Prostate cancer resources and support organisations
There are many organisations, support groups, books, videos and other resources to help you cope with prostate cancer and its treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
Cancer Chat is our online forum where you can share experiences.
Prostate cancer support organisations
Prostate Cancer UK
Prostate Cancer UK provides information and support to anyone with concerns about prostate cancer. They have a helpline, produce information and fund research into prostate cancer.
Contact form
Helpline: 0800 074 8383
Tackle Prostate Cancer
The National Federation of Prostate Cancer Support Groups is an organisation of over 80 UK patient-led prostate cancer support groups and acts as the voice of patients. It has a helpline and website and campaigns under the name Tackle Prostate Cancer.
Helpline: 0800 035 5302
Email: helpline@tackleprostate.org
infopool the patient resource
infopool is the patient information website for the charity, Prostate Cancer Research. This website provides information about prostate cancer, a clinical trials finder and includes hundreds of real stories from people affected by prostate cancer. You can also share your own story via the website.
Prostate Cancer: Knowing your options
This website, produced by the East England Cancer Alliance, is aimed at patients with a new diagnosis of prostate cancer that has not spread. It provides information about the management of prostate cancer. It should be used in consultation with a healthcare professional.
Support organisations for specific side effects
The Bladder and Bowel Community supports people living with bladder and bowel disorders and has a telephone helpline. The service is confidential. They can also give you information about stoma products.
They have a 'Just Can't Wait' card which allows holders access to toilets in shops and when you are out. It's free to order on the website.
Forward House
17 High Street
Henley-in-Arden
B95 5AA
Home Delivery Service: 0800 031 5406
Email: help@bladderandbowel.org
The British Association for Counselling and Psychotherapy provides information about therapy and counselling. On its website you can look for qualified therapists in your area.
Telephone: 01455 883300 (Monday to Friday, 10am to 4pm)
Email: bacp@bacp.co.uk
College of Sexual and Relationship Therapists (COSRT) provides information about what help and therapy is available for sexual difficulties.
Telephone: 020 8106 9635
Email: info@cosrt.org.uk
LGBT Foundation is a national charity delivering advice, support and information services to lesbian, gay, bisexual and trans (LGBT) communities.
Tel: 0345 3 30 30 30 (Monday - Friday 9am to 6pm)
A patient led group that promotes understanding about pelvic radiation disease. Pelvic radiation disease is a late effect of radiotherapy treatment. They support patients and campaign for more research and better treatment for this condition.
Relate offers private and confidential counselling, and psychosexual therapy to help with relationship problems. They provide counselling over the phone, through a webcam or face to face at a Relate centre. Clients are asked to contribute towards the cost of their counselling sessions according to their income.
Relationships Scotland provides relationship counselling, family mediation, child contact centres and other family support services across all of mainland and island Scotland.
InfoLine: 0345 119 2020 (open Monday to Friday 9.30am to 4pm)
Switchboard is the national LGBTQIA+ support line. They can discuss anything related to sexuality and gender identity. Whether it’s sexual health, relationships or just the way you’re feeling. Their helpline is open every day between 10am and 10pm. They also offer a chat and email service.
PO Box 7324
London
N1 9QS
Phone number: 0800 0119 100 open from 10 am to 10 pm every day
Email: hello@switchboard.lgbt
General support organisations
Macmillan Cancer Support is a charity that gives practical and medical support to people with cancer in the UK. Its helpline offers support with clinical, emotional, general and welfare benefits needs. They also publish booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff.
You can join a support group, take part in weekly sessions like relaxation and stress management, or learn about nutrition and health. You can also visit just to have a cup of tea and a friendly chat.
Phone: 0300 123 1801
Email: enquiries@maggies.org
Cancer Card is a national charity based in Scotland. They aim to provide support to everyone affected by cancer. Their website has a support directory where you can search for national and local cancer support charities and services. You can also find stories of people affected by cancer. They have a cancer support helpline and a digital helpline, which can help you with your online needs. For example helping you gain digital skills so you can access online services, such as banking.
Phone: 0131 287 3001 (Monday-Wednesday, 10am-1pm)
Email: support@cancercard.org.uk
The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer.
The ACS provides information and support for people affected by cancer. As it is an American website, not all the information is relevant for a UK audience.
Booklets and factsheets
These include:
- Know Your Prostate: a guide to common prostate problems
- Understanding the PSA test: A guide for men concerned about prostate cancer
- How prostate cancer is diagnosed
- A Guide for men just diagnosed
- Prostate cancer tests and treatment: A guide for gay and bisexual men
- The Tool Kit (a set of factsheets on prostate cancer)
Prostate Cancer UK has many publications, view the full list at Publications.
Booklets from Macmillan include:
- Understanding advanced (metastatic) prostate cancer
- Having tests for prostate cancer
- Understanding early (localised) prostate cancer
- Bone health
- Symptoms of prostate cancer - easy read
- Treatments for prostate cancer - easy read
- Managing your energy costs
View the full list of booklets available from Macmillan Cancer Support.
Booklets are available from The Royal Marsden website. They include:
- Insertion of gold markers before radiotherapy to the prostate
- Stereotactic body radiotherapy for prostate cancer
- Low dose rate prostate brachytherapy
- Preparing the bowel and bladder before radiotherapy to the prostate and prostate bed
- Preparing for SABR to your prostate
You can view and download the Royal Marsden Hospital booklets for free on this website.
Videos of people's stories
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
The Prostate Cancer UK website also has videos of men’s experiences at Real Life Stories.
Find local cancer information and support
The NHS website helps you to find local cancer information and support in England.
