Follow up for mouth and oropharyngeal cancer
After treatment for mouth and oropharyngeal cancer, you have regular check ups at the hospital. You might also have tests including blood tests, x-rays and scans. Over time, these appointments become less frequent.
Why you might have follow up appointments
You usually have follow up appointments every few months to check how you are and see whether you have any problems or worries. The appointments also give you the chance to raise any concerns you have about your progress.
What happens?
Your doctor or nurse specialist examines you at each appointment. They ask how you are feeling, whether you have had any symptoms or side effects, and if anything is worrying you. You might also have tests at some visits.
Tests might include:
- blood tests
- x-rays
- a test to look inside your upper air passages (nasoendoscopy)
- a CT scan
- an ultrasound scan
- a PET-CT scan
Thyroid levels
Your doctor will regularly check your thyroid levels if you had external radiotherapy to your neck. About 30 to 40 out of 100 people (30 to 40%) have low thyroid hormone levels after radiotherapy. This can make you feel very tired a lot of the time. You can have thyroxine supplements to correct the low levels.
Seeing other health care professionals
Depending on your individual needs you may see a speech and language therapist or a dietician if you have:
- changes to your speech
- problems with eating or swallowing
This may be at the hospital or you may see someone nearer to your home at a local clinic or your GP surgery.
Seeing your dentist
It’s also very important to have regular dental check ups.
How often you have follow up
How often you see your specialist depends on how you are feeling and the type of treatment you have had. Below is a general guide. Your check ups might be more or less often.
- In the first 2 years your check ups are usually every 2 to 3 months
- In the third to fifth year your check ups are usualy every 6 months
- After the fifth year you may have yearly checks
Between appointments
Contact your doctor or specialist nurse if you have any concerns between appointments. You should also contact them if you notice any new symptoms. You don’t have to wait until your next visit.
Many people find their check ups quite worrying. A hospital appointment can bring back any anxiety you had about your cancer.
It can help to tell someone close to you how you’re feeling. Sharing your worries can mean they don’t seem so overwhelming. Many people find it helpful to have counselling during or after cancer treatment.
You can also find people to share experiences with by using our online forum, CancerChat.
Smoking
Your doctor will encourage you to give up smoking before you start treatment. It is still worth giving up smoking after mouth or oropharyngeal cancer as it reduces the risk of your cancer coming back.
