There are many organisations, support groups, books, videos and other resources to help you cope with prostate cancer and treatment.
Prostate cancer support organisations
The National Federation of Prostate Cancer Support Groups is an organisation of over 80 UK patient-led prostate cancer support groups and acts as the voice of patients. It has a helpline and website and campaigns under the name Tackle Prostate Cancer.
Helpline: 0800 035 5302
Support organisations for specific side effects
The Bladder and Bowel Community supports people living with bladder and bowel disorders and has a telephone helpline. The service is confidential. They can also give you information about stoma products.
They have a 'Just Can't Wait' card which allows holders access to toilets in shops and when you are out. It's free to order on the website.
7 The Court
Holywell Business Park
General enquiries: 01926 357220
The British Association for Counselling and Psychotherapy provides information about therapy and counselling. On its website you can look for qualified therapists in your area.
Telephone: 01455 883300 (open Monday to Friday, 9am to 5pm)
COSRT (College of Sexual and Relationship Therapists)
COST provides information about what help and therapy are available for sexual difficulties.
Telephone: 020 8543 2707
Switchboard provides an information, support and referral service for lesbians, gay men and bisexual and trans people - and anyone considering issues around their sexuality or gender identity. Their helpline is open every day between 10am and 10pm. They also offer a chat and email service.
PO Box 7324
Helpline: 0300 330 0630
LGBT Foundation is a national charity delivering advice, support and information services to lesbian, gay, bisexual and trans (LGBT) communities. Look on their website for information about some of the cancers that gay and bisexual men are concerned about.
Tel: 0345 3 30 30 30 (Monday - Friday 10am to 10pm)
Offers private and confidential counselling, and psychosexual therapy to help with relationship problems. They provide counselling over the phone, through a webcam or face to face at a relate centre. They also have live chat on their website.
Telephone: 0300 003 0396
Relationships Scotland provides relationship counselling, family mediation, child contact centres and other family support services across all of mainland and island Scotland.
InfoLine: 0345 119 2020 (open Monday to Friday 9am to 5pm)
A patient led group that promotes understanding about pelvic radiation disease. Pelvic radiation disease is a late effect of radiotherapy treatment. They support patients and campaign for more research and better treatment for this condition.
Tel: 01372 744338
General support organisations
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
The ACS provides information and support for people affected by cancer. As it is an American website, not all the information is relevant for a UK audience.
The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer.
Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff.
You can join a support group, take part in weekly sessions like relaxation and stress management, or learn about nutrition and health. You can also visit just to have a cup of tea and a friendly chat.
10 Dumbarton Road
Phone: 0300 123 1801
Books about prostate cancer
Dr Tom Smith
Sheldon Press, 2010
Dr Tom Smith is the Guardian doctor. This book gives an overview of prostate cancer, describes the many treatments available, and presents the latest research.
Jones and Bartlett publishers, 2014
A detailed book about all aspects of prostate cancer. Has tips on ways of managing the effects of treatment such as erection problems and urinary incontinence. It is written for the American audience so some aspects are not relevant to UK readers.
Da Capo Lifelong Books, 2009
Looks at coping with your emotions, dealing with changes to your lifestyle and treatments.
American Cancer Society, 2006
A comprehensive about prostate cancer, which discusses the latest advances in prevention, early detection, treatment options and how to cope with emotional stresses and physical side effects.
P Scardino and J Kelman
Written by a specialist in America, this book provides information about all aspects of prostate cancer, including prevention, treatment and self help tips.
R Alterowitz and B Alterowitz
Da Copa Lifelong Books, 2004
A description of sexual changes due to prostate treatment. Written by a prostate cancer survivor and his wife. Discusses impotence in lay terms and has information on the treatments available as well as practical advice about lovemaking.
M Rayman, K Gibbons and K Dilley
Kyle Books, 2009
A cook book that provides recipes based on healthy eating guidance that may reduce the risk of prostate cancer.
Books about cancer and treatment
A Ko, E Rosenbaum and M Dollinger
Andrews McMeel Publishing, 2009
The author and contributors of this book are all American cancer specialists. The book covers how cancer is diagnosed, treated and managed day to day.
Dr Terry Priestman
Sheldon Press, 2009
Gives information about chemotherapy, its side effects, and how to cope with them. Also discusses the effect of chemotherapy on everyday life, including tiredness, sex life and fertility, social life, work, holidays, exercise and diet.
Dr Terry Priestman
Sheldon Press, 2007
Gives information about radiotherapy, its side effects, and how to cope with them. Also discusses the effect of radiotherapy on everyday life, including social life, work, travel, exercise and diet.
J F Kelvin and L B Tyson
Jones and Bartlett Publishing, 2010
An American book which gives both doctor’s and patient’s views on coping with the symptoms of cancer and the side effects of treatment. It has information about treatment for pain, nausea, tiredness, and other symptoms.
Information about eating well
Sheldon Press, 2012
Written by a cancer dietitian, this is a practical handbook for people with cancer. Filled with helpful tips and recipes.
A Bloch and others
American Cancer Society, 2010
An American book but most of the information is relevant to the UK. It covers issues such as preventing weight loss and coping with dehydration, fatigue, and infection. It also discusses eating problems and digestion issues, such as swallowing problems, feeling sick and dealing with mouth sores. Focuses on survivorship and how to eat well after treatment.
Booklets and factsheets
Know Your Prostate: a guide to common prostate problems
Understanding the PSA test: A guide for men concerned about prostate cancer
How prostate cancer is diagnosed
A Guide for men just diagnosed
Prostate cancer facts for gay and bisexual men
Managing side effects pack
The Tool Kit (a set of factsheets on prostate cancer)
Prostate Cancer UK have many publications, view the full list at Publications.
An introduction to Male Cancers for Gay and Bisexual men from LGBT foundation
Controlling cancer pain (also on CD)
Controlling the symptoms of cancer
Coping with advanced cancer (also on CD)
Healthy eating and cancer (also on CD)
Lost for words - how to talk to someone with cancer
Pelvic radiotherapy in men: managing side effects during treatment
Sexuality and cancer (also on CD)
Talking about your cancer
Talking to children and teenagers when an adult has cancer (also on CD)
Understanding early (localised) prostate cancer (also on CD)
Understanding locally advanced prostate cancer (also on CD)
Understanding advanced (metastatic) prostate cancer (also on CD)
Understanding cancer research trials (clinical trials)
Understanding radiotherapy (also on CD)
Understanding secondary cancer in the bone
Understanding the PSA test
Videos of people's stories
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
The Prostate Cancer UK website also has videos of men’s experiences at Real Life Stories.
For general health advice and information.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to treatment and prevention.
We are committed to producing high quality information for people affected by cancer, health professionals and the general public. We also have a range of health awareness leaflets.
Nurse freephone helpline: 0808 800 4040, Monday to Friday, 9am to 5pm
Admin phone number: 020 7242 0200
Cancer Chat is our online forum where you can share experiences.