Find out about organisations, support groups, books, videos and other resources to help you cope with bile duct cancer (cholangiocarcinoma).
Cancer Research UK
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website.
Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.
If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.
We also have news, health awareness leaflets and other resources on cancer.
Bile duct cancer organisations
AMMF – The Cholangiocarcinoma Charity
Tel: 01279 661479
AMMF is the UK’s only cholangiocarcinoma (bile duct cancer) charity. They provide information and support, campaign to raise awareness, and encourage and support specialised research teams. AMMF works closely throughout the UK with patients and their carers, clinicians, healthcare professionals, researchers, politicians and policy makers, as well as collaborating internationally.
General support organisations
Macmillan Cancer Support
This charity gives practical, medical and financial support to people with cancer.
Macmillan Cancer Support produce a wide range of booklets, factsheets, leaflets and CDs about cancer and its treatment, in various languages. They also provide information for teenagers and young adults with cancer.
Their helplines give advice on cancer and benefits.They also have an online community group for people aged 16 to 24 who are living with cancer.
Tel: 0808 808 0000
Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff.
You can join a support group, take part in weekly sessions like relaxation and stress management, or learn about nutrition and health. You can also visit just to have a cup of tea and a friendly chat.
10 Dumbarton Road
Phone: 0300 123 1801
Marie Curie runs 9 centres (hospices) throughout the UK. And a nationwide Marie Curie nursing service, providing care for patients in their own homes throughout the day or night, free of charge.
89, Albert Embankment
Support line: 0800 090 2309. For emotional support and practical advice about terminal illness, including for family and friends. The support line is open 8am - 6pm Monday to Friday and 11am - 5pm on Saturday.
Cancer Support Scotland offers support, education and care for people with cancer. They also have information for relatives, friends and health professionals. They promote a network of support groups throughout Scotland.
Cancer Support Scotland Centre
75 Shelley Road
Phone: 0141 337 8199
Tenovus Cancer Care provides an information service on all aspects of cancer. The charity provides practical and emotional support for people with cancer and their families. They have mobile support units bring cancer treatment into local communities in Wales.
Ty Glas road
Support line: 0808 808 1010
Cancer Focus Northern Ireland have a cancer information helpline and information and resource centre. They provide public and professional education, rehabilitation programmes and support groups for patients and relatives.
40-44 Eglantine Avenue
Cancer nurse helpline: 0800 783 3339 Monday - Friday 9am to 1pm
The ACS provides information and support for people affected by cancer. As it is an American website, not all the information is relevant for a UK audience.
Booklets and factsheets
- understanding bile duct cancer factsheet
- healthy eating and cancer
- coping with advanced cancer
- managing cancer pain
- how to talk to someone with cancer
- your sex life and sexuality
- understanding chemotherapy
- coping with hair loss
- understanding radiotherapy
- talking to children and teenagers when an adult has cancer
- talking about your cancer
Videos of people's stories
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
Find local cancer support and information services
NHS Choices has a service that tells you about local information and support.