Survival for gastrinoma

Gastrinoma is a type of neuroendocrine tumour (NET) that starts in the neuroendocrine cells of the pancreas or the small bowel (duodenum). 

Survival for gastrinomas depends on many factors. So no one can tell you exactly how long you will live. 

Doctors usually work out the outlook for a certain disease by looking at large groups of people. Because gastrinomas are rare tumours, the survival for this disease is harder to estimate than for other, more common cancers.  

These are general statistics based on small groups of people. Remember, they can’t tell you what will happen in your individual case. Your doctor can give you more information about your own outlook (prognosis). 

You can also talk about this with the Cancer Research UK nurses on freephone 0808 800 4040, from 9am to 5pm, Monday to Friday.

What affects survival

Survival depends on many factors. It depends on the stage and grade of the gastrinoma when it was diagnosed. The stage describes the size of the tumour and whether it has spread. The grade means how abnormal the cells look under a microscope.

Another factor is how well you are overall. 

Survival for gastrinomas

There are no UK survival statistics for people with gastrinoma. The statistics below are from an American study. Please be aware that due to differences in health care systems, data collection and the population, these figures may not be a true picture of survival in the UK. 

This study looked at the survival of people with gastrinomas that had or had not spread to the liver at the time of diagnosis.

Survival for gastrinoma that hasn’t spread to the liver
Most people with a gastrinoma that hasn't spread to the liver have surgery to try to cure their cancer.

More than 90 out of every 100 people (95%) survive for 5 years or more. And around 90 out of every 100 people (90%) survive for 10 years or more.

Survival for gastrinoma that has spread to the liver
Most people with a gastrinoma that has spread to the liver have treatment to try to control the growth of their cancer.

More than 50 out of every 100 people (50%) survive 5 years or more. And around 30 out of every 100 people (30%) survive for 10 years or more.    
 

About these statistics

The term 1 year, 5 year and 10 year survival does not mean that you will only live for 1, 5 or 10 years. They relate to the number of people who are still alive 1 year, 5 years or 10 years after their diagnosis.

Some people live much longer than 10 years.

What next?

You might want to read our information about treatment for gastrinomas. 

Last reviewed: 
07 Jun 2019
  • Gastrinoma (Duodenal and Pancreatic)
    R Jensen and others
    Neuroendocrinology, 2006. Vol 84, Pages 173-182

  • 1-Year survival rates for neuroendocrine tumour patients in England 
    T Genus and others 
    Public Health England, 2017

  • ENETS consensus guidelines for the management of patients with digestive neuroendocrine neoplasms: functional pancreatic endocrine tumor syndromes
    R Jensen and others
    Neuroendocrinology, 2012. Vol 95, Pages 98-119

  • Determinants of metastatic rate and survival in patients with Zollinger-Ellison syndrome: a prospective long-term study 
    H Weber and others
    Gastroenterology, 1995. Vol 108, Pages 1637-1649

  • Pancreatic neuroendocrine tumors (PNETs): incidence, prognosis and recent trend toward improved survival
    T Halfdanarson and others
    Annals of Oncology, 2008. Vol 19, Pages 1727-1733

  • Cancer: Principles and Practice of Oncology (10th edition)
    VT DeVita, TS Lawrence, SA Rosenberg 
    Lippincott, Williams and Wilkins, 2015

Related links