Resources and organisations for mesothelioma

There are many resources available to help you cope with mesothelioma and its treatment.

Cancer Research UK information and support

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.

We are committed to producing high quality information for people affected by cancer.  As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send us a question online.

Cancer Chat is our online forum where you can share experiences.

Support organisations

These organisations give you support through all stages of mesothelioma and its treatment.

The British Lung Foundation gives information on all types of lung conditions. It runs support groups across the country. It produces a newsletter and other publications. And raises funds for research into lung disease.

Tel: 03000 030 555 (Monday to Friday, 9am to 5pm)

The British Thoracic Society is a professional body for lung specialists. Its website has information about mesothelioma and lung cancer. It also has guidelines for managing mesothelioma.

The material is written for medical professionals. You might find the tone blunt and technical at times.

Great Britain's independent regulator for work-related health, safety and illness. The website includes guidance on asbestos use in the workplace and the laws on asbestos. 

Tel: 0300 003 1747 (Monday to Friday, 8.30am to 5pm and Wednesday 10am to 5pm )

This organisation raises money for research into mesothelioma treatment. It also raises awareness of mesothelioma. And supports activities for people with mesothelioma and their carers.

Tel: 0114 274 4420

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form

Mesothelioma UK supports all UK mesothelioma patients and their families.

Their information line team can help you find information, support and help for benefits or compensation.

They also offer a call back service from a clinical nurse specialist. They can talk to you about any aspect of your mesothelioma.

Phone: 0800 169 2409 (Monday to Friday, 8.30am to 4.30pm)

The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer. 

Support and guidance on lung cancers. This includes mesothelioma. The foundation has support groups around the country. And raises money for research.

Tel: 0333 323 7200 (Monday to Friday, 9am to 5pm)


Lorraine Kember
L Kember Publications, 2003
ISBN 978-0646499697

This book describes an emotional journey as Lorraine supports her husband with mesothelioma. It includes excerpts from Lorraine's diary. She describes the sense of helplessness she felt on his diagnosis, pain and managing symptoms. Her strength grows as she comes to realise that there is so much she can do to help to improve her husband's quality of life.

H I Pass and others
Jones and Bartlett Publishers, 2012
ISBN 144968808X

This book has been recommended to us by a relative of someone with mesothelioma. It is a US book so some of the information does not apply in the UK.


British Asbestos Newsletter
A quarterly newsletter with updates on all aspects of asbestos, both legal and medical.

Mesothelioma Handbook
Download the handbook from the June Hancock Mesothelioma Research Fund for free, or buy a hard copy.

Mesothelioma publications from the British Lung Foundation
Get free guidance on living with mesothelioma.

Recommend a book

Please contact us to recommend a book that you've found helpful. It helps us if you include the title, author, publisher's name, publication year and ISBN number.

Videos of people's stories

Hear what it's like to live with and beyond cancer, from people who have shared their personal stories on film.

Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more. 

Find local cancer information and support

NHS Choices helps you to find local cancer information and support.

Last reviewed: 
16 Aug 2021
Next review due: 
16 Aug 2024

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