Resources and support for chronic myeloid leukaemia (CML)
There are organisations, support groups, videos and other resources to help you cope with chronic myeloid leukaemia (CML) and treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Cancer Chat is our online forum where you can share experiences.
Leukaemia support organisations
The CML Support group runs the website and provides information, support for people and their families and carers with chronic myeloid leukaemia (CML). They also have a forum you can join.
The CML support website has a portal called 'Ask the CML specialist'. This is a service for patients and doctors. They provide general advice to patients. The CML team at the Hammersmith Hospital run this service.
Ask the CML team email address: imperial.askaboutcml@nhs.net
Blood Cancer UK funds research, provides information and support to those affected by blood cancer. They publish information booklets and you can also connect and share experiences with other people dealing with blood cancer.
Support line: 0808 2080 888
Support line opening hours are:
- 10 am to 4pm on Monday, Wednesday, Thursday and Friday
- 10 am to 7pm on Tuesday
- 10 am to 1 pm on Saturdays and bank holidays
Email address: support@bloodcancer.org.uk
Leukaemia Care is a national blood cancer support charity, committed to ensuring that anyone affected by blood cancer receives the right information, advice and support.
It provides a range of support services to patients and their carers, including information, support groups, patient and carer conferences, and buddy support. The buddy support service is available if you want to chat to someone who has had a similar experience.
Freephone helpline: 08088 010 444, open Monday to Friday 9am to 4:30pm
Chat via WhatsApp on 07500068065
The African Caribbean Leukaemia Trust (ACLT) aims to increase the number of stem cells, blood and organ donors from all ethnicities, with a focus on African and Caribbean people in the UK who need a transplant.
Telephone: 020 3757 7700
Email address: info@aclt.org
Blood and bone marrow organisations
Anthony Nolan runs one of the largest bone marrow donor databases in the world. It has regional centres which are listed on its website. It also provides information about being a stem cell or bone marrow donor.
It is looking for people in good health aged 16–30 to join the stem cell register. In particular, they need more people from minority ethnic communities to sign up.
General enquiries: 0303 303 0303, open Monday to Friday 9am to 5pm
Email: patientinfo@anthonynolan.org
The NHS Blood and Transplant service runs the blood donation scheme and organises the supply of blood products. They also run the NHS Stem Cell Donor Registry. This was previously called the British Bone Marrow Register (BBMR). They help find people stem cell matches.
Telephone: 0300 123 23 23
DKMS used to be called Delete Blood Cancer. It aims to provide a matching donor for every blood cancer patient in need of a blood stem cell donation. It has offices in the UK, Germany, Chile, Poland, India, Africa and the United States.
People between the ages of 18 to 55 and are in general good health can join the register.
General enquiries email: info@dkms.org.uk
General enquiries phone: 020 8747 5620, Monday to Friday 9am to 5pm
Patient and family enquiries email: patients@dkms.org.uk
Other support and information organisations
Macmillan Cancer Support is a charity that gives practical and medical support to people with cancer in the UK. Its helpline offers support with clinical, emotional, general and welfare benefits needs. They also publish booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
Healthtalk.org
Provides free, reliable information about health issues including mental health, by sharing people's real-life experiences.
Find local cancer information and support near you
There are organisations and support in your local area that you can access. You can ask your specialist nurse or doctor for more information about cancer services near you.
England
The NHS website has a service that tells you about local information and support in England.
Scotland
NHS Inform gives information about illness, treatments and NHS services for people in Scotland.
Wales
NHS 111 Wales gives health advice and information for people living in Wales.
Northern Ireland
The Northern Ireland Cancer Network (NICaN) website tells you where to find cancer information and support in Northern Ireland.
