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Follow up

Information about follow up appointments and tests after treatment for carcinoid.

Why you have follow up appointments

You usually have follow up appointments every few months to check how you are and see whether you have any problems or worries. The appointments also give you the chance to raise any concerns you have about your progress.

How often you have them

At first, you have check ups every few weeks or months. Then they gradually become less frequent.

How often you have follow up appointments varies depending on your situation, such as the stage of your tumour when you were diagnosed.

Contact your doctor or specialist nurse if you have any concerns between appointments. You should also contact them if you notice any new symptoms. You don’t have to wait until your next visit.

Where you have them

You might go for check ups at the surgical outpatients after surgery. You go to the cancer clinic if you have had treatments such as radiotherapy, chemotherapy or somatostatin analogues.

The surgeon and the oncologist might share your follow up. This means you see the surgeon sometimes and the oncologist at other times.

What happens

Your doctor or nurse examines you at each appointment. They ask how you are feeling, whether you have had any symptoms or side effects, and if you are worried about anything.

You might also have tests at some visits.

Tests may include:

  • urine tests
  • CT scans
  • radioactive scans
  • x-rays
  • blood tests

You don’t have all these tests at every visit. How often you have scans depends on your individual case and your hospital's guidelines.

If you are worried

Many people find their check ups quite worrying. A hospital appointment can bring back any anxiety you had about your cancer.

It can help to tell someone close to you how you’re feeling. Sharing your worries can mean they don’t seem so overwhelming. Many people find it helpful to have counselling after cancer treatment.

You can also find people to share experiences with by using our online forum, Cancer Chat.

For general information about carcinoid tumours and follow up, you can talk to Cancer Research UK's information nurses on freephone 0808 800 4040, 9am to 5pm, Monday to Friday.
Last reviewed: 
27 Jun 2016
  • Neuroendocrine gastro-entero-pancreatic tumors: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up
    K Öberg and others
    Annals of Oncology, 2012. Volume 23, Supplement 7

  • Cancer: Principles and Practice of Oncology (10th edition)
    VT DeVita , TS Lawrence, SA Rosenberg
    Lippincott, Williams and Wilkins, 2015

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