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Resources and organisations

Organisations, support groups, books, videos and more to help you cope with salivary gland cancer.

Cancer Research UK

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website, our news and resources, and our range of health awareness leaflets.

Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.

If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.

Head and neck cancer organisations and websites

Oral Health Foundation

The Oral Health Foundation is the leading UK based independent charity working to bring about improved standards of oral health care. This website has some good information about mouth cancer and caring for your mouth.

Changing Faces

Provides support and information for people who have any form of facial disfigurement including disfigurement caused by cancer. They produce a booklet called 'When cancer affects the way you look', which you can download from the website.

They also provide a skin camouflage service. Trained volunteers teach people how to apply specialist cover creams.

Phone: 0300 0120 275 (support and advice line)
Email: info@changingfaces.org.uk

The contact details for the skin camouflage service are:

Telephone: 0300 0120 276
Email: skincam@changingfaces.org.uk

Let's Face It

Phone: 01843 833 724
Email: chrisletsfaceit@aol.com

This UK organisation for people with facial disfigurement offers: 

  • telephone support
  • a service to link up people in similar situations
  • dietary and medical advice
  • social activities
  • resources and a newsletter

Mouth Cancer Foundation

The Mouth Cancer Foundation is a charity that supports people affected by head and neck cancer. Its website has information about mouth, throat and other head and neck cancers.

Tel: 01924 950 950

Saving Faces – The Facial Surgery Research Foundation

Sometimes it can be helpful to talk to someone who has been in a similar situation. Saving Faces can put you in touch with other people who have had facial surgery.

Tel: 020 3465 5755

Support organisations

The British Association of Skin Camouflage

This organisation has detailed information about camouflage cosmetics for people who need help to cover up scars and disfigurements after head and neck surgery. It also runs training courses for camouflage cosmeticians.  

Tel.: 01254 703 107

Rarer Cancers Foundation

The Rarer Cancers Forum website has several message boards so people with less common or rarer cancers can get in touch with each other. Friends and families of people with rarer cancers can also use the message boards to share their experiences, give support or get advice from people in similar situations. The website also offers general advice and information.

You can join the network and post a message asking other people to contact you through the site. The network is safe and confidential. People can only contact you through mywavelength.com. They will not be given your email address.

Macmillan Cancer Support

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments.

Phone: 0808 808 0000 (Monday to Friday, 9am to 8pm; information is available in other languages)

Textphone: 0808 808 0121

For help with stopping smoking

Stopping smoking is a great challenge. The organisations listed below can help.

Cancer Research UK

Cancer Research UK has information on quitting smoking.

Smokefree

NHS information, advice and support to help you give up smoking.

ASH

The UK portal for tobacco policy.

British Heart Foundation

Read about information and tips on quitting smoking.

International organisations and websites

Memorial Sloane Kettering Cancer Centre

This American organisation provides information about head and neck cancers.

National Cancer Institute

The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer. 

SPOHNC

SPOHNC is an American support network for people with cancers of the head and neck The organisation can put people who've had head and neck cancer in touch with each other.

They also have some useful information about clinical trials and about products that may be helpful if you've had a head and neck cancer.

Books from libraries, bookshops or online booksellers

You can find a list of books about cancer, treatments, and living with cancer on our general reading list.

Brenda's easy to swallow cook book
Available from the Mouth Cancer Foundation

Produced by a patient, Brenda Brady, and her husband in association with the Mouth Cancer Foundation. The book has tips for anyone who has difficulty chewing and swallowing food. It contains 40 pages of recipes and tips, from various people. Contributors include fellow patients and celebrity chefs Nigella Lawson, Rick Stein, Antony Worrall Thompson and Phil Vickery.

Coping with Chemotherapy
Dr Terry Priestman
Sheldon Press, 2009
ISBN 184 709080X

Gives information about chemotherapy, its side effects, and how to cope with them. Also discusses the effect of chemotherapy on everyday life, including tiredness, sex life and fertility, social life, work, holidays, exercise and diet.

Coping with Radiotherapy
Dr Terry Priestman
Sheldon Press, 2007
ISBN 9 780 859 699990

Gives information about radiotherapy, its side effects, and how to cope with them. Also discusses the effect of radiotherapy on everyday life, including social life, work, travel, exercise and diet.

The Cancer Survivor's handbook
Terry Priestman
Sheldon Press, 2009
ISBN 978 184709 0485

This handbook deals frankly and sensitively with the issues of cure, follow up, treatment side effects and recurrence. It looks at the support available to people who have finished their treatment.

Booklets and leaflets from Cancer Research UK

Mouth cancer – how to reduce your risk and detect it early
This leaflet contains information about the signs, symptoms and causes of mouth cancer and how you can reduce your risk of the disease. You can order this mouth cancer leaflet online or ring our leaflet enquiry line on 020 469 8333.

Booklets and factsheets from other organisations

From Macmillan Cancer Support

  • Understanding cancer of the head and neck (also on audiotape)
  • Eating well after cancer treatment (also on audiotape)
  • Day to day life with advanced cancer (also on audiotape)
  • Controlling cancer pain (also on audiotape)
  • Controlling symptoms of cancer (also on audiotape)
  • Lost for words – how to talk to someone with cancer
  • Sexuality and cancer (also on audiotape)
  • Understanding chemotherapy (also on audiotape)
  • Understanding radiotherapy (also on audiotape)
  • Coping with hair loss (also on audiotape)
  • Coping with fatigue (also on audiotape)
  • Understanding clinical trials
  • The emotional effects of cancer (also on audiotape)
  • What do I tell the children – a guide for a parent with cancer
  • Talking about your cancer (also on audiotape)
  • Adjusting to life after cancer treatment (also on audiotape)

From the Royal Marsden Hospital Trust

  • Chemotherapy
  • Radiotherapy
  • Clinical trials
  • Your operation and anaesthetic

These booklets can be downloaded from the Royal Marsden website, or you can request them by calling freephone 0800 783 7176, or send an email to patientcentre@rmh.nhs.uk

Information and help

Dangoor sponsorship

About Cancer generously supported by Dangoor Education since 2010.