Soft tissue sarcoma resources and support organisations

GIST Cancer UK is a network of people with GIST and their relatives. Everyone involved has experience of GIST (gastrointestinal stromal tumours). The website has brief information about GIST and its treatment and a list of links. The organisation runs phone and email support networks and a forum.

Support line: 0300 400 0000

Email: admin@gistcancer.org.uk

GIST cancer UK website

Sarcoma UK funds research and supports people with bone or soft tissue sarcomas. They provide information, have a support network and a sarcoma clinical trials hub.

Support line: Freephone 0808 801 0401 Monday to Friday 10am to 3pm

Text support line: 07534 177 861

Email: supportline@sarcoma.org.uk

Sarcoma UK website

This commercial company makes waterproof coverings for dressings or casts on the arms or legs. This means you can go swimming, take a bath or shower without worrying. They can also be used to cover PICC lines. Ask your specialist or nurse about getting one on the NHS or you can buy direct from the company.

Telephone: 0870 041 0150

Email: enquires@autonomed.co.uk

Read more on the Autono-Med Ltd website

Disability Rights UK provides an information and advice service and campaigns for disabled people's rights.

They also provide a Just Can't Wait card and radar keys that give access to toilets throughout the UK for people who might need to use a toilet in a hurry. They also have several helplines providing information and advice.

Tel: 0330 995 0400

Email: enquiries@disabilityrightsuk.org

Visit the Disability Rights UK website

Changing Faces provide support and information for people who have any form of visible difference including those caused by cancer. They also provide information on skin camouflage and how to apply specialist cover creams. Support and advice line: 0300 0120 275 (Monday-Friday, 10am-4pm) Head office email: info@changingfaces.org.uk

Visit the Changing Faces website

Living Made Easy is part of the Shaw Trust. It provides information and advice on equipment and aids to help with daily living.

Email: lme-enquires@shaw-trust.org.uk

Go to the Living Made Easy website

This UK organisation for people with facial disfigurement offers:

• telephone support

• a service to link up people in similar situations

• dietary and medical advice

• social activities

• resources and a newsletter

Email: sandra.smith@lets-face-it.org.uk

Visit the Let's Face It website

The Limbless Association produces a quarterly magazine and publications. It provides information, advice and support for people of all ages who have had amputations, or suffer with congenital limb loss.

Helpline: 0800 644 0185 (Monday to Friday 9am to 5pm)

Read more on the Limbless Association website

Macmillan Cancer Support is a charity that gives practical and medical support to people with cancer in the UK. Its helpline offers support with clinical, emotional, general and welfare benefits needs. They publish booklets about cancer and treatments. Information is available in other languages. They also have an online chat service.

Macmillan Support Line Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)

Contact email form

Visit the Macmillan Cancer Support website

Macmillan Cancer Support has a separate section on its website for teenagers and young adults with cancer. It offers advice and support on how to cope with cancer, and the chance to share experiences of cancer with other teenagers.

Find out about Macmillan information for teens and young adults

Teenage Cancer Trust is a national charity providing specialist units, expert staff, support events, education and information for 13 to 24 year olds diagnosed with cancer, and their friends and families.

Teenage Cancer Trust also work closely with healthcare professionals and researchers to lead the way on developing cancer care for teenagers and young adults.

Phone: 020 7612 0370 Monday to Friday 9am to 5pm

Email: hello@teenagecancertrust.org

Read more on the Teenage Cancer Trust website

Young Lives vs Cancer is a charity that provides clinical, practical, financial and emotional support. It is for children and young people and their families who are affected by cancer. You can chat to the social care team through their live chat Monday to Friday 10am to 4pm. Or you can email or phone them.

Phone: 0300 330 0803 Monday to Friday 9am to 5pm.

Email: getsupport@younglivesvscancer.org.uk

Find out about Young Lives vs Cancer on their website