There are many organisations, support groups, books, videos and other resources to help you cope with vaginal cancer and its treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send us a question online.
Cancer Chat is our online forum where you can share experiences.
Specific women's support organisations
Jo's Trust provides information about cervical cancer and a confidential medical enquiry service. They also support women with vaginal cancer. They have a website bulletin board where you can exchange experiences and information with others who have cervical cancer.
Helpline: 0808 802 8000
Tel: 0203 096 8100
Volunteer beauty therapists provide skincare and make up workshops for women undergoing cancer treatment. All guests are provided with a goodie bag. Set up by the cosmetics industry, this charity has been running for 12 years and workshops are held in 50 locations across the UK.
Tel: 01372 747 500
A patient led group which aims to promote understanding about pelvic radiation disease, a late effect of radiotherapy treatment. They offer support to patients and campaign for more research and better treatment for this condition. They mainly focus on bowel problems caused by pelvic radiotherapy.
Tel: 01372 744 338
A free and confidential service for women who've had early menopause.
A charity that provides information about women's health issues. They have a team of specialist nurses and medical advisers to answer email enquiries for a £10 donation. They produce a range of factsheets on different topics including hormone replacement therapy, menopause, hysterectomy and ovarian cysts.
Tel: 01628 890 199
The Eve Appeal is a UK national charity raising awareness, and funding research into the five gynaecological cancers - womb, ovarian, cervical, vulval and vaginal. They also provide a gynae cancer information and support service called Ask Eve.
Ask Eve telephone: 0808 802 0019
Ask Eve email: firstname.lastname@example.org
General enquiries: telephone: 020 7605 0100 and email: email@example.com
General support organisations
Offers counselling and psychotherapy. Also can provide details of local counsellors.
Tel: 020 8543 2707
Macmillan Cancer Support provides practical, medical and financial support, and campaigns for better cancer care. It provides booklets on cancer and treatments and runs a helpline providing cancer information and benefits advice.
Macmillan support line: 0808 808 0000 (Monday to Friday, 9am to 8pm; information available in other languages) or fill in the support line form.
The Sexual Advice Association provide lists of local specialist practitioners, as well as fact sheets on problems such as erectile dysfunction (impotence).
Books about vaginal cancer
S Haslett and others
Beaconsfield Pubs Ltd, 2012
A practical guide with information about the different types of hysterectomy operation. Tells you how to prepare for your operation and what to expect when you are recovering.
Booklets and factsheets
- Understanding radiotherapy (also on CD)
- Pelvic radiotherapy in women - possible late effects (also on CD)
- Pelvic radiotherapy in women - side effects during treatment
- Understanding lymphoedema
- Life after cancer treatment
- Coping with advanced cancer (also on audiotape)
- Controlling the symptoms of cancer
- Lost for words – how to talk to someone with cancer
- How are you feeling? Coping with the emotional effects of cancer
- Sexuality and cancer
- Coping with fatigue (also on audiotape and CD)
- Talking to children and teenagers when an adult has cancer (also on CD)
- Talking about your cancer (also on audiotape and CD)
A range of downloadable factsheets and information relating to cancer and treatment.
Videos of people's stories
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
Find local cancer support and information services
NHS Choices has a service that tells you about local information and support.