Chronic lymphocytic leukaemia (CLL) statistics

Cases

New cases of chronic lymphocytic leukaemia, 2014, UK

Deaths

Deaths from chronic lymphocytic leukaemia, 2014, UK

 

  • There were around 3,500 new cases of chronic lymphocytic leukaemia (CLL) in the UK in 2014, that’s more than 10 cases diagnosed every day.
  • CLL accounts for 1% of all new cases in the UK (2014).
  • In males, there were around 2,200 cases of CLL diagnosed in the UK in 2014.
  • In females, there were around 1,300 cases of CLL diagnosed in the UK in 2014.
  • Around 6 in 10 (59%) chronic lymphocytic leukaemia cases in the UK each year are diagnosed in people aged 70 and over (2012-2014).
  • Incidence rates for chronic lymphocytic leukaemia in the UK are highest in people aged 85+ (2012-2014).
  • Since the early 1990s, chronic lymphocytic leukaemia incidence rates have increased by more than a tenth (14%) in the UK. The increase is similar in males (9%) and females (10%).
  • Over the last decade, chronic lymphocytic leukaemia incidence rates have increased by less than a tenth (5%) in the UK for males and females combined.
  • 1 in 155 men and 1 in 260 women will be diagnosed with CLL during their lifetime.
  • Leukaemia (CLL) in England is not associated with deprivation.

See more in-depth CLL incidence statistics

  • There were around 1,000 chronic lymphocytic leukaemia (CLL) deaths in the UK in 2014, that’s around 3 deaths every day.
  • CLL accounts for less than 1% of all cancer deaths in the UK (2014).
  • In males in the UK, there were around 630 CLL deaths in 2014.
  • In females in the UK, there were around 410 CLL deaths in 2014.
  • Almost 6 in 10 (56%) chronic lymphocytic leukaemia (CLL) deaths in the UK each year are in people aged 80 and over (2012-2014).
  • Mortality rates for CLL in the UK are highest in people aged 90+ (2012-2014).
  • Since the early 1970s, chronic lymphocytic leukaemia (CLL) mortality rates have remained stable in the UK, for males and females combined and separately.
  • Over the last decade, CLL mortality rates have decreased by around a tenth (9%) in males and females combined in the UK, however this includes a decrease (15%) in males and stable rates in females.
  • Leukaemia (CLL) in England is not associated with deprivation.

See more in-depth CLL mortality statistics

  • Five-year relative survival for chronic lymphocytic leukaemia (CLL) in men is similar to the European average in England, Wales and Scotland but below the European average in Northern Ireland.
  • Five-year relative survival for chronic lymphocytic leukaemia (CLL) in women is similar to the European average in England, Wales and Northern Ireland but above the European average in Scotland.

See more in-depth CLL survival statistics

  • Almost 9 in 10 patients had a ‘very good’ or ‘excellent’ patient experience.
  • Three-quarters of patients are given the name of their Clinical Nurse Specialist.

See more in-depth CLL diagnosis and treatment statistics

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The latest statistics available for chronic lymphocytic leukaemia (CLL) in the UK are; incidence 2014 and mortality 2014. Reliable survival data for the UK is currently not available.

The ICD code for CLL is ICD-10 C91.1.

European Age-Standardised Rates were calculated using the 1976 European Standard Population (ESP) unless otherwise stated as calculated with ESP2013. ASRs calculated with ESP2013 are not comparable with ASRs calculated with ESP1976.

Lifetime risk estimates were calculated using incidence, mortality, population and all-cause mortality data for 2012 for males and 2010-2012 for females due to the small number of cases.

Patient Experience data is for adult patients in England with a primary diagnosis of cancer, who were in active treatment between September and November 2013 and who completed a survey in 2014.

Deprivation gradient statistics were calculated using incidence data for three time periods: 1996-2000, 2001-2005 and 2006-2010 and for mortality for two time periods: 2002-2006 and 2007-2011. The 1997-2001 mortality data were only used for the all cancers combined group as this time period includes the change in coding from ICD-9 to ICD-10. The deprivation quintiles were calculated using the Income domain scores from the Index of Multiple Deprivation (IMD) from the following years: 2004, 2007 and 2010. Full details on the data and methodology can be found in the Cancer by Deprivation in England NCIN report.

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Acknowledgements

We would like to acknowledge the essential work of the cancer registries in the United Kingdom and Ireland Association of Cancer Registries, without which there would be no data.

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