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Living with cancer

Nasal and paranasal sinus cancer resources and support organisations

There are several organisations, support groups, booklets, videos and more to help you cope with nasal or paranasal sinus cancer.

Cancer Research UK information and support

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.

We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.

Contact our cancer information nurses

Cancer Chat is our online forum where you can share experiences.

Cancer Chat discussion forum

Head and neck cancer organisations and sites

Changing Faces

Changing Faces provide support and information for people who have any form of facial disfigurement including disfigurement caused by cancer. They also provide a skin camouflage service for people in England and Scotland. Trained volunteers teach people how to apply specialist cover creams.

Phone: 0300 0120 275 (support and advice line) Head office email: info@changingfaces.org.uk

The contact details for the skin camouflage service are:

Phone: 0300 0120 276 Email: skincam@changingfaces.org.uk

Visit the Changing Faces website

Get Ahead

Get Ahead is a national charity supporting people with head and neck diseases and cancers. They have some patient information on their website, and a patient group who are willing to talk to others about their experiences.

Email: info@getahead.org.uk Phone: 0121 794 9596

Visit the Get Ahead website

Let's Face It

This UK organisation for people with facial disfigurement offers: 

  • telephone support

  • a service to link up people in similar situations

  • dietary and medical advice

  • social activities

  • resources and a newsletter

Email: sandra.smith@lets-face-it.org.uk

Visit the Let's Face It website

Oral Health Foundation

This UK based charity works to improve standards of mouth care. Their website has information on cancer and caring for your mouth.

The Oral Health Foundation was called the British Dental Health Foundation until 2016.

Get information and advice at the Oral Health Foundation website

Saving Faces - The Facial Surgery Research Foundation

Saving Faces is funding education and research to improve medical treatment and support for people after facial surgery.

Sometimes it can be helpful to talk to someone who has been in a similar situation. Saving Faces can put you in touch with other people who have had facial surgery.

Phone: 020 3417 7757 Email: info@savingfaces.co.uk

Visit the Saving Faces website

The Mouth Cancer Foundation

Mouth Cancer Foundation is a charity that supports people affected by head and neck cancer. Its website has information about mouth, throat and other head and neck cancers. The website also has a forum and information on local support groups.

Tel: 01924 950 950 (Monday to Friday 9am - 5pm)

Email: info@mouthcancerfoundation.org

Go to the Mouth Cancer Foundation website

The Swallows Head and Neck Cancer Support Group

The Swallows is a UK charity set up to help support people affected by head and neck cancer. Their website has information about head and neck cancer, what support is available and patient stories. They hold monthly meetings and have a patient and carer support line. They also have an online forum where you can share experiences.

Support line: 07504 725059 Email: info@theswallows.org.uk

Visit The Swallows Head and Neck Cancer Support Group

General support organisations

Macmillan Cancer Support

Macmillan Cancer Support is a charity that gives practical and medical support to people with cancer in the UK. Its helpline offers support with clinical, emotional, general and welfare benefits needs. They also publish booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm) Contact email form

Visit the Macmillan Cancer Support website

Quit smoking

Quit smoking is an NHS website dedicated to helping people stop smoking. The website has information on how to quit smoking, as well as information on the NHS Quit smoking app.

Visit the NHS Quit smoking website

International organisations and websites

American Cancer Society

The ACS provides information and support for people affected by cancer. As it is an American website, not all the information is relevant for a UK audience.

American Cancer Society

Memorial Sloane Kettering Cancer Centre

This American organisation provides information about head and neck cancers.

Visit the Memorial Sloane Kettering website

National Cancer Institute (NCI)

The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer. 

See NCI guides to cancer

SPOHNC

An American support network for people with cancers of the head and neck. It puts people in touch with each other and provides useful information.

Visit the SPOHNC website

Booklets and factsheets from other organisations

From Macmillan Cancer Support

Understanding cancer of the head and neck  Healthy eating and cancer  Coping with advanced cancer  Managing cancer pain  Managing the symptoms of cancer  Talking with someone who has cancer Cancer and your sex life Understanding chemotherapy Understanding radiotherapy  Coping with hair loss  Coping with fatigue  How are you feeling? The emotional effects of cancer  Talking about your cancer Talking to children and teenagers when an adult has cancer  Money worries? How we can help

Go to the Macmillan Cancer Support website

From the Royal Marsden Hospital Trust

Chemotherapy: your questions answered Radiotherapy: your questions answered Clinical trials: your questions answered Your operation and anaesthetic: your questions answered

You can download these booklets from the Royal Marsden website.

Visit the Royal Marsden Hospital website

Last reviewed: 30 Jan 2024

Next review due: 30 Jan 2027

What is nasal and paranasal sinus cancer?

Cancer can start in the lining of the space behind the nose (nasal cavity) or the nearby air cavities (paranasal sinuses) and sometimes spread to lymph nodes and rarely other parts of the body.

Getting diagnosed with nasal and paranasal sinus cancer

You usually start by seeing your GP. They will examine you and might refer you for tests or to a specialist.

Treatment for nasal and paranasal sinus cancer

Your treatment depends on several factors. These include what type of nasal and paranasal sinus cancer you have, how big it is, whether it has spread (the stage) and the grade. It also depends on your general health.

Living with nasal and paranasal sinus cancer

There is support available during and after treatment to help you cope. This includes support from your clinical nurse specialist, cancer charities, community services, and family and friends.

Research and clinical trials for nasal and paranasal sinus cancer

It is important to understand what clinical trials are. There are also things that you should be told about a clinical trial before taking part. Several clinical trials for head and neck cancer in the UK include nasal and paranasal sinus cancer.

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