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Resources and books

Find out about organisations, support groups, books, videos and other resources to help you cope with acute myeloid leukaemia (AML) and its treatment.

Cancer Research UK information and support

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.

We are committed to producing high quality information for people affected by cancer.  As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send us a question online.

Cancer Chat is our online forum where you can share experiences.

Leukaemia support organisations

Blood Cancer UK fund research into leukaemia, lymphoma and myeloma. It also provides patient information booklets and leaflets that you can download or order from their website. 

Support line: 0808 2080 888 (10am to 7pm, Monday to Friday and 10am to 1pm on Saturday and Sunday)

Leukaemia Care is a national blood cancer support charity, committed to ensuring that anyone affected by blood cancer receives the right information, advice and support. 

It provides a range of support services to patients and their carers, including information, support groups, patient and carer conferences, and nurse education days.

Nurse or support team number: Freephone 08088 010 444 (Monday to Friday 9am to 10pm, Saturdays 9am to 12:30pm).

Anthony Nolan runs one of the largest bone marrow donor databases in the world. It has regional centres which are listed on its website. It also provides information about being a stem cell or bone marrow donor. 

It is looking for people in good health aged 16–30 to join the Anthony Nolan register. In particular, they need more young men and people from black and minority ethnic communities to sign up.

General enquiries: 0303 303 0303

The National Blood Service runs the blood donation scheme and organises the supply of blood products. They also run the British Bone Marrow Register (BBMR). 

Tel : 0300 123 23 23

DKMS used to be called Delete Blood Cancer. It aims to provide a matching donor for every blood cancer patient in need of a blood stem cell donation. It has offices in the UK, Germany, Chile, Poland and the United States. The register now has more than 300,000 people in the UK. 

People between the ages of 18 to 55 and are in general good health can join the register.

Email: donor@dkms.org.uk

Phone: 020 8747 5620

General support organisations

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form

Macmillan Cancer Support has a separate section on its website for teenagers and young adults with cancer. It offers advice and support on how to cope with cancer, and the chance to share experiences of cancer with other teenagers.

This is the American National Cancer Institute's patient information on leukaemia. 

It's detailed and comprehensive but there are few images.

CLIC Sargent is a charity that provides clinical, practical, financial and emotional support for children and young people and their families who are affected by cancer.

Phone: 0300 330 0803
Email: online enquiry form

Tel: 020 7612 0370
Email: hello@teenagecancertrust.org

Teenage Cancer Trust is a national charity providing specialist units, expert staff, support events, education and information for 13 to 24 year old’s diagnosed with cancer, and their friends and families.

The Teenage Cancer Trust also work closely with healthcare professionals and researchers to lead the way on developing cancer care for teenagers and young adults.

Books about leukaemia

ED Ball and A Kagan 
Jones and Bartlett Publishers, 2013
ISBN: 978-1-4496-6583-8

An American book written by a patient and a doctor. It provides clear information about the treatment for leukaemia and covers areas such as quality of life. As it is American, some of the information may not be relevant to a UK audience.

T Mughal and J Goldman
Wiley-Blackwell, 1998
ISBN 0632053461

Co-written by a leukaemia specialist, this book is intended for patients and relatives, as well as GP’s and other health workers. It covers the causes and treatment of leukaemias.

Patsy Westcott
Wayland, 2002
ISBN 0750241616

This is a book for younger readers. It was produced with Leukaemia and Lymphoma Research (now Bloodwise). It addresses both successful treatment and the possibility of dying from leukaemia.
 

K Chilman-Blair and J Taddeo
Medikidz Publishing, 2010
ISBN: 190693505X

A comic style book aimed at children aged 8 to 15. You join Richard on his tour of the human body as he learns about leukaemia and its treatment and side effects.

Booklets and factsheets

Lost for words - how to talk to someone with cancer
Sexuality and cancer
Understanding acute lymphoblastic leukaemia
Understanding acute myeloid leukaemia
Understanding donor stem cell (allogeneic) transplants 
Understanding chemotherapy 
Understanding cancer research trials (clinical trials)
Understanding radiotherapy 
Talking to children when an adult has cancer 
Talking about your cancer
Coping with hair loss 
Help with the cost of cancer

Newly diagnosed with a blood cancer
Adult Acute Lymphoblastic Leukaemia (ALL)
Adult Acute Myeloid Leukaemia (AML)
Acute promyelocytic leukaemia (APL)
Acute Lymphoblastic Leukaemia to 25 years (children, teenagers and young adults) : UKALL 2011 Trial
Childhood Acute Myeloid Leukaemia
Bone Marrow and Stem Cell Transplantation
Leukaemia and Related Diseases
Dietary advice for patients with neutropenia
Down's syndrome and leukaemia factsheet

The Next Seven Steps – long term recovery after a stem cell transplant.

Ben's stem cell transplant
Donating your stem cells to your brother or sister
Jess's bone marrow donation
Total body irradiation
Stem cell transplant. A guide to stem cell transplantation for teenagers and young adults

Videos of people's stories

Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.

Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.

Go to the HealthTalk website

Find local cancer support and information services

NHS Choices has a service that tells you about local information and support.

Go to the NHS choices website

Information and help