Changes to your face after surgery
Surgery to your face might change the way you look. There might be quite a big change but even a small change can have a big effect on how you see yourself. This can be very difficult to cope with.
It is important to remember that even with big operations, you might not have a great deal of scarring. And many scars fade and become very difficult to see over time.
Your surgeon aims to make scars in the creases already on your face or neck. And if you need to have bone removed from your face, they will rebuild them using bone from other parts of your body.
Changes after lip surgery
Scaring from lip surgery might be more difficult to hide. So if you have cancer in this area, it is likely you will have to cope with changes in the way you look.
Having a breathing stoma
Treatment for some head and neck cancers can include making an opening in your neck to help you breathe. This is a breathing stoma or tracheostomy.
This can make you feel very self conscious and you can find it hard to cope. Getting used to the stoma will take some time. You’ll have a specialist nurse or a speech and language therapist to help you get used to your breathing stoma and show you how to look after it
Many people feel angry at first. You might feel that your doctor and specialist nurse have not prepared you for how you will look. It can feel hard to imagine that you will feel a little better as time goes on and the bruising and swelling improves.
Your family and friends may not know what to say to you. They won't want to make you anxious or upset. You may prefer to bring up the subject and let them know how you are feeling.
There are lots of things you can try to help you cope with changes in your looks. These might not take away all the difficult emotions but can make things easier.
How you look is an important part of how you feel about yourself (self esteem). It can be very hard to accept sudden changes to the way you look. You might feel very angry, confused and upset. It might be useful to talk to someone close to you.
Going back to work, meeting new people or going to job interviews can all be difficult if you are trying to cope with changes to your appearance.
If you have children you might worry that their friends will see you and whether that will affect your children. It's natural to worry about this, but remember people close to you will not think of you differently as a person. They will want to support you as much as they can, so let them know how you're feeling. Talking to them might make you feel more supported and less on your own.
Talk to your surgeon before surgery
This is probably one of the most important things you can do, even if you feel at the time that you don't want to know. It can help you cope with changes to your appearance later on if you know exactly what they are going to do, and how you will look. You will be very sore and swollen straight after surgery but this is temporary and is not how you will look forever.
Ask as many questions as you need to. Your surgeon and nurse specialist will be aware of how worried you are about possible changes in your appearance.
Talk to someone who has had a similar experience
Your surgeon or specialist nurse might be able to put you in touch with someone who has had a similar operation. Some people find this reassuring and informative. This is not the case for everyone. So don't feel like you have to do this.
Talk to people close to you
You might get the best support from your close family and friends. But don't be surprised if they are not sure what to say to you at first. They won't want to make you feel anxious or to say anything that might upset you. It may be easier if you bring the subject up and let them know how you feel.
It can help just to share your feelings. Those close to you may feel privileged that you have chosen to confide in them. If you don’t talk to them, they may worry that you are bottling it all up.
If you're having problems with your intimate and sexual relationships because you feel unattractive, let your partner know.
Look at yourself in the mirror
Your first reaction after surgery might be to avoid looking at yourself in the mirror. This is normal and it's completely up to you when you look at yourself. It might be worth waiting a little while after the operation until you feel awake and alert and you have recovered a bit.
Having a nurse with you the first time you look can be helpful. Even if you have thought about how you might look, it can still be a shock. Your face might be swollen and numb. You may also have to deal with seeing stitches and changes to the structure of your face. Having someone to answer your questions can be supportive.
Going out and seeing people
It's important to give yourself time to adjust to changes in your appearance. There will come a time when you will need to go out again. Going out will feel scary at first, and it might be tempting to keep putting it off. Telling your family and friends how you feel can help them to support you.
It might be helpful to go out for the first time with someone you are very comfortable with. Try to be prepared for mixed reactions. People can react unexpectedly, especially if you don't know them well. Some people might be shocked and might not hide their shock. Others will be very at ease and make you feel comfortable very quickly.
You may feel that you can't do anything about other people's reactions. But if you feel at ease, they will be more likely to feel they can talk to you or look you in the eye. Children can be very honest and might ask direct questions. It can help to be prepared for this.
Don't feel that you have to explain to people if you do not want to. After all, it is your body and you don't have to tell people what has happened if you don't want to.
Use camouflage make up
Camouflage make up can be very useful to cover scars or skin grafts that are different colours. There are lots of colours for all skin tones. There are some specially trained skin camouflage experts that work in the NHS. Ask your doctor or nurse if you have this in your hospital.
Some organisations can give you information about using camouflage make up. They can teach you how to apply it and tell you about the best products to buy. Some want a healthcare professional to refer you. Others allow you to refer yourself. These organisations include Changing Faces and The British Association of Skin Camouflage.
Getting the make up
You can buy some camouflage make up over the pharmacy counter or direct from the supplier. Others you might be able to get on prescription from your GP. This isn’t guaranteed though. Your GP can tell you what might be available on prescription.
Changing Faces provide support and information for people who have any form of facial disfigurement including disfigurement caused by cancer. They also provide a skin camouflage service for people in England and Scotland. Trained volunteers teach people how to apply specialist cover creams.
Phone: 0300 0120 275 (support and advice line)
Head office email: firstname.lastname@example.org
The contact details for the skin camouflage service are:
Phone: 0300 0120 276
This organisation has detailed information about camouflage cosmetics for people who need help to cover up scars and disfigurements after head and neck surgery. It also runs training courses for camouflage cosmeticians.
Tel.: 01254 703 107
Getting help and support
There are people who can help and support you. Not everyone feels comfortable asking for help. Talk to someone you trust. You can ask your specialist nurse, doctor, GP, dietitian or physiotherapist for support.
Cancer Research UK nurses
Cancer Research UK has an online forum called Cancer Chat. You might find it helpful to join the forum to talk to other people who have had a similar experience.
Resources and support organisations
There are lots of organisations, support groups and helpful books to help you cope with changes to how you look.