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Stories from people with rare cancers

Stories from people with rare cancers

Helping more people survive cancer is the aim of everything we do. Read stories from people who have been affected by rare cancers, and how research has made a difference to them.

Patients' stories

A photo of Oliver.

Finding hope

Oliver from London, was diagnosed with tonsil cancer in 2009 and took part in a Cancer Research UK trial of a new, more precise way of giving radiotherapy: “I was really pleased to have joined the trial because I know the side effects from regular radiotherapy could have been far more severe. I feel lucky that the high quality of my treatment has helped me lead a regular life again.”

Read more about the PARSPORT trial Oliver took part in

Image of Faye, smiling to the camera.

Having surgery for tongue cancer

Faye from Wolverhampton was diagnosed with tongue cancer in 2013 and had surgery to remove the tumour. “I thought I’d never be able to speak again or eat again but through my determination I proved myself and all the doctors wrong. If you are determined you can do anything.”

Read about oral cancer rates, why they are increasing, and what's being done about it

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Current research

From studying the biology of rare cancer cells in the lab to leading clinical trials testing cutting-edge treatments, our researchers are working hard to ensure more people survive rare cancers.

Find out more about our current research

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Past research

Thanks to research, we've helped change the outlook for people with rare cancers.

Find out more about past research

Further information

Want to find more information about our research or rare cancers?

Find out more about clinical trials

More about the symptoms and treatments for rare cancers