Find out about organisations, support groups, books, videos and other resources to help you cope with bile duct cancer (cholangiocarcinoma) and treatment.
Cancer Research UK
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website, our news and resources, and our range of health awareness leaflets.
Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.
If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.
Bile duct cancer support organisations
Tel: 01371 811811
AMMF aims to raise the awareness of cholangiocarcinoma and to provide information to people who need it. They also want to support specialised research teams in their work to find the causes, methods of earlier diagnosis, and treatments for this disease.
The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer.
General support organisations
Macmillan Cancer Support
This charity gives practical, medical and financial support to people with cancer.
Macmillan Cancer Support produce a wide range of booklets, factsheets, leaflets and CDs about cancer and its treatment, in various languages. They also provide information for teenagers and young adults with cancer.
Their helplines give advice on cancer and benefits.They also have an online community group for people aged 16 to 24 who are living with cancer.
Tel: 0808 808 0000
Booklets and factsheets
- understanding bile duct cancer factsheet
- diet and cancer (also on audiotape and CD)
- coping with advanced cancer (also on audiotape and CD)
- controlling cancer pain (also on audiotape and CD)
- lost for words – how to talk to someone with cancer
- sexuality and cancer (also on audiotape and CD)
- understanding chemotherapy (also on audiotape and CD)
- coping with hair loss (also on audiotape and CD)
- understanding clinical trials
- understanding radiotherapy (also on audiotape and CD)
- what do I tell the children – a guide for a parent with cancer
- talking about your cancer (also on audiotape and CD)
Videos of people's stories
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
Find local cancer support and information services
NHS Choices has a service that tells you about local information and support.