Kidney cancer resources and support organisations

There are organisations and support groups to help you cope with kidney cancer and treatment. There are also general support organisations that you can contact.

Cancer Research UK information and support

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.

We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.

Cancer Chat is our online forum where you can share experiences.

Action Kidney Cancer

Action Kidney Cancer is a patient -led kidney cancer charity. They have a website and helpline. 

Helpline: 0800 121 8721

BHD Foundation (Birt-Hogg-Dubé Syndrome)

The Myrovlytis Trust is a medical research charity that promotes research into rare genetic disorders. It runs a website focusing on Birt Hogg Dubé Syndrome (BHD), a condition which increases the risk of kidney cancer.

The BHD Foundation offers support for BHD patients and encourages communication through an online forum. It also gives detailed information for people with BHD syndrome and their families.

Phone: 020 8050 2091 

Provides free, reliable information about health issues including mental health, by sharing people's real-life experiences.

Kidney Cancer UK

Kidney Cancer UK offers support for people with kidney cancer and their carers. It provides reliable information about kidney cancer and its treatment. It also has an online forum to share experiences and a support line.

Support line: 0800 002 9002
Contact form

Macmillan Cancer Support

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form

Maggie's Centres

Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff.

You can join a support group, take part in weekly sessions like relaxation and stress management, or learn about nutrition and health. You can also visit just to have a cup of tea and a friendly chat.

Phone: 0300 123 1801

National Cancer Institute (NCI)

The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer. 

World Cancer Research Fund

World Cancer Research Fund is a charity that provides information and advice about nutrition, physical activity and cancer. They also have a helpline run by dietitians.

Helpline: 0333 034 1988 (Tuesdays 12pm – 2pm and Thursdays 6pm to 8pm)



You can find books about cancer, treatments, and living with cancer on our general reading list.

Find local cancer information and support near you

There are organisations and support in your local area that you can access. You can ask your specialist nurse or doctor for more information about cancer services near you.


NHS Choices has a service that tells you about local information and support in England.


NHS Inform gives information about illness, treatments and NHS services for people in Scotland.


NHS 111 Wales gives health advice and information for people living in Wales.

Northern Ireland

Cancer Focus Northern Ireland have a cancer information helpline and resource centre. They provide public and professional education, rehabilitation programmes and support groups for patients and relatives. 

Cancer nurse helpline: 0800 783 3339 Monday - Friday 9am to 1pm

Last reviewed: 
09 Jan 2024
Next review due: 
09 Jan 2027

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