Find out about support groups, books, videos and other resources to help you cope with cervical cancer and treatment. You can also find about organisations that specialise in different areas such as sexual health and family planning.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send us a question online.
Cancer Chat is our online forum where you can share experiences.
Specific women's cancer organisations and sites
This organisation provides information about cervical cancer and run a helpline staffed by volunteers who have had experience of cervical cancer or abnormal cervical cells. It also has a confidential medical enquiry service. The website has an online forum where you can exchange experiences and information with others who have cervical cancer.
On the Jo's Trust website you can watch a video about having cervical screening.
- how you receive your invitation for screening
- why it is important to go for your screening appointment
- what happens at the appointment
- what the results mean
Phone: 020 3096 8100
Helpline: 0808 802 8000
This charity provides information on gynaecological and sexual aspects of women’s health including some gynaecological cancers. They have a team of specialist nurses and medical advisers who will answer email or postal enquiries. They ask for a £5 donation for this service. They also publish information leaflets.
A patient led group which aims to promote understanding about pelvic radiation disease which is a late effect of radiotherapy treatment. They offer support to patients and campaign for more research and better treatment for this condition. They focus is on the bowel problems that can follow pelvic radiotherapy.
Phone: 01372 744338
This is a national charity offering information and support to anyone affected by lymphoedema. They have over 3500 members, 65 local support groups, run a helpline and have a website. They also produce a range of information including factsheets about lymphoedema and its treatment, 2 DVDs about self management techniques for lymphoedema and a quarterly newsletter.
Tel: 020 7351 4480 (10am-4pm)
Fax: 020 7349 9809
The American National Cancer Institute's patient information on cervical cancer is detailed and comprehensive, and have a few images. They tend to use more technical terms and have longer pages than we do.
The Eve Appeal is a UK national charity raising awareness, and funding research into the five gynaecological cancers - womb, ovarian, cervical, vulval and vaginal. They also provide a gynae cancer information and support service called Ask Eve.
Ask Eve telephone: 0808 802 0019
Ask Eve email: email@example.com
General enquiries: telephone: 020 7605 0100 and email: firstname.lastname@example.org
General support organisations and sites
Macmillan Cancer Support provides practical, medical and financial support, and campaigns for better cancer care. It provides booklets on cancer and treatments and runs a helpline providing cancer information and benefits advice.
Macmillan support line: 0808 808 0000 (Monday to Friday, 9am to 8pm; information available in other languages) or fill in the support line form.
A charity set up by the cosmetics industry. Volunteer beauty therapists provide skincare and make up workshops for women undergoing cancer treatment. All guests are provided with a goodie bag. Their workshops are held in 59 hospitals and cancer care centres across the UK. Find your nearest workshop and read more about the work of the charity on their website.
Tel: 01372 747500
Fax: 01372 747502
The Sexual Advice Association provide lists of local specialist practitioners, as well as fact sheets on problems such as erectile dysfunction (impotence).
This organisation provides free information about contraception and sexual health.
Books from libraries, bookshops or online booksellers
S Hollins and J Downer
Beyond Words, 2000
The book is designed to help prepare women with learning disabilities who want to go for a smear test. It addresses issues such as whether or not to have a smear test, what actually happens when you do have one, getting your test results and health education. It also looks at the emotions you may have about having a smear test.
Altman Publishing, 2007
Dr Ian Banks
J H Haynes & Co Ltd, 2009
A practical guide to all aspects of women's health, written for men to help them understand and support the women in their lives.
Booklets and resources from other organisations
An easy guide to cervical screening
This is a leaflet with pictures about cervical screening for women with a learning disability. You can read or download this leaflet in PDF format on the Gov.UK website.
Cervical screening: lesbian and bisexual women
This factsheet answers questions about cervical screening.
Cervical screening: helping you decide
This leaflet is sent to all women who are invited for cervical screening. It explains what the cervical screening test is and what the results mean.
Cervical screening: Colposcopy
This is the leaflet sent to women after having an abnormal cervical screening result. It explains what a colposcopy is, what to expect during your appointment and what the results of the test mean.
NHS population screening: information for transgender and non binary people
This leaflet includes information about cervical screening, and breast and bowel cancer screening.
You can find and download these all from the Macmillan website.
- Controlling cancer pain (also on audiotape and CD)
- Coping with advanced cancer (also on audiotape and CD)
- Coping with hair loss (also on audiotape)
- Diet and cancer (also on audiotape)
- Lost for words - how to talk to someone with cancer
- Pelvic radiotherapy in women: possible late effects (produced in partnership with Cancer Research UK)
- Sexuality and cancer (also on audiotape)
- Talking about your cancer (also on audiotape and CD)
- Talking to children about cancer (also on audiotape and CD)
- Understanding cancer research trials (clinical trials)
- Understanding cervical cancer (also on audiotape and CD)
- Understanding cervical screening (also on audiotape)
- Understanding chemotherapy (also on audiotape)
- Understanding radiotherapy (also on audiotape and CD)
These booklets can be downloaded from the Royal Marsden website, or you can order them by calling freephone 0800 783 7176.
- Clinical trials
- Your operation and anaesthetic
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