Find out about organisations, support groups, books, videos and other resources to help you cope with bowel cancer and treatment. You can also find out about suppliers of stoma appliances.
Bowel cancer support organisations
This organisation raises awareness of the symptoms of bowel cancer and offers support to people who are affected. You can contact them on the number above and they will be happy to send you some written information. You can also chat to other people affected by bowel cancer via their online forum and Facebook page.
General support organisations
Phone: 01372 744338
A patient led group which aims to promote understanding about pelvic radiation disease which is a late effect of radiotherapy treatment. They offer support to patients and campaign for more research and better treatment for this condition.
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments.
Phone: 0808 808 0000 (Monday to Friday, 9am to 8pm; information is available in other languages)
Textphone: 0808 808 0121
Freephone: 0800 018 4724
Helps anyone who needs or has had an ileostomy or internal pouch. Has a network of branches throughout the UK which give advice, information leaflets, and home and hospital visiting. The website hosts forums for discussion. The organisation has a membership fee.
CORE produce information and leaflets on common digestive diseases and illnesses, including bowel cancer.
Tel: 020 7486 0341
A telephone support group for anyone affected by Familial Polyposis. Gives information in English, Urdu and Punjabi.
Tel: 0121 627 2630
This is a support group for those with the Familial Adenomatous Polyposis gene.
This charity aims to provide information and support to people with Lynch syndrome and their families, and to raise awareness of this syndrome. They also provide support through their Facebook page Lynch Syndrome UK Online.
The Bladder and Bowel Community supports and connects people living with bladder and bowel disorders. Their confidential telephone helpline gives help in 10 languages. They can also advise you on stoma products.
The community can give you a Just Can't Wait toilet card. This gives you quick access to toilets when you're out and about in shops, cafes, pubs and so on.
The community was previously called the Bladder and Bowel Foundation.
Helpline: 0845 345 0165
Tel: 01926 357 220
Phone: 020 7250 8181 (Monday to Friday, 10am to 12.30pm and 1.30pm to 4pm)
National disability organisation. Formed in January 2012 through a merger of Disability Alliance, RADAR (Royal Association for Disability Rights) and National Centres for Independent Living. They provide a number of helplines for a variety of issues.
Suppliers of stoma appliances
A company that provides products for people with stomas. They have a delivery service for prescribed appliances.
Tel: 0800 521377 (Customer Care team)
Handcrafted covers made to fit every size of ostomy bag or pouch following surgery resulting in a stoma, ie ileostomy, colostomy or urostomy. The covers come in a wide range of fabrics and are specifically tailored to fit each individual stoma bag.
Tel: 01205 723327
Makers and suppliers of colostomy and ileostomy appliances and equipment.
Tel: 01494 532761
Fax: 01494 524650
Books about bowel cancer
Need-2-Know, No. 91 in series, 2013
An easy to read guide to bowel cancer. It includes information about lowering your risk, causes, tests, treatment and living with bowel cancer.
David Bub, Susannah Rose and Douglas Wong
Jones & Bartlett Publishers, 2007
A comprehensive book about all aspects of colorectal cancer. It is an American book so some aspects will not apply to the UK.
Hodder and Stoughton, 2007
An easy to read guide to bowel cancer, written by an expert bowel surgeon. The book explains the structure of the bowel, how bowel cancer develops and its symptoms. Patients and carers are led through different treatments, after care and life after treatment.
Mark Davies, 2011
A personal story using male humour from Mark Davies who was diagnosed with bowel cancer at the age of 31. Some people may find it a little crude but others find it amusing. Discusses his diagnosis, treatment and the challenges of living with bowel cancer.
Information for children
K Chilman-Blair and S deLoache
American Cancer Society, 2013
An American illustrated book about bowel cancer aimed at children aged 10 to 16 years.
Videos of people's stories
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
Find local cancer support and information services
NHS Choices has a service that tells you about local information and support.