Read about organisations and websites that help and support children with cancer and their family and friends.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to treatment and prevention.
We are committed to producing high quality information for people affected by cancer, health professionals and the general public. We also have a range of health awareness leaflets.
Nurse freephone helpline: 0808 800 4040, Monday to Friday, 9am to 5pm
Admin phone number: 020 7242 0200
Cancer Chat is our online forum where you can share experiences.
Cancer support and information organisations
The Children's Cancer and Leukaemia Group (CCLG) work to coordinate national and international clinical trials. They also provide information about cancer for children and their families.
Phone: 0116 252 5858
A children’s charity based in Scotland. It is run by parents whose children have cancer. Gives information and offers a telephone helpline and fun events, plus practical support such as transport to clinics and family holidays.
Tel: 0131 467 7420
Kids Cancer Charity provides telephone support and a range of other support services for children with cancer and their families. They offer bereavement support, befriending and self help parent support groups. Holidays and 'staycations' are also available.
62 Walter Road
Phone: 01792 480500
The Childhood Cancer Parents Alliance (CCPA) is made up of parent run organisations that work together to support children with cancer. They also offer support and information to the parents of children with cancer.
Camp Simcha offers free services to improve the lives of Jewish children with serious illness including cancer. Provides family liaison officers and home support volunteers to help parents cope. Also offers trips and experiences, including special treats, outings, parties, family retreats and Camp Simcha USA.
Tel: 020 8202 9297
Macmillan Cancer Support provides practical, medical and financial support, and campaigns for better cancer care. It provides booklets on cancer and treatments and runs a helpline providing cancer information and benefits advice.
Macmillan support line: 0808 808 0000 (Monday to Friday, 9am to 8pm; information available in other languages) or fill in the support line form.
Little Princess Trust provides and fully funds wigs especially designed for children. They also provide personal fitting and styling to ensure the wig is as close as possible to their original hair.
To order a wig: 01432 760 060
For all other enquiries phone: 01432 352 359
The Future Fertility Trust is run by a team of doctors, researchers and tissue bank specialists from the University of Oxford and the Oxford University Hospitals NHS Foundation Trust.
It aims to help children and young people at risk of infertility due to illness or treatment.
Support and information for families with children with any serious illness
Provides information on support services for families whose children have life-threatening or terminal conditions, regardless of the disease involved. It is involved in encouraging the development of children’s palliative care services.
Helpline: 0808 8088100
A network of national groups that gives advice and information for parents with children going to hospital. Also provides counselling for parents. Leaflets and videos are available to support children going into hospital. If you can't download these from the website, contact the charity and they can send them to you.
Tel: 0161 486 6778 (freephone)
InsuranceWith are a specialist medical insurance company. They have an online guide of helpful travel tips and very useful information about some of the common problems associated with travelling abroad with a health condition.
Information for children and teenagers
Along with a comic book line, Jumo Health produces other products such as podcasts, videos, and games. They are all designed to help children, their parents and carers learn more about their health condition.
Tel: 020 7612 0370
Teenage Cancer Trust is a national charity providing specialist units, expert staff, support events, education and information for 13-24 year old’s diagnosed with cancer, and their friends and families.
The Teenage Cancer Trust also work closely with healthcare professionals and researchers to lead the way on developing cancer care for teenagers and young adults.
Macmillan Cancer Support has a separate section on its website for teenagers and young adults with cancer. It offers advice and support on how to cope with cancer, and the chance to share experiences of cancer with other teenagers.
Provided by a charity called HopeLab, these games teach children about cancer. Research has shown that they can help children to cope with cancer and understand their treatment.
Information on specific childhood cancers
Bloodwise sponsors research into leukaemia, lymphoma and myeloma. They also provide patient information booklets and leaflets that you can download or order from their website.
Support line team member: 0808 2080 888 (Monday to Friday, 10am to 4pm)
Leukaemia Care is a national blood cancer support charity, committed to ensuring that anyone affected by blood cancer receives the right information, advice and support.
It provides a range of support services to patients and their carers, including information, support groups, patient and carer conferences, and nurse education days.
Nurse or support team number: Freephone 08088 010 444 (Monday to Friday 9am to 10pm, Saturdays 9am to 12:30pm).
Lymphoma Action (previously known as Lymphoma Association) gives emotional support and medical information on all aspects of Hodgkin and non-Hodgkin lymphoma. Their services are free to people with lymphoma and their family and friends.
They run local support groups for people with lymphoma around the country. They also have a buddy scheme for putting patients in touch with each other by phone. And they produce leaflets and a newsletter.
The Lymphoma Action online forum is available 24 hours a day.
Tel: 0808 808 5555 (10 am to 3 pm Monday to Friday)
A UK charity for families and people affected by retinoblastoma. It offers support and information, funds research and raises public awareness of this rare cancer.
The Royal London Hospital
London E1 1BB
Tel: 020 7377 5578 (Monday to Friday, 9am to 5pm)
Royal Orthopaedic Hospital
Bristol Road South
Phone: 01584 856209
Provides support for patients with bone tumours and soft tissue tumours.
The Brain Tumour Charity is the world's largest dedicated brain tumour charity. It funds cutting-edge research, provides support and information services and raises awareness. It aims to reduce the harm brain tumours have on quality of life, and ultimately, to find a cure.
Support line: 0808 800 004
This organisation provides information, support and counselling for people with primary bone cancer and their families. They promote research into the causes and treatment of primary bone cancer, in particular osteosarcoma and Ewing's sarcoma.
Telephone: 0113 258 5934
A support group for children with brain or spinal tumours and their families. Also offers information about brain or spinal tumours and their treatment. Provides days out, contact with other families, small financial grants and holiday accommodation.
Tel: 07498 578890