Bile duct cancer resources and support organisations

There are lots of organisations, support groups, books, videos and other resources to help you cope with bile duct cancer and its treatment. 

Cancer Research UK information and support

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.

We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.

Cancer Chat is our online forum where you can share experiences.

Bile duct cancer organisations

AMMF – The cholangiocarcinoma charity

AMMF is the UK’s only cholangiocarcinoma (bile duct cancer) charity. They provide information and support, campaign to raise awareness, and encourage and support specialised research teams. AMMF works closely throughout the UK with patients and their carers, clinicians, healthcare professionals, researchers, politicians and policy makers, as well as collaborating internationally.

Enterprise House
Bassingbourne Road
Stansted
Essex  
CM24 1QW

Tel: 01279 661479
Email: info@ammf.org.uk

Cholangiocarcinoma - UK

Cholangiocarcinoma-UK is an affiliate of the British Association for Study of Liver Disease (BASL). It is a group of doctors, scientists and patients who try to raise awareness of bile duct cancer. 

General support organisations

The ACS provides information and support for people affected by cancer. As it is an American website, not all the information is relevant for a UK audience.

Cancer Focus Northern Ireland have a cancer information helpline and information and resource centre. They provide public and professional education, rehabilitation programmes and support groups for patients and relatives.

40-44 Eglantine Avenue
Belfast
BT9 6DX

Cancer nurse helpline: 0800 783 3339 Monday - Friday 9am to 1pm
Email: nurseline@cancerfocusni.org

Cancer Support Scotland offers support, education and care for people with cancer. They also have information for relatives, friends and health professionals. They promote a network of support groups throughout Scotland.

Cancer Support Scotland Head Office
75 Shelley Road
Glasgow
G12 0ZE

Phone: 0800 652 4531

Email: info@cancersupportscotland.org

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer in the UK. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments. Information is available in other languages.

Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form

Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff.

You can join a support group, take part in weekly sessions like relaxation and stress management, or learn about nutrition and health. You can also visit just to have a cup of tea and a friendly chat.

Phone: 0300 123 1801
Email: enquiries@maggies.org

Marie Curie runs 9 centres (hospices) throughout the UK. And a nationwide Marie Curie nursing service, providing care for patients in their own homes throughout the day or night, free of charge.

Head Office:
89, Albert Embankment
London
SE1 7TP

Support line: 0800 090 2309. For emotional support and practical advice about terminal illness, including for family and friends. The support line is open 8am - 6pm Monday to Friday and 11am - 5pm on Saturday.

Tenovus Cancer Care provides an information service on all aspects of cancer. The charity provides practical and emotional support for people with cancer and their families. They have mobile support units bring cancer treatment into local communities in Wales.

Cardiff (Head Office)
Tenovus Cancer Care
First Floor
Jones Court
Womanby Street
Cardiff
CF10 1BR

Support line: 0808 808 1010

Books

You can find a list of books about cancer, treatment and living with cancer on our general reading list. These books cover many aspects of cancer and its treatment. 

Contact us if you would like to recommend a book that you have found helpful. It helps us if you include the title, author, publisher's name and year, and ISBN number.

Healthtalk.org

Provides free, reliable information about health issues including mental health, by sharing people's real-life experiences.

Find local cancer information and support near you

There are organisations and support in your local area that you can access. You can ask your specialist nurse or doctor for more information about cancer services near you.

England

NHS Choices has a service that tells you about local information and support in England.

Scotland

NHS Inform gives information about illness, treatments and NHS services for people in Scotland.

Wales

NHS 111 Wales gives health advice and information for people living in Wales.

Northern Ireland

Cancer Focus Northern Ireland have a cancer information helpline and resource centre. They provide public and professional education, rehabilitation programmes and support groups for patients and relatives. 

Cancer nurse helpline: 0800 783 3339 Monday - Friday 9am to 1pm
Email: nurseline@cancerfocusni.org

Last reviewed: 
18 Nov 2021
Next review due: 
18 Nov 2024

Related links