Decorative image

Resources and support

There are lots of organisations, support groups and helpful books to help you cope with gestational trophoblastic disease (GTD) and its treatment.

Cancer Research UK information and support

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.

We are committed to producing high quality information for people affected by cancer.  As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send us a question online.

Cancer Chat is our online forum where you can share experiences.

General support and information organisations

Offers counselling and psychotherapy and can give details of local counsellors.

Phone: 020 8543 2707

Email: info@cosrt.org.uk

The Sexual Advice Association provide lists of local specialist practitioners, as well as fact sheets on problems such as erectile dysfunction (impotence).

The Miscarriage Association organisation provides information and support about pregnancy loss.

Helpline: 01924 200 799 (Mon-Fri 9am-4pm)
Email: info@miscarriageassociation.org.uk

Tommy's is a research charity in the UK looking into miscarriage and pregnancy problems.

They have a helpline staffed by midwives and the website includes women's stories about molar pregnancy. 

Teenage Cancer Trust is a national charity providing specialist units, expert staff, support events, education and information for 13-24 year old’s diagnosed with cancer, and their friends and families.

Teenage Cancer Trust also work closely with healthcare professionals and researchers to lead the way on developing cancer care for teenagers and young adults.

Teenage Cancer Trust
Third floor
93 Newman Street
London
W1T 3EZ

Phone: 020 7612 0370
Email: hello@teenagecancertrust.org

Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run a helpline providing cancer information and benefits advice.

Address:
Head Office
89 Albert Embankment
London
SE1 7UQ

Phone: 0808 808 0000 (Mon to Fri, 9am to 8pm – information available in other languages)
Textphone: 0808 808 0121
Website: www.macmillan.org.uk

Specific symptoms organisations

There are two hospitals in the UK where women are treated for GTD. These hospitals offer specialist support and information on their websites. 

This website is run by the specialist centre at Charing Cross Hospital in London. The website has information and useful contacts.

This website is run by the centre at Weston Park Hospital in Sheffield. It gives details about their drop in clinic, patient information and information for doctors and nurses.

Books about by patients

Nikki Coombs
Authorhouse 2007
ISBN: 9781434335821

The personal story of a woman diagnosed with choriocarcinoma. She talks about the shock of living a normal life and suddenly being diagnosed with cancer. And having to make sense of the treatments and hospitals. The book also discusses the decisions she has to make and how the cancer affected her relationship with her family and friends.

Jennifer Wood
Jennifer Wood, 2008
ISBN: 9780615212258

This American book contains more than 30 personal stories about molar pregnancy and choriocarcinoma. It includes descriptions of the experience of being diagnosed and having treatment. The chemotherapy treatments mentioned differ from those used in the UK. The book is not available in general book shops.

Booklets and factsheets from other organisations

Updated in 2013 by Jan Everard
Available from Sheffield Trophoblastic Disease Centre, Weston Park Hospital, Sheffield. 

Hydatidiform Mole and Choriocarcinoma UK Information and Support Service (Charing Cross Hospital, London)

Understanding chemotherapy
Coping with hair loss (also on audiotape and CD)
Diet and cancer (also on audiotape and CD)
Lost for words - how to talk to someone with cancer
Sexuality and cancer (also on audiotape and CD)
Talking about your cancer
Talking to children about cancer (also on audiotape and CD)

If you would like to recommend a book

You can recommend a book that you have found helpful by using our feedback form. It helps us if you include the title, author, publisher's name and year, and the ISBN number.

Information and help