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Resources and organisations

Organisations, support groups, books, videos and more to help you cope with womb cancer.

Support organisations for cancer

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website, our news and resources, and our range of health awareness leaflets.

Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.

If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.

This is a detailed American site with information for both people with cancer and health professionals.

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments.

Phone: 0808 808 0000 (Monday to Friday, 9am to 8pm; information is available in other languages)

Textphone: 0808 808 0121

Specific women's cancer organisations and sites

Set up in 2011, Womb Cancer Support UK aims to provide support and information to women diagnosed with womb cancer, and to raise awareness of the disease. They also have a Facebook page.

General support organisations

Phone: 01372 744338
Email: info@prda.org.uk

A patient led group which aims to promote understanding about pelvic radiation disease which is a late effect of radiotherapy treatment. They offer support to patients and campaign for more research and better treatment for this condition.

Gives information about the support and counselling that is available for people having difficulty with sex or relationships.

Phone: 020 8543 2707

Email: info@corst.org.uk

This site is about the hysterectomy operation, rather than womb cancer. There is useful information, including a booklet you can download. The website has message boards where you can exchange information with other women about having a hysterectomy and recovering from it.

Phone: 01452 790178
Email: info@thebls.com

A charitable organisation. Members include health care professionals from various specialities and people who have an interest in ensuring that people with lymphoedema have access to the care and treatment that they need. Has a directory of lymphoedema specialist practitioners.

Telephone 020 7351 0990
Email: adminlsn@lymphoedema.freeserve.co.uk

This is a national charity offering information and support to anyone affected by lymphoedema. They have over 3500 members, 66 local support groups, run a helpline and have a website. They also produce a range of information including 25 factsheets about lymphoedema and its treatment, 2 DVDs about self management techniques for lymphoedema and a quarterly newsletter.

This charity aims to provide information and support to people with Lynch syndrome and their families, and to raise awareness of this syndrome. They also provide support through their Facebook page Lynch Syndrome UK Online.

Tel: 020 7486 7262 (Monday, Wednesday and Friday - 9am to 5pm)
Email: info@sexualadviceassociation.co.uk

Advice and leaflets on impotence and its treatment.

Books from libraries, bookshops or online booksellers

Cancer Of The Uterus: Causes, Symptoms, Signs, Diagnosis, Treatments, Stages Of Cancer of the Uterus

US Department of Health and Human Service, National Institutes of Health and National Cancer Institute, Editor S.Smith
CreateSpace Independent Publishing Platform; Revised edition (8 Feb 2012)
ISBN-13: 978-1470043353

A comprehensive book about all aspects of womb cancer written for patients and for family and friends. This is an American book and therefore aspects of treatment and care may differ from the UK.

The Gynaecological Cancer Guide: Sex, sanity and survival

M Heffernan and M Quinn
Michelle Anderson Publishing, 2003
ISBN: 0855723327

An American book that deals with all aspects of gynaecological cancer. Gives concise information alongside women's own stories about their experiences.

Hysterectomy, vaginal repair and surgery for stress incontinence

Sally Haslett, Molly Jennings, Hilary Walsgrove and Wendy Weatheritt
Beaconsfield Pubs Ltd, 2010
ISBN-13: 978-0906584620

A practical guide with information about the different types of hysterectomy operation. Tells you how to prepare for your operation and what to expect when you are recovering.

Hysterectomy: What it is and how to cope with it successfully

Suzie Hayman
Sheldon, 2002
ISBN: 085969870X

A straightforward book dealing with the physical and emotional results of hysterectomy. It covers the operation and how to recover from it. Written without medical jargon.

HRT – Everything you need to know to untangle the controversy, understand your options and make your own choices

Tara Parker Pope 
Rochdale International Ltd 2007
ISBN-13: 978-1905744107

An American book aimed at helping to clear up some of the confusion around HRT.

Woman's Health Manual: a practical guide to women's health for men

Dr Ian Banks
Haynes; 2009
ISBN-13: 978-1844258505

A practical guide to all aspects of women's health, written for men to help them understand and support the women in their lives.

Booklets and factsheets from other organisations

Hysterectomy: the basics

Many of these are also available on audio CD.

Coping with advanced cancer 
Coping with hair loss 
Controlling cancer pain
Controlling the symptoms of cancer 
Diet and cancer 
Lost for words – how to talk to someone with cancer
Pelvic radiotherapy in women: possible late effects 
Sexuality and cancer 
Talking about your cancer 
Talking to children when an adult has cancer 
Understanding womb (endometrial) cancer 
Understanding cancer research trials (clinical trials)
Understanding chemotherapy
Understanding radiotherapy 

Chemotherapy
Clinical trials
Radiotherapy
Your operation and anaesthetic

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Information and help

Dangoor sponsorship

About Cancer generously supported by Dangoor Education since 2010.