Decorative image

Resources and organisations

There are several organisations, support groups, books, videos and more to help you cope with nasal or paranasal sinus cancer.

Cancer Research UK information and support

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.

We are committed to producing high quality information for people affected by cancer.  As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send us a question online.

Cancer Chat is our online forum where you can share experiences.

Head and neck cancer organisations and sites

Oral Health Foundation

This UK based charity works to improve standards of mouth care. Their website has good information on cancer and caring for your mouth.

The Oral Health Foundation was called the British Dental Health Foundation until 2016.

Changing Faces

Changing Faces provide support and information for people who have any form of facial disfigurement including disfigurement caused by cancer. They also provide a skin camouflage service for people in England and Scotland. Trained volunteers teach people how to apply specialist cover creams.

Phone: 0300 0120 275 (support and advice line)
Head office email:

The contact details for the skin camouflage service are:

Phone: 0300 0120 276

Let's Face It

This UK organisation for people with facial disfigurement offers: 

  • telephone support
  • a service to link up people in similar situations
  • dietary and medical advice
  • social activities
  • resources and a newsletter


The Mouth Cancer Foundation

Mouth Cancer Foundation is a charity that supports people affected by head and neck cancer. Its website has information about mouth, throat and other head and neck cancers. The website also has a forum and information on local support groups.

Tel: 01924 950 950 (Monday to Friday 9am - 5pm)


Saving Faces - The Facial Surgery Research Foundation

Saving Faces is funding education and research to improve medical treatment and support for people after facial surgery.

Sometimes it can be helpful to talk to someone who has been in a similar situation. Saving Faces can put you in touch with other people who have had facial surgery.

Phone: 020 3417 7757


Get Ahead

Get Ahead is a national charity supporting people with head and neck diseases and cancers. They have some patient information on their website, and a patient group who are willing to talk to others about their experiences.

Phone: 0121 794 9596

Support organisations

The British Association of Skin Camouflage

This organisation has detailed information about camouflage cosmetics for people who need help to cover up scars and disfigurements after head and neck surgery. It also runs training courses for camouflage cosmeticians.  

Tel.: 01254 703 107

Macmillan Cancer Support

Macmillan Cancer Support provides practical, medical and financial support, and campaigns for better cancer care. It provides booklets on cancer and treatments and runs a helpline providing cancer information and benefits advice. 

Macmillan support line: 0808 808 0000 (7 days a week, 8am to 8pm; information available in other languages) or fill in the support line form.

Get help to stop smoking

Stopping smoking can be challenging. But there is support available.

International organisations and websites

Memorial Sloane Kettering Cancer Centre (MSKCC) provides information about head and neck cancers. It is an American website.

The National Cancer Institute (NCI) is an American organisation. It's website has information about head and neck cancer. 

The American Cancer Society (ACS) provides information about nasal cavity and sinus cancer.

SPOHNC is an American support network for people with cancers of the head and neck. It puts people in touch with each other and provides useful information.

Books from libraries, bookshops or online booksellers

E Carper, K Hu and E Kuzin
Jones and Bartlett Learning, 2007
ISBN 978 0763743079

Provides doctors and patients views and answers questions about treatment and side effects, and quality of life after treatment. As it is American, not all the information will be relevant for patients in the UK.

Professor R Bor, Dr C Eriksen and C Stapelkamp
Sheldon Press, 2010
ISBN 978 1847090973

This book addresses the painful emotions linked with a cancer diagnosis. It covers areas such as coping with distressing thoughts, learning to relax, family relationships and coping with an advanced cancer.

V Speechley and M Rosenfield
MaGraw-Hill, 2004
ISBN 978-0074713723

Get the facts about cancer and cancer treatments, set out in question and answer format. This book includes advice on diet, exercise, sex and relationships, holidays, employment and money matters.

Jeffrey Tobias
Bloomsbury Publishing PLC, 2001
ISBN 978-0747554103

This book covers treatment, side effects and many different types of cancer.

Dr Terry Priestman
Sheldon Press, 2009
ISBN 978-1847090805

Gives information about chemotherapy, its side effects, and how to cope with them. Also discusses the effect of chemotherapy on everyday life, including tiredness, sex life and fertility, social life, work, holidays, exercise and diet.

Dr Terry Priestman
Sheldon Press, 2007
ISBN 9780859699990

Gives information about radiotherapy, its side effects, and how to cope with them. Also discusses the effect of radiotherapy on everyday life, including social life, work, travel, exercise and diet.

Dr Terry Priestman
Sheldon Press, 2009
ISBN 9781847090485

This handbook deals frankly and sensitively with the issues of cure, follow up, treatment side effects and recurrence. It looks at the support available to people who have finished their treatment.

Booklets and factsheets from other organisations

From Macmillan Cancer Support

Some of the following booklets are available on CD

Understanding cancer of the head and neck 
Diet and cancer 
Coping with advanced cancer 
Controlling cancer pain 
Controlling symptoms of cancer 
Lost for words - how to talk to someone with cancer
Sexuality and cancer 
Understanding chemotherapy
Understanding radiotherapy 
Coping with hair loss 
Coping with fatigue 
Understanding clinical trials
The emotional effects of cancer 
Talking about your cancer
Adjusting to life after cancer treatment
Talking to children when an adult has cancer 
The emotional effects of cancer 
Money worries? How can we help?

From the Royal Marsden Hospital Trust

Clinical trials
Your operation and anaesthetic

You can download these booklets from the Royal Marsden website, or request them by calling freephone 0800 783 7176.

Last reviewed: 
02 Dec 2020
Next review due: 
01 Dec 2023