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Resources and organisations

Find out about organisations, support groups, books, videos and other resources to help you cope with pancreatic cancer and treatment.

Cancer Research UK information and support

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.

We are committed to producing high quality information for people affected by cancer.  As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send us a question online.

Cancer Chat is our online forum where you can share experiences.

Specific pancreatic cancer organisations and sites

Pancreatic Cancer UK is committed to fighting pancreatic cancer through research, awareness, information and support and other projects of benefit to pancreatic cancer patients. It provides a resource of information about pancreatic cancer to patients, caregivers and GPs. Their website also has a discussion forum for people with pancreatic cancer and their families.

Support line: 0808 801 0707
Email: nurse@pancreaticcancer.org.uk 

The Pancreatic Society was formed in 1975 by members of the medical profession with a specific interest in the treatment of pancreatic disease. It has since expanded its membership to include nurses, dieticians and research scientists. The main aim of the Society is to promote and encourage the study of and research into diseases of the pancreas.

Pancreatic Cancer Action focuses on improving pancreatic cancer survival rates through early diagnosis. They do this by increasing public knowledge of the disease and its symptoms through awareness campaigns. They work closely with GPs, pharmacists and hospital doctors, providing free educational resources. 

They also:

  • fund research into early diagnosis
  • campaign and influence the government for change
  • provide free patient information

Phone number: 0303 040 1770

E-mail: healthinfo@panact.org

Diabetes UK have information on diabetes, including symptoms and how to cope.

Phone: 0345 123 2399 (Monday to Friday, 9am to 6pm)

General support organisations and sites

Macmillan Helpline: 0808 808 0000 (Mon to Fri, 9am to 8pm; information available in other languages)
Textphone: 0808 808 0121

Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run a helpline providing cancer information and benefits advice.

The American National Cancer Institute (NCI) has detailed patient information on pancreatic cancer.

Booklets and factsheets from other organisations

  • Diet and cancer
  • Coping with advanced cancer
  • Controlling cancer pain
  • Lost for words - how to talk to someone with cancer
  • Sexuality and cancer
  • Understanding cancer of the pancreas
  • Understanding chemotherapy
  • Cancer research trials
  • Understanding radiotherapy
  • Talking to children about cancer
  • Talking about your cancer

Some of these booklets are also available on CD.

  • Chemotherapy
  • Radiotherapy
  • Clinical trials
  • MRI scan
  • Eating well when you have cancer
  • After treatment

Examples of booklets and factsheets by Pancreatic Cancer UK

  • Diet and pancreatic cancer
  • Caring for someone with pancreatic cancer: information for families and carers
  • Pain and pancreatic cancer
  • Surgery for operable pancreatic cancer
  • Surgery and other procedures to control symptoms

Books about cancer

J F Kelvin and L B Tyson
Jones and Bartlett Publishing, 2010
ISBN 978-0763777609

An American book which gives both doctor’s and patient’s views on coping with the symptoms of cancer and the side effects of treatment. It has information about treatment for pain, nausea, tiredness, and other symptoms.

A Bloch and others
American Cancer Society, 2010
ISBN 978-0944235782

An American book but most of the information is relevant to the UK. It covers issues such as preventing weight loss and coping with dehydration, fatigue, and infection. It also discusses eating problems and digestion issues, such as swallowing problems, feeling sick and dealing with mouth sores. Focuses on survivorship and how to eat well after treatment.

Dr Terry Priestman
Sheldon Press, 2009
ISBN 978-1847090805

Gives information about chemotherapy, its side effects, and how to cope with them. Also discusses the effect of chemotherapy on everyday life, including tiredness, sex life and fertility, social life, work, holidays, exercise and diet.

Dr Terry Priestman
Sheldon Press, 2007
ISBN 9780859699990

Gives information about radiotherapy, its side effects, and how to cope with them. Also discusses the effect of radiotherapy on everyday life, including social life, work, travel, exercise and diet.

A Ko, E Rosenbaum and M Dollinger
Andrews McMeel Publishing, 2009
ISBN 9780740786310

The author and contributors of this book are all American cancer specialists. The book covers how cancer is diagnosed, treated and managed day to day.

Jane Freeman
Sheldon Press, 2012
ISBN 9781847091413

Written by a cancer dietitian, this is a practical handbook for people with cancer. Filled with helpful tips and recipes.

Videos of people's stories

Hear what it's like to live with and beyond cancer, from people who have shared their personal stories on film.

Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more. 

Find local cancer information and support

NHS Choices helps you to find local cancer information and support.

Information and help