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Follow up

Find out about follow up appointments and tests during and after treatment for chronic lymphocytic leukaemia (CLL).

Why you have follow up appointments

You usually have follow up appointments every few months to check how you are and see whether you have any problems or worries. The appointments also give you the chance to raise any concerns you have about your progress.

What happens

Your doctor or nurse examines you at each appointment. They ask how you are feeling, whether you have had any symptoms or side effects, and if you are worried about anything.

You might also have tests at some visits.

You might have:

  • blood tests
  • a bone marrow test

How often you have check ups

How often you see your specialist depends on whether you are having treatment and how you are feeling. If you are not having any treatment, you only see your doctor every 3 to 6 months.

You need to see your doctor regularly, maybe weekly or monthly, if you are having treatment.

If everything is going well, the time between check ups will gradually get longer. 

Where you go for your follow up

You might go for check ups at the surgical outpatients after surgery. You go to the cancer clinic if you have had chemotherapy or radiotherapy. 

Contact your doctor or specialist nurse if you have any concerns. You should also contact them if you notice any new symptoms between appointments. You don’t have to wait until your next visit.

If you are worried

Many people find their check ups quite worrying. A hospital appointment can bring back anxiety about your cancer.

It can help to tell someone close to you how you’re feeling. Sharing your worries can mean they don’t seem so overwhelming. Many people find it helpful to have counselling during and after cancer treatment.

You can call the Cancer Research UK nurses free on 0808 800 4040, 9am to 5pm, Monday to Friday.
Last reviewed: 
20 Dec 2017
  • Chronic Lymphocytic Leukaemia: ESMO Clinical Practice Guidelines

    B Eichhorst and others

    Annals of Oncology, 2015. Volume 26, Supplement 5

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