Find out about support groups, books, videos and other resources to help you cope with cervical cancer and treatment. You can also find about organisations that specialise in different areas such as sexual health and family planning.
Cancer Research UK
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website, our news and resources, and our range of health awareness leaflets.
Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.
If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.
Specific women's cancer organisations and sites
This organisation provides information about cervical cancer and run a helpline manned by volunteers who have had experience of cervical cancer or abnormal cervical cells. They also have a confidential medical enquiry service. The website has an online forum where you can exchange experiences and information with others who have cervical cancer.
On the Jo's Trust website you can watch a video about having cervical screening.
- how you receive your invitation for screening
- why it is important to go for your screening appointment
- what happens at the appointment
- what the results mean
Phone: 020 7250 8311
Helpline: 0808 802 8000
This charity provides information on gynaecological and sexual aspects of women’s health including some gynaecological cancers. They have a team of specialist nurses and medical advisers who will answer email or postal enquiries. They ask for a £5 donation for this service. They also publish information leaflets.
A patient led group which aims to promote understanding about pelvic radiation disease which is a late effect of radiotherapy treatment. They offer support to patients and campaign for more research and better treatment for this condition. They focus is on the bowel problems that can follow pelvic radiotherapy.
Phone: 01372 744338
This is a national charity offering information and support to anyone affected by lymphoedema. They have over 3500 members, 65 local support groups, run a helpline and have a website. They also produce a range of information including factsheets about lymphoedema and its treatment, 2 DVDs about self management techniques for lymphoedema and a quarterly newsletter.
Tel: 020 7351 4480 (10am-4pm)
Fax: 020 7349 9809
The European Consortium for Cervical Cancer Education is a Europe wide project dedicated to informing the public, doctors and Governments about cervical cancer and the role of HPV. There is some patient information and a page of useful links. There are also news and research sections. The site is available in 12 European languages.
The American National Cancer Institute's patient information on cervical cancer is detailed and comprehensive, and have a few images. They tend to use more technical terms and have longer pages than we do.
General support organisations and sites
Macmillan Cancer Support provides practical, medical and financial support and campaigns for better cancer care. It provides booklets on cancer and treatments and runs a helpline providing cancer information and benefits advice.
Macmillan CancerLine: 0808 808 0000 (Mon to Fri, 9am to 8pm; information available in other languages)
Textphone: 0808 808 0121
A charity set up by the cosmetics industry. Volunteer beauty therapists provide skincare and make up workshops for women undergoing cancer treatment. All guests are provided with a goodie bag. Their workshops are held in 59 hospitals and cancer care centres across the UK. Find your nearest workshop and read more about the work of the charity on their website.
Tel: 01372 747500
Fax: 01372 747502
Information on sexual problems that can affect men and women. They provide lists of local specialist practitioners, as well as factsheets on problems such as vaginal dryness. They also produce a booklet about sexuality and intimacy for cancer patients and their partners.
Telephone 020 7486 7262 (Monday, Wednesday and Friday, 9am to 5pm)
This organisation provides free information about contraception and sexual health.
Tel: 0845 122 8687 - Northern Ireland (Monday to Friday, 9am to 5pm)
Books from libraries, bookshops or online booksellers
Sheila Hollins and Jacki Downer. Illustrated by Beth Webb
The book is designed to help prepare women with learning disabilities who want to go for a smear test. It addresses issues such as whether or not to have a smear test, what actually happens when you do have one, getting your test results and health education. It also looks at the emotions you may have about having a smear test.
Altman Publishing, 2007
Dr Ian Banks
J H Haynes & Co Ltd, 2009
A practical guide to all aspects of women's health, written for men.
Booklets and resources from other organisations
An easy guide to cervical screening
This is a picture leaflet for women with a learning disability to tell them about having a cervical screening test. You can read or download this leaflet in PDF format on the NHS website.
You can find and download these all from the Macmillan website.
- Controlling cancer pain (also on audiotape and CD)
- Coping with advanced cancer (also on audiotape and CD)
- Coping with hair loss (also on audiotape)
- Diet and cancer (also on audiotape)
- Lost for words - how to talk to someone with cancer
- Pelvic radiotherapy in women: possible late effects (produced in partnership with Cancer Research UK)
- Sexuality and cancer (also on audiotape)
- Talking about your cancer (also on audiotape and CD)
- Talking to children about cancer (also on audiotape and CD)
- Understanding cancer research trials (clinical trials)
- Understanding cervical cancer (also on audiotape and CD)
- Understanding cervical screening (also on audiotape)
- Understanding chemotherapy (also on audiotape)
- Understanding radiotherapy (also on audiotape and CD)
These booklets can be downloaded from the Royal Marsden website, or you can order them by calling freephone 0800 783 7176.
- Clinical trials
- Your operation and anaesthetic
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