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Resources and support

Find out about organisations, support groups, books, videos and other resources to help you cope with bone cancer and treatment.

Cancer Research UK

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website. 

Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.

If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.

We also have news, health awareness leaflets and other resources on cancer. 

Bone cancer support organisations

This organisation provides information, support and counselling for people with primary bone cancer and their families. They promote research into the causes and treatment of primary bone cancer, in particular osteosarcoma and Ewing's sarcoma. 

Telephone: 0113 258 5934

Email: info@bcrt.org.uk

Sarcoma UK supports people with bone or soft tissue sarcomas. They have a website, an email support network and produce a newsletter. 

Support line: 0808 801 0401

Email: supportline@sarcoma.org.uk 

ROHBTS is a self help group for parents of children with bone cancer. They have now extended their support to all parents that are treated at Woodlands (ROH) as well as offering support for adults with sarcoma.

Telephone: 0121 685 4000

General support organisations

Macmillan Cancer Support

This charity gives practical, medical and financial support to people with cancer. 

Macmillan Cancer Support produce a wide range of booklets, factsheets, leaflets and CDs about cancer and its treatment, in various languages. They also provide information for teenagers and young adults with cancer.

Their helplines give advice on cancer and benefits.They also have an online community group for people aged 16 to 24 who are living with cancer.

Tel: 0808 808 0000

Teenage Cancer Trust is a national charity providing specialist units, expert staff, support events, education and information for 13-24 year old’s diagnosed with cancer, and their friends and families.

Teenage Cancer Trust also work closely with healthcare professionals and researchers to lead the way on developing cancer care for teenagers and young adults.

Teenage Cancer Trust
Third floor
93 Newman Street
London
W1T 3EZ

Phone: 020 7612 0370
Email: hello@teenagecancertrust.org

The Limbless Association produces a quarterly magazine and publications. It provides information and advice for people of all ages who have had amputations, or suffer with congential limb loss. 

Telephone: 01245 216 670

Helpline: 0800 644 0185

Email: enquires@limbless-association.org

This charity provides practical, clinical, financial and emotional support for children, young people and their families affected by cancer. 

Telephone: 0300 330 0803

Along with a comic book line, Jumo Health produces other products such as podcasts, videos, and games. They are all designed to help children, their parents and carers learn more about their health condition.

REACH offers support for families of children with deformities of, or diffuculty using, their hands or arms. They support research into the causes and treatment of upper limb deficiency.

Telephone: 0845 130 6225

Email: reach@reach.org.uk

This commercial company makes waterproof coverings for dressings or casts on the arms or legs. This means you can go swimming, take a bath or shower without worrying. They can also be used to cover PICC lines. Ask your specialist or nurse about getting one on the NHS or you can buy direct from the company. 

Telephone: 0870 041 0150

Email: enquires@autonomed.co.uk

The Disabled Living Foundation gives information and advice on equipment and aids to help with daily living.

Helpline: 0300 999 0004 
Email: helpline@dlf.org.uk

This national disability organisation has an information and advice service. They campaign for the rights of disabled people. 

Telephone: 020 7250 8181 (Monday to Friday 10am to 12.30pm, 1.30pm to 4pm)

Email: enquires@disabilityrightsuk.org

ASTRiiD

ASTRiiD stands for ‘Available Skills for Training, Refreshing, Improvement, Innovation and Development’.

ASTRiiD is a not for profit organisation connecting businesses with people who have long term health problems, including cancer, but who still have skills to offer employers. A person can register their skills and experiences along with how much time they might be able to give to a potential employer. This might be a number of days a week or even just a few hours a month.

A company registers and highlights the skills and experiences that they are looking for in order to complete some work. ASTRiiD then compares these two registrations to see if there is match. If there is a good match then ASTRiiD will introduce one side to the other.

Shine Cancer Support

Shine is a charity working to create a community of young adults in their 20s, 30s and 40s who have experienced a cancer diagnosis. 

Shine has local peer support networks across the UK and runs a number of annual events including Shine Camp (a summer camping trip) and Shine Connect, a conference for young adults with cancer, their friends and family, and healthcare professionals.

Shine also runs workshops on topics such as working after cancer and managing anxiety and depression. 

Books about bone cancer

Kim Chilman-Blair
Medikidz Publishing, 2009
ISBN 978-1906935115

This is a comic book for 8 to 15 year olds produced by JumoHealth. It explains a type of bone cancer called osteosarcoma.

M Self and R Chaytor
Harper Collins, 2002
ISBN 0007115628

This is a story of one woman's fight with bone cancer. Mary Self was diagnosed with bone cancer in 1983. After an above the knee amputation and chemotherapy her cancer seemed cured. In 1999 her cancer came back. She had more treatment. But her doctors weren't hopeful the cancer would respond. She went on to beat the cancer. She is convinced that her faith helped her.

Books about cancer and treatment

J Mackay and N Hirano
New Harbinger Press, 2002
ISBN 1572240709

Written by American oncology nurses, this book has practical tips for coping with treatment side effects.

Videos of people's stories

Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.

Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.

Go to the HealthTalk website

Find local cancer support and information services

NHS Choices has a service that tells you about local information and support.

Go to NHS choices website 

Information and help

Dangoor sponsorship

About Cancer generously supported by Dangoor Education since 2010.