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Resources and organisations

Find out about organisations, support groups, books, videos and other resources to help you cope with bowel cancer and treatment. You can also find out about suppliers of stoma appliances.

Bowel cancer support organisations

Nurse advisory line: 0208 973 0011 (Mon to Thurs, 9am to 5.30pm – Fri, 9am to 4pm)
Email: info@beatingbowelcancer.org
Nurse Email: nurse@beatingbowelcancer.org

This organisation raises awareness of the symptoms of bowel cancer and offers support to people who are affected. You can contact them on the number above and they will be happy to send you some written information. You can also chat to other people affected by bowel cancer via their online forum and Facebook page.

Phone: 020 7009 8881
Email: bmf@cancer.org.uk

Founded by Bobby Moore's wife, in partnership with Cancer Research UK, this organisation raises money for research into bowel cancer and aims to raise awareness of the symptoms so that people are diagnosed earlier.

Phone: 020 7940 1760
General enquiries email: admin@bowelcanceruk.org.uk

Bowel Cancer UK raise awareness of bowel cancer and campaign for better treatments and care. They provide information about bowel cancer through their website and leaflets.

General support organisations

Phone: 01372 744338
Email: info@prda.org.uk

A patient led group which aims to promote understanding about pelvic radiation disease which is a late effect of radiotherapy treatment. They offer support to patients and campaign for more research and better treatment for this condition.

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments.

Phone: 0808 808 0000 (Monday to Friday, 9am to 8pm; information is available in other languages)

Textphone: 0808 808 0121

Tel: 0118 939 1537
Helpline: 0800 328 4257(24 hrs a day, 7 days a week)
Email: cass@colostomyassociation.org.uk

The UK support group for people with a colostomy. It provides information and support, as well as booklets to anyone who has or is about to have a colostomy.

Freephone: 0800 018 4724
Email: info@iasupport.org

Helps anyone who needs or has had an ileostomy or internal pouch. Has a network of branches throughout the UK which give advice, information leaflets, and home and hospital visiting. The website hosts forums for discussion. The organisation has a membership fee.

CORE produce information and leaflets on common digestive diseases and illnesses, including bowel cancer.

Tel: 020 7486 0341
 

Tel: 020 7486 7262 (Monday, Wednesday and Friday - 9am to 5pm)
Email: info@sexualadviceassociation.co.uk

Advice and leaflets on impotence and its treatment.

A telephone support group for anyone affected by Familial Polyposis. Gives information in English, Urdu and Punjabi.

Tel: 0121 627 2630

This is a support group for those with the Familial Adenomatous Polyposis gene.

This charity aims to provide information and support to people with Lynch syndrome and their families, and to raise awareness of this syndrome. They also provide support through their Facebook page Lynch Syndrome UK Online.

The Bladder and Bowel Community supports and connects people living with bladder and bowel disorders. Their confidential telephone helpline gives help in 10 languages. They can also advise you on stoma products.

The community can give you a Just Can't Wait toilet card. This gives you quick access to toilets when you're out and about in shops, cafes, pubs and so on.

The community was previously called the Bladder and Bowel Foundation.

Helpline: 0845 345 0165
Tel: 01926 357 220
Email: info@bladderandbowelfoundation.org

General Medical Helpline: 020 8994 9874 (6-8pm Daily)
Email: info@medicaladvisoryservice.org.uk

The Medical Advisory Service offers information and advice on medical and health care matters.

Phone: 020 7250 8181 (Monday to Friday, 10am to 12.30pm and 1.30pm to 4pm)
Email: enquiries@disabilityrightsuk.org

National disability organisation. Formed in January 2012 through a merger of Disability Alliance, RADAR (Royal Association for Disability Rights) and National Centres for Independent Living. They provide a number of helplines for a variety of issues.

Suppliers of stoma appliances

Delivers supplies of prescription colostomy and ileostomy equipment to people's homes.

Tel: 0800 587 4047 or 03301 233188 from a mobile
Email: help@charter.co.uk

Delivers supplies of prescription colostomy and ileostomy equipment. Also gives information on all areas of stoma care. Has a helpline for anyone who has a stoma.

Tel: 0800 282254 (Monday to Friday 9am to 5pm)
Email: stoma.webcare@convatec.com

A company that provides products for people with stomas. They have a delivery service for prescribed appliances.

Tel: 0800 521377 (Customer Care team)

Handcrafted covers made to fit every size of ostomy bag or pouch following surgery resulting in a stoma, ie ileostomy, colostomy or urostomy. The covers come in a wide range of fabrics and are specifically tailored to fit each individual stoma bag.

Tel: 01205 723327
Email: lindabutler59@hotmail.com

Makers and suppliers of colostomy and ileostomy appliances and equipment.

Tel: 01494 532761
Fax: 01494 524650

Books about bowel cancer

Ian Eustace
Need-2-Know, No. 91 in series, 2013

An easy to read guide to bowel cancer. It includes information about lowering your risk, causes, tests, treatment and living with bowel cancer.
ISBN 1861441347

David Bub, Susannah Rose and Douglas Wong
Jones & Bartlett Publishers, 2007

A comprehensive book about all aspects of colorectal cancer. It is an American book so some aspects will not apply to the UK.
ISBN 9780763754419

John Northover
Hodder and Stoughton, 2007

An easy to read guide to bowel cancer, written by an expert bowel surgeon. The book explains the structure of the bowel, how bowel cancer develops and its symptoms. Patients and carers are led through different treatments, after care and life after treatment.
ISBN 0340927461

Biography

M Davies
Mark Davies, 2011

A personal story using male humour from Mark Davies who was diagnosed with bowel cancer at the age of 31. Some people may find it a little crude but others find it amusing. Discusses his diagnosis, treatment and the challenges of living with bowel cancer. 
ISBN 9780955903625

Information for children

K Chilman-Blair and S deLoache
American Cancer Society, 2013
ISBN 1604432020

An American illustrated book about bowel cancer aimed at children aged 10 to 16 years.

Videos of people's stories

Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.

Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.

Go to the HealthTalk website

Find local cancer support and information services

NHS Choices has a service that tells you about local information and support.

Go to NHS choices website 

Information and help

Dangoor sponsorship

About Cancer generously supported by Dangoor Education since 2010.