Penile cancer resources and support organisations

Orchid hosts a forum for people affected by men's cancers.

Tel: 0808 802 0010 (helpline) or 0203 745 7310 Email: nurse@orchid-cancer.org.uk

Visit the Orchid website

Macmillan Cancer Support is a charity that gives practical and medical support to people with cancer in the UK. Its helpline offers support with clinical, emotional, general and welfare benefits needs. They also publish booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm) Contact email form

Visit the Macmillan Cancer Support website

The Bladder and Bowel Community supports people living with bladder and bowel disorders and has a telephone helpline. The service is confidential. They can also give you information about stoma products.

They have a 'Just Can't Wait' card which allows holders access to toilets in shops and when you are out. It's free to order on the website.

Forward House 17 High Street Henley-in-Arden B95 5AA

Home Delivery Service: 0800 031 5406

Email: help@bladderandbowel.org

Visit the Bladder and Bowel Community website

College of Sexual and Relationship Therapists (COSRT) provides information about what help and therapy is available for sexual difficulties.

Telephone: 020 8106 9635 Email: info@cosrt.org.uk

Visit the COSRT website

Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff.

You can join a support group, take part in weekly sessions like relaxation and stress management, or learn about nutrition and health. You can also visit just to have a cup of tea and a friendly chat.

Phone: 0300 123 1801 Email: enquiries@maggies.org

Visit the Maggie’s website

Relate offers private and confidential counselling, and psychosexual therapy to help with relationship problems. They provide counselling over the phone, through a webcam or face to face at a Relate centre. Clients are asked to contribute towards the cost of their counselling sessions according to their income.

Visit the Relate website

The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer. 

See NCI guides to cancer

The ACS provides information and support for people affected by cancer. As it is an American website, not all the information is relevant for a UK audience.

American Cancer Society

European Association of Urology (EAU) provide patient information about penile cancer. 

Go to the EAU website

Dr Ian Banks J H Haynes & Co Ltd, 2004 ISBN 978-1844251582

Written by a doctor, the Haynes Cancer manual is an optimistic book, featuring hints and tips for a healthy lifestyle as well as easy to understand information on all cancers affecting men.

A Ko, E Rosenbaum and M Dollinger Andrews McMeel Publishing, 2009 ISBN 9780740786310

The author and contributors of this book are all American cancer specialists. The book covers how cancer is diagnosed, treated and managed day to day.

Dr Terry Priestman Sheldon Press, 2009 ISBN 978-1847090805

Gives information about chemotherapy, its side effects, and how to cope with them. Also discusses the effect of chemotherapy on everyday life, including tiredness, sex life and fertility, social life, work, holidays, exercise and diet.

Dr Terry Priestman Sheldon Press, 2007 ISBN 978-0859699990

Gives information about radiotherapy, its side effects, and how to cope with them. Also discusses the effect of radiotherapy on everyday life, including social life, work, travel, exercise and diet.

J F Kelvin and L B Tyson Jones and Bartlett Publishing, 2010 ISBN 978-0763777609

An American book which gives both doctor’s and patient’s views on coping with the symptoms of cancer and the side effects of treatment. It has information about treatment for pain, nausea, tiredness, and other symptoms.

Jane Freeman Sheldon Press, 2012 ISBN 978-1847091413

Written by a cancer dietitian, this is a practical handbook for people with cancer. Filled with helpful tips and recipes.

A Bloch and others American Cancer Society, 2010 ISBN 978-0944235782

An American book but most of the information is relevant to the UK. It covers issues such as preventing weight loss and coping with dehydration, fatigue, and infection. It also discusses eating problems and digestion issues, such as swallowing problems, feeling sick and dealing with mouth sores. Focuses on survivorship and how to eat well after treatment.

Dr Ian Banks J.H. Haynes & Co Ltd, 2012 ISBN 1844256162

Written by a doctor, the Haynes Workshop Manual is an optimistic book, featuring hints and tips for a healthy lifestyle as well as easy to understand information on cancers affecting men.

James Gilbaugh Simon and Schuster, 2008 ISBN 0743213440

A general guide to men's health issues, including common fears and anxieties and guidelines for maintaining good health.