Gastrinoma is a type of neuroendocrine tumour (NET) that starts in the neuroendocrine cells of the pancreas or the small bowel (duodenum).
Survival for gastrinomas depends on many factors. So no one can tell you exactly how long you will live.
Doctors usually work out the outlook for a certain disease by looking at large groups of people. Because gastrinomas are rare tumours, the survival for this disease is harder to estimate than for other, more common cancers.
These are general statistics based on small groups of people. Remember, they can’t tell you what will happen in your individual case. Your doctor can give you more information about your own outlook (prognosis).
What affects survival
Survival depends on many factors. It depends on the stage and grade of the gastrinoma when it was diagnosed. The stage describes the size of the tumour and whether it has spread. The grade means how abnormal the cells look under a microscope.
Another factor is how well you are overall.
Survival for gastrinomas
There are no UK survival statistics for people with gastrinoma. The statistics below are from an American study. Please be aware that due to differences in health care systems, data collection and the population, these figures may not be a true picture of survival in the UK.
This study looked at the survival of people with gastrinomas that had or had not spread to the liver at the time of diagnosis.
Survival for gastrinoma that hasn’t spread to the liver
Most people with a gastrinoma that hasn't spread to the liver have surgery to try to cure their cancer.
More than 90 out of every 100 people (95%) survive for 5 years or more. And around 90 out of every 100 people (90%) survive for 10 years or more.
Survival for gastrinoma that has spread to the liver
Most people with a gastrinoma that has spread to the liver have treatment to try to control the growth of their cancer.
More than 50 out of every 100 people (50%) survive 5 years or more. And around 30 out of every 100 people (30%) survive for 10 years or more.
This 5 and 10 year survival rate comes from an American study that looked at around 185 people diagnosed with gastrinoma between 1978 and 1993. This study was done some time ago and people are now more likely to have different and better treatments.
Determinants of metastatic rate and survival in patients with Zollinger-Ellison syndrome: a prospective long-term study
H Weber and others
Gastroenterology, 1995. Vol 108, Pages 1637-1649
About these statistics
The term 1 year, 5 year and 10 year survival does not mean that you will only live for 1, 5 or 10 years. They relate to the number of people who are still alive 1 year, 5 years or 10 years after their diagnosis.
Some people live much longer than 10 years.
You might want to read our information about treatment for gastrinomas.