Survival depends on many different factors. So no one can tell you exactly how long you will live. It depends on your:
- type and stage of cancer
- level of fitness
- previous treatment
These are general statistics based on large groups of patients. Remember, they can’t tell you what will happen in your individual case.
Survival for all stages of CLL
No UK-wide statistics are available for CLL survival.
Statistics are available for CLL diagnosed in England between 2008 and 2010. They are from the National Cancer Intelligence Network.
Generally for people with CLL:
- around 70 out of 100 men (around 70%) and almost 75 out of every 100 women (almost 75%) will survive their leukaemia for 5 years or more after being diagnosed.
This is for all ages. Younger people tend to do better than older people:
- for those aged between 15 and 64, more than 80 out of 100 (more than 80%) will survive their leukaemia for 5 years or more after diagnosis
- for those who are 65 or older, more than 60 out of 100 (more than 60%) will survive their leukaemia for 5 years or more after they are diagnosed
Although CLL is not usually curable, it often develops very slowly and treatment can keep it under control for many years.
The time when the leukaemia is controlled by treatment and is not active is called remission. Remission means that you don't have symptoms and the CLL doesn't show up in your blood samples. CLL is likely to come back again, some time after your first lot of treatment. But it can then be possible to get it into a second remission, with more chemotherapy or other treatment.
NCIN trends in incidence and outcome for haematological cancers 2001-2010
The statistics for all stages of CLL are for relative survival. Relative survival takes into account that some people will die of causes other than leukaemia. This gives a more accurate picture of leukaemia survival.
What affects CLL survival
Your outlook depends on the stage of your CLL. This means how advanced it is when it is diagnosed.
If you have abnormal white blood cells (lymphocytes) spread throughout the bone marrow, you have a worse outlook. Your outlook is also affected by how quickly your lymphocyte count increases.
Your sex affects outlook. Women have a better prognosis than men.
Survival is affected by changes in your chromosomes or genes. Tests called cytogenetics look for these changes. Some specific genetic abnormalities in your leukaemia cells may make your leukaemia harder to treat successfully.
About these statistics
The term 5 year survival doesn't mean you will only live for 5 years. It relates to the number of people who live 5 years or more after their diagnosis of leukaemia. Many people live much longer than 5 years.