and dressing
• meals on wheels
• respite care

Your social worker can also help with money matters by checking you get all the benefits you are entitled to. Or they can advise you about charity grants for things like extra heating costs or special diets.

Contact a social worker yourself by getting in touch with your local social services office. Or ask your hospital nurse or your GP to refer you.

Local support services

There are many other sorts of help you can get. Services vary from place to place.

Sometimes local voluntary groups offer sitting services. Someone comes to stay with you while your relative goes out.

Good neighbour schemes offer befriending or practical help with shopping or transport.

Local cancer support groups often offer practical help. And they are a good source of information about services in your area. Ask your doctor or nurse about local groups.

Cancer Research UK nurses

Clinical Nurse Specialist

You will have a clinical nurse specialist (CNS) who will support you throughout your treatment. 

A CNS is very useful for people who have AML. Most people don't know much about AML as it is rare, so your CNS can help you with any information you don't understand. They can also give you emotional and psychological support.

Your CNS is your main contact. They can help to recommend support services such as a psychiatrist, social worker or counsellor and help to you get in contact with them.