Find out about organisations, support groups, books, videos and other resources to help you cope with bile duct cancer (cholangiocarcinoma) and treatment.
Cancer Research UK
Cancer Research UK is the largest cancer research organisation in the world outside of the USA. We fund research on all aspects of cancer from its causes to treatment and prevention.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We also have a range of health awareness leaflets.
Cancer Chat is a forum where you can share experiences.
Helpline freephone number: 0808 800 40 40
Administration phone number: 020 7242 0200
Bile duct cancer support organisations
Tel: 01371 811811
AMMF aims to raise the awareness of cholangiocarcinoma and to provide information to people who need it. They also want to support specialised research teams in their work to find the causes, methods of earlier diagnosis, and treatments for this disease.
The National Cancer Institute (NCI) is the US organisation for cancer research. It has information about all types of cancer.
General support organisations
Macmillan Cancer Support
This charity gives practical, medical and financial support to people with cancer.
Macmillan Cancer Support produce a wide range of booklets, factsheets, leaflets and CDs about cancer and its treatment, in various languages. They also provide information for teenagers and young adults with cancer.
Their helplines give advice on cancer and benefits.They also have an online community group for people aged 16 to 24 who are living with cancer.
Tel: 0808 808 0000
Booklets and factsheets
- understanding bile duct cancer factsheet
- diet and cancer (also on audiotape and CD)
- coping with advanced cancer (also on audiotape and CD)
- controlling cancer pain (also on audiotape and CD)
- lost for words – how to talk to someone with cancer
- sexuality and cancer (also on audiotape and CD)
- understanding chemotherapy (also on audiotape and CD)
- coping with hair loss (also on audiotape and CD)
- understanding clinical trials
- understanding radiotherapy (also on audiotape and CD)
- what do I tell the children – a guide for a parent with cancer
- talking about your cancer (also on audiotape and CD)
Videos of people's stories
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
Find local cancer support and information services
NHS Choices has a service that tells you about local information and support.