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Resources and organisations

There are lots of organisations, support groups, books, videos and other resources to help you cope with chronic lymphocytic leukaemia and treatment.

Cancer Research UK

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website, our news and resources, and our range of health awareness leaflets.

Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.

If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.

Leukaemia support organisations

Bloodwise sponsors research into leukaemia, lymphoma and myeloma. They also provide patient information booklets and leaflets that you can download or order from their website.

Telephone: 020 7504 2200 (Monday to Friday, 9am to 5pm)

Leukaemia CARE is a national blood cancer support charity, committed to ensuring that anyone affected by blood cancer receives the right information, advice and support. 

It provides a range of support services to patients and their carers, including a 24-hour CARE Line, information, support groups, patient and carer conferences, and nurse education days.

24 hour care line: 08088 010 444
Tel: 01905 755977

The CLL Support Organisation provides information and support to people with chronic lymphocytic leukaemia and their carers. It also promotes research into the treatment of CLL.

Tel: 0800 977 4396

Blood and bone marrow organisations

Anthony Nolan runs one of the largest bone marrow donor databases in the world. It has regional centres which are listed on its website.

It is looking for people in good health aged 16–30 to join the Anthony Nolan bone marrow register. In particular, it needs young men from black and minority ethnic communities.

Tel : 0303 303 0303

The National Blood Service runs the blood donation scheme and organises the supply of blood products. They also run the British Bone Marrow Register (BBMR). 

Tel : 0300 123 23 23

Other support and information organisations

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments.

Phone: 0808 808 0000 (Monday to Friday, 9am to 8pm; information is available in other languages)

Textphone: 0808 808 0121

The American National Cancer Institute has patient information about chronic lymphocytic leukaemia. It is detailed and comprehensive but there are no images.

Booklets and factsheets

Information is available as booklets, audiotapes and CDs.

  • Understanding chronic lymphocytic leukaemia
  • Understanding chronic myeloid leukaemia (also on CD)
  • Healthy eating and cancer
  • Lost for words – how to talk to someone with cancer
  • Sexuality and cancer
  • Understanding donor stem cell (allogeneic) transplants (also on CD)
  • Understanding chemotherapy (also on CD)
  • Understanding cancer research trials (clinical trials)
  • Understanding radiotherapy (also on CD)
  • Talking to children and teenagers when an adult has cancer (also on CD)
  • Talking about your cancer
  • Chronic lymphocytic leukaemia (CLL)
  • Chronic myeloid leukaemia (CML)
  • Hairy cell leukaemia (HCL)
  • Donor lymphocyte infusion (DLI) – what's involved?
  • Newly diagnosed with a blood cancer
  • Watch and wait – monitoring while treatment is not necessary
  • Undergoing high dose therapy and autologous stem cell transplant

Books about cancer and treatment

Andrew Ko (Author), Ernest Rosenbaum (Contributor), Malin Dollinger (Contributor)
Publishers: Andrews McMeel Publishing, 2008
ISBN-13: 978-0740768576

The author and contributors of this book are all American cancer specialists. The book covers how cancer is diagnosed, treated and managed day to day.

Dr Terry Priestman
Sheldon Press, 2009
ISBN-13: 978-1847090805

Gives information about chemotherapy, its side effects, and how to cope with them. Also discusses the effect of chemotherapy on everyday life, including tiredness, sex life and fertility, social life, work, holidays, exercise and diet.

Dr Terry Priestman
Sheldon Press, 2007
ISBN-13: 978-0859699990

Gives information about radiotherapy, its side effects, and how to cope with them. Also discusses the effect of radiotherapy on everyday life, including social life, work, travel, exercise and diet.

Joanne Frankel Kelvin and Leslie B Tyson
Publishers: Jones and Bartlett Publishing, 2010
ISBN: 978-0763777609

An American book which gives both doctor’s and patient’s views on coping with the symptoms of cancer and the side effects of treatment. It has information about treatment for pain, nausea, tiredness, and other symptoms.

Videos of people's stories

Hear what it's like to live with and beyond cancer, from people who've shared their personal stories on film.

Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more. 

Find local cancer information and support

NHS Choices helps you to find local cancer information and support.

Recommending a book

Contact us if you would like to recommend a book that you have found helpful. It helps us if you include the title, author, publisher's name and year, and ISBN number.

Information and help

Dangoor sponsorship

About Cancer generously supported by Dangoor Education since 2010.