A study looking at how doctors and patients communicate and share decision making - QuEST

Please note - this trial is no longer recruiting patients. We hope to add results when they are available.

Cancer type:

Bowel (colorectal) cancer
Breast cancer
Cervical cancer
Ovarian cancer
Vulval cancer
Womb (uterine or endometrial) cancer





This study is looking at how doctors and patients communicate and how they share the decision making about the patient’s care. This trial is supported by Cancer Research UK.

We know from research that doctors respond better to patient’s needs when they know how illness affects the patient’s quality of life Open a glossary item. When doctors had information from a quality of life questionnaire that patients had filled in, there was better communication between the doctor and the patient. And this helped the patient’s health.

The aims of this study are to

  • Understand how doctors and patients communicate
  • Understand how decisions about the patient’s health needs are made
  • Develop a training programme for doctors, to help them better understand information patients provide in quality of life questionnaires and so better respond to their needs

Who can enter

You can enter this trial if you

  • Have breast cancer, gynaecological cancer or bowel cancer
  • Are attending a cancer clinic at St James’s University Hospital, Leeds
  • Are starting chemotherapy to relieve symptoms
  • Have at least 2 more cycles of chemotherapy to go at the time of recruitment to this trial
  • Are at least 18 years old

You cannot enter this trial if

  • You have had more than 2 cycles of chemotherapy
  • Your cancer doctor says you are not well enough to take part
  • You have any other medical condition that could affect you taking part

Trial design

This study will recruit 120 people who are attending the Medical Oncology Outpatients Clinics at St James’s University Hospital in Leeds.

The doctor makes a recording of 4 visits you attend.

After the 1st and 4th visit you fill in 3 questionnaires. These questionnaires ask about what you and the doctor talked about. You can fill in the questionnaires before you go home. Or you can take them home and return them in the pre paid addressed envelope.

Hospital visits

You will not need to make any extra hospital visits if you take part in this study. It will take no more than 20 minutes to fill in the questionnaires.

Side effects

There are no side effects to taking part in this trial.

The people taking part in this trial will be having a variety of treatment types, so we cannot give specific information here. You can find out about side effects of the drugs you are having by looking them up in our cancer drugs finder.

Recruitment start:

Recruitment end:

How to join a clinical trial

Please note: In order to join a trial you will need to discuss it with your doctor, unless otherwise specified.

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Chief Investigator

Professor Galina Velikova

Supported by

Cancer Research UK
NIHR Clinical Research Network: Cancer
University of Leeds

Other information

This is Cancer Research UK trial number CRUK/07/073.

Questions about cancer? Contact our information nurses

Freephone 0808 800 4040

Last review date

CRUK internal database number:

Oracle 5489

Please note - unless we state otherwise in the summary, you need to talk to your doctor about joining a trial.

Around 1 in 5 people take part in clinical trials

3 phases of trials

Around 1 in 5 people diagnosed with cancer in the UK take part in a clinical trial.

Last reviewed:

Rate this page:

No votes yet
Thank you!
We've recently made some changes to the site, tell us what you think

Share this page