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Resources and organisations

Find out about organisations, support groups, books, videos and more to help you cope with nasal or sinus cancer.

Cancer Research UK

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website, our news and resources, and our range of health awareness leaflets.

Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.

If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.

Head and neck cancer organisations and sites

Oral Health Foundation

This UK based charity works to improve standards of mouth care. Their website has good information on cancer and caring for your mouth.

The Oral Health Foundation was called the British Dental Health Foundation until 2016.

Changing Faces

Changing Faces provide support and information for people who have any form of facial disfigurement including disfigurement caused by cancer. They also provide a skin camouflage service for people in England and Scotland. Trained volunteers teach people how to apply specialist cover creams.

Phone: 0300 0120 275 (support and advice line)
Head office email: info@changingfaces.org.uk

The contact details for the skin camouflage service are:

Phone: 0300 0120 276
Email: skincam@changingfaces.org.uk

Let's Face It

This UK organisation for people with facial disfigurement offers: 

  • telephone support
  • a service to link up people in similar situations
  • dietary and medical advice
  • social activities
  • resources and a newsletter

Phone: 01843 833 724
Email: chrisletsfaceit@aol.com

The Mouth Cancer Foundation

Mouth Cancer Foundation is a charity that supports people affected by head and neck cancer. Its website has information about mouth, throat and other head and neck cancers. The website also has a forum and information on local support groups.

Tel: 01924 950 950

Saving Faces - The Facial Surgery Research Foundation

Saving Faces is funding education and research to improve medical treatment and support for people after facial surgery.

Sometimes it can be helpful to talk to someone who has been in a similar situation. Saving Faces can put you in touch with other people who have had facial surgery.

Enquiries Tel: 020 8223 8049

Helpline Email: helpline@savingfaces.co.uk

Helpline Tel: 07792 357972

Get Ahead

Get Ahead is a national charity supporting people with head and neck diseases and cancers. They have some patient information on their website, and a patient group who are willing to talk to others about their experiences.

Email: getaheadcharity@uhb.nhs.uk
Phone: 0121 371 5046

Support organisations

The British Association of Skin Camouflage

This organisation has detailed information about camouflage cosmetics for people who need help to cover up scars and disfigurements after head and neck surgery. It also runs training courses for camouflage cosmeticians.  

Tel.: 01254 703 107

Rarer Cancers Foundation

Macmillan Cancer Support

Macmillan Cancer Support provides practical, medical and financial support and campaigns for better cancer care. It provides booklets on cancer and treatments and runs a helpline providing cancer information and benefits advice. 

Macmillan CancerLine: 0808 808 0000 (Mon to Fri, 9am to 8pm; information available in other languages)
Textphone: 0808 808 0121

Get help to stop smoking

Stopping smoking is a great challenge. Read our information about what can help you to stop.

International organisations and websites

Memorial Sloane Kettering Cancer Centre (MSKCC) provides information about head and neck cancers. It is an American website.

The National Cancer Institute (NCI) is an American organisation. It's website has information about head and neck cancer. 

The American Cancer Society (ACS) provides information about nasal cavity and sinus cancer.

SPOHNC is an American support network for people with cancers of the head and neck. It puts people in touch with each other and provides useful information.

Books from libraries, bookshops or online booksellers

100 Questions and Answers about Head and Neck Cancer
Elize Carper, Kenneth Hu and Elena Kuzin
Jones and Bartlett Publishers, 2009
ISBN 978 0763743079

Provides doctors and patients views and answers questions about treatment and side effects, and quality of life after treatment. As it is American, not all the information will be relevant for patients in the UK.
 

Coping with the psychological effects of cancer
Professor Robert Bor, Dr Carina Eriksen and Ceilidh Stapelkamp
Sheldon Press, 2010
ISBN 978 1847090973

This book addresses the painful emotions linked with a cancer diagnosis. It covers areas such as coping with distressing thoughts, learning to relax, family relationships and coping with an advanced cancer.

Cancer at your fingertips (4th edition)
Val Speechley and Maxine Rosenfield
McGraw-Hill; 2004
ISBN: 0074713728

Facts about cancer and cancer treatments set out in question and answer form. Includes information on diet, exercise, sex and relationships, holidays, employment and money matters.

Living with Cancer
Jeffrey Tobias, Kay Eaton and Gary Lineker OBE
Bloomsbury; 2001
ISBN 0747554102

Follows the BBC TV series of the same name. Covers treatment, side effects and different types of cancer, including head and neck cancers.

Coping with Radiotherapy
Dr Terry Priestman
Sheldon Press, 2007
ISBN 9 780 859 699990

Gives information about radiotherapy, its side effects, and how to cope with them. Also discusses the effect of radiotherapy on everyday life, including social life, work, travel, exercise and diet.

Coping with chemotherapy (2nd edition)
Dr Terry Priestman
Sheldon Press, 2009
ISBN 978 1847090805

Gives information about what chemotherapy is, how you have it and the side effects. A useful book for those about to start chemotherapy, and for their family members.

The Cancer Survivor's handbook
Terry Priestman
Sheldon Press, 2009
ISBN 978 184709 0485

This handbook deals frankly and sensitively with the issues of cure, follow up, treatment side effects and recurrence. It looks at the support available to people who have finished their treatment.

Booklets and factsheets from other organisations

From Macmillan Cancer Support

Some of the following booklets are available on CD

Understanding cancer of the head and neck 
Diet and cancer 
Coping with advanced cancer 
Controlling cancer pain 
Controlling symptoms of cancer 
Lost for words - how to talk to someone with cancer
Sexuality and cancer 
Understanding chemotherapy
Understanding radiotherapy 
Coping with hair loss 
Coping with fatigue 
Understanding clinical trials
The emotional effects of cancer 
Talking about your cancer
Adjusting to life after cancer treatment
Talking to children when an adult has cancer 
The emotional effects of cancer 
Money worries? How can we help?

From the Royal Marsden Hospital Trust

Chemotherapy
Radiotherapy
Clinical trials
Your operation and anaesthetic

You can download these booklets from the Royal Marsden website, or request them by calling freephone 0800 783 7176.

Information and help

Dangoor sponsorship

About Cancer generously supported by Dangoor Education since 2010.