Decorative image

Survival

Find out about survival for hairy cell leukaemia.

Survival depends on many factors, so no one can tell you exactly how long you’ll live. It depends on your individual condition, treatment and level of fitness.

Statistics for this type of leukaemia are harder to estimate than for other, more common leukaemias.

Some of the statistics have to be based on a small number of people. Remember, they can't tell you what will happen in your individual case.

Your doctor can give you more information about your own outlook (prognosis).

You can also talk about this to the Cancer Research UK nurses on freephone 0808 800 4040, from 9am to 5pm, Monday to Friday.

Survival statistics for hairy cell leukaemia

These days, doctors think that most people with hairy cell leukaemia can expect to have a normal length of life. For detailed information, you will need to talk this through with your own specialist. 

No UK-wide statistics are available for hairy cell leukaemia survival. Statistics are available from one area of England. 

Generally for people with hairy cell leukaemia:

  • around 90 out of every 100 (90%) will survive their leukaemia for 5 years or more after they are diagnosed

Remission

Hairy cell leukaemia usually develops slowly and can be kept under control for many years with treatment. You may hear these periods called remission. Remission is when the disease is not active. You don't have symptoms and it doesn't show up in your blood samples.

It can be possible to achieve a second remission with more treatment if the hairy cell leukaemia comes back (relapses). 

A British study published in 2005 looked at patients with hairy cell leukaemia and their response to treatment and relapse rate. The researchers found that:

  • at 5 years after diagnosis, hairy cell leukaemia came back in about 24 to 33 out of every 100 people (24 to 33%)
  • at 10 years after diagnosis, hairy cell leukaemia came back in 42 to 48 out of every 100 people (42 to 48%)

If your leukaemia comes back after treatment your doctor will either give you the same treatment as you had before, or a different treatment. The choice depends on how long your remission was. If you had a long remission, it is worth trying the same treatment again. If the remission was shorter, your specialist is more likely to want to try a different treatment.

What affects survival

Having a very low red blood cell (haemaglobin), white blood cell (neutrophil) or platelet count, may affect your outlook. 

If you have swollen lymph nodes in your tummy (abdomen), this may also affect your likely survival. The doctors call this lymphadenopathy.

People who have a complete response to treatment do better than people who have a partial response. In hairy cell leukaemia, a complete response is when all signs of the leukaemia have disappeared. A partial response means there are still some abnormal leukaemia cells or other signs of the leukaemia.

About these statistics

The term 5 year survival doesn't mean you will only live for 5 years. It relates to the number of people who live 5 years or more after their diagnosis of cancer.

Last reviewed: 
02 Apr 2015
  • Cancer and its Management (7th edition)
    J Tobias and D Hochhauser
    Wiley-Blackwell, 2015

  • Long-term results for pentostatin and cladribine treatment of hairy cell leukemia
    C Dearden and others
    Leukemia Lymphoma, 2011. Volume 52, Supplement 2

  • Long remissions in hairy cell leukemia with purine analogs: a report of 219 patients with a median follow-up of 12.5 years
    M Else and others
    Cancer, 2005. Volume 104, Issue 11

  • Revised guidelines for the diagnosis and management of hairy cell leukaemia and hairy cell leukaemia variant
    G Jones and others
    British Journal of Haematology, 2011. Volume 156, Issue 2

Information and help

Dangoor sponsorship

About Cancer generously supported by Dangoor Education since 2010.