Follow up for insulinoma

Insulinoma is a type of neuroendocrine tumour (NET) of the pancreas. You have regular appointments with your doctor or nurse after treatment for insulinoma. This is called follow up.

Why you have follow up

You have follow up appointments to check how you are and see if you have any problems or worries. The appointments also give you the chance to raise any concerns you have about your progress.

How often you have follow up

After surgery you are likely to have an appointment with your doctor between 2 to 6 weeks after you go home.

Then you have appointments with your doctor or specialist nurse at regular intervals. You usually see them every 3 to 6 months after treatment for insulinoma that had spread to other parts of the body. You see them less often if you have had surgery to cure the insulinoma. 

What happens

Your doctor or nurse examines you at each appointment. They ask how you are feeling, whether you have had any symptoms or side effects, and if you are worried about anything. 

You will also have blood tests during some visits.

Between appointments

Contact your doctor or specialist nurse if you have any concerns between appointments. You should also contact them if you notice any new symptoms. You don’t have to wait until your next visit.

Many people find their check ups quite worrying. A hospital appointment can bring back any anxiety you had about your cancer.

It can help to tell someone close to you how you’re feeling. Sharing your worries can mean they don’t seem so overwhelming. Many people find it helpful to have counselling during or after cancer treatment.

You can also find people to share experiences with by using our online forum, CancerChat.

Neuroendocrine Cancer UK

Neuroendocrine Cancer UK is a UK wide charity providing support and information to those affected by neuroendocrine cancer. They also have a helpline.

Cancer Research UK information nurses

For support and information, you can call the Cancer Research UK information nurses. They can give advice about who can help you and what kind of support is available. Freephone: 0808 800 4040 - Monday to Friday, 9am to 5pm.
Last reviewed: 
08 Jul 2021
Next review due: 
07 Jul 2024
  • Gastroenteropancreatic neuroendocrine neoplasms: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up
    M. Pavel and others
    Annals of Oncology 2020, Vol 31, Issue 5 

  • ENETS Consensus Guidelines Update for the Management of Patients with Functional Pancreatic Neuroendocrine Tumors and Non-Functional Pancreatic Neuroendocrine Tumors
    M Falconi and others
    Neuroendocrinology, 2016. Vol103, Pages 153–171

  • Consensus guidelines for the management and treatment of neuroendocrine tumors (NANETS guidelines)
    P Kunz and others
    Pancreas, 2013. Vol 42, number 4

  • Neuroendocrine tumors of the pancreas
    F Ehehalt and others
    The oncologist, 2009. Vol 14, pages 456-467

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