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Resources and books

There are many organisations, support groups, books, videos and other resources to help you cope with penile cancer and treatment.

Cancer Research UK information and support

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.

We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.

Cancer Chat is our online forum where you can share experiences.

General support organisations and websites

Orchid hosts a forum for people affected by men's cancers.

Tel: 0808 802 0010 (helpline) or 0203 745 7310
Email: nurse@orchid-cancer.org.uk

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form

The Bladder and Bowel Community supports people living with bladder and bowel disorders and has a telephone helpline. The service is confidential. They can also give you information about stoma products.

They have a 'Just Can't Wait' card which allows holders access to toilets in shops and when you are out. It's free to order on the website.

Forward House
17 High Street
Henley-in-Arden
B95 5AA
General enquiries: 01926 357220
Email: help@bladderandbowel.org

College of Sexual and Relationship Therapists (COSRT) provides information about what help and therapy is available for sexual difficulties.

Telephone: 020 8543 2707
Email: info@cosrt.org.uk

Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff.

You can join a support group, take part in weekly sessions like relaxation and stress management, or learn about nutrition and health. You can also visit just to have a cup of tea and a friendly chat.

The Gatehouse
10 Dumbarton Road
Glasgow
G11 6PA

Phone: 0300 123 1801
Email: enquiries@maggiescentres.org

Offers private and confidential counselling, and psychosexual therapy to help with relationship problems. They provide counselling over the phone, through a webcam or face to face at a Relate centre. They also have live chat on their website.

Booking line: 0300 003 0396 (Monday-Thursday: 8am to 8pm,  Friday: 8am to 6pm, Saturday: 9am to 1pm)

The Medical Advisory Service provides a telephone helpline and online advice on all medical and healthcare matters.

Tel: 020 8994 9874 (6pm to 8pm weekdays Monday to Friday)

Email: office@medicaladvisoryservice.org.uk

The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer. 

The ACS provides information and support for people affected by cancer. As it is an American website, not all the information is relevant for a UK audience.

Books about cancer and treatment

You can find a list of other books about cancer, treatments, and living with cancer on our general reading list

Dr Ian Banks
J H Haynes & Co Ltd, 2004
ISBN 978-1844251582

Written by a doctor, the Haynes Cancer manual is an optimistic book, featuring hints and tips for a healthy lifestyle as well as easy to understand information on all cancers affecting men.

A Ko, E Rosenbaum and M Dollinger
Andrews McMeel Publishing, 2009
ISBN 9780740786310

The author and contributors of this book are all American cancer specialists. The book covers how cancer is diagnosed, treated and managed day to day.

Leslie R Schover
Wiley, 1997
ISBN 047 118 1943

This book has information on sexuality and fertility problems after cancer, and cancer treatment. It covers the physical and emotional effects of cancer offering some helpful, practical solutions to problems.

Dr Terry Priestman
Sheldon Press, 2009
ISBN 978-1847090805

Gives information about chemotherapy, its side effects, and how to cope with them. Also discusses the effect of chemotherapy on everyday life, including tiredness, sex life and fertility, social life, work, holidays, exercise and diet.

Dr Terry Priestman
Sheldon Press, 2007
ISBN 9780859699990

Gives information about radiotherapy, its side effects, and how to cope with them. Also discusses the effect of radiotherapy on everyday life, including social life, work, travel, exercise and diet.

J F Kelvin and L B Tyson
Jones and Bartlett Publishing, 2010
ISBN 978-0763777609

An American book which gives both doctor’s and patient’s views on coping with the symptoms of cancer and the side effects of treatment. It has information about treatment for pain, nausea, tiredness, and other symptoms.

Jane Freeman
Sheldon Press, 2012
ISBN 9781847091413

Written by a cancer dietitian, this is a practical handbook for people with cancer. Filled with helpful tips and recipes.

A Bloch and others
American Cancer Society, 2010
ISBN 978-0944235782

An American book but most of the information is relevant to the UK. It covers issues such as preventing weight loss and coping with dehydration, fatigue, and infection. It also discusses eating problems and digestion issues, such as swallowing problems, feeling sick and dealing with mouth sores. Focuses on survivorship and how to eat well after treatment.

Videos of people's stories

Hear what it's like to live with and beyond cancer, from people who have shared their personal stories on film.

Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more. 

NHS

For general health advice and information.

Last reviewed: 
09 Dec 2020
Next review due: 
09 Dec 2023