Find out about organisations, support groups, books, videos and other resources to help you cope with anal cancer and treatment. You can also find out about suppliers of stoma appliances.
Anal cancer support organisations
Cancer Research UK
407 St John Street
Phone: 020 7009 8881
Founded by Bobby Moore's wife, in partnership with Cancer Research UK, this organisation raises money for research into bowel cancer and aims to raise awareness of the symptoms so that people are diagnosed earlier.
General support organisations
A patient led group that promotes understanding about pelvic radiation disease, a late effect of radiotherapy treatment. They support patients and campaign for more research and better treatment for this condition.
Tel: 01372 744338
95 London Street
Tel: 0118 939 1537
Helpline: 0800 328 4257(24 hrs a day, 7 days a week)
The UK support group for people with a colostomy. It provides information and support, as well as booklets to anyone who has or is about to have a colostomy.
The Bladder and Bowel Community supports and connects people living with bladder and bowel disorders. Their confidential telephone helpline gives help in 10 languages. They can also advise you on stoma products.
The community can give you a Just Can't Wait toilet card. This gives you quick access to toilets when you're out and about in shops, cafes, pubs and so on.
The community was previously called the Bladder and Bowel Foundation.
Helpline: 0845 345 0165
Tel: 01926 357 220
Suppliers of stoma appliances
Handcrafted covers made to fit every size of ostomy bag or pouch following surgery resulting in a stoma, ie ileostomy, colostomy or urostomy. The covers come in a wide range of fabrics and are specifically tailored to fit each individual stoma bag.
Tel: 01205 723327
Makers and suppliers of colostomy and ileostomy appliances and equipment.
Tel: 01494 532761
Fax: 01494 524650
Books about anal and bowel cancer
Need-2-Know, No. 91 in series, 2013
An easy to read guide to bowel cancer. It includes information about lowering your risk, causes, tests, treatment and living with bowel cancer.
David Bub, Susannah Rose and Douglas Wong
Jones & Bartlett Publishers, 2007
A comprehensive book about all aspects of colorectal cancer. It is an American book so some aspects will not apply to the UK.
Mark Davies, 2011
A personal story using male humour from Mark Davies who was diagnosed with bowel cancer at the age of 31. Some people may find it a little crude but others find it amusing. Discusses his diagnosis, treatment and the challenges of living with bowel cancer.
Information for children
Chilman-Blair K and deLoache S
American Cancer Society, 2013
An American illustrated book about bowel cancer aimed at children aged 10 to 16 years.
Books about cancer and treatment
Malin Dollinger, Ernest H Rosenbaum and Margaret Tempero
Publishers: Andrews McMeel Publishing, 2008
Covers how cancer is diagnosed, treated and managed day to day.
Dr Terry Priestman
Sheldon Press, 2009
Gives information about chemotherapy, its side effects, and how to cope with them. Also discusses the effect of chemotherapy on everyday life, including tiredness, sex life and fertility, social life, work, holidays, exercise and diet.
Dr Terry Priestman
Sheldon Press, 2007
Gives information about radiotherapy, its side effects, and how to cope with them. Also discusses the effect of radiotherapy on everyday life, including social life, work, travel, exercise and diet.
Joanne Frankel Kelvin and Leslie B Tyson
Publishers: Jones and Bartlett Publishing, 2010
An American book which gives both doctor’s and patient’s views on coping with the symptoms of cancer and the side effects of treatment. It has information about treatment for pain, nausea, tiredness, and other symptoms.
Sheldon Press, 2012
Written by a cancer dietician, this is a practical handbook for people with cancer. Filled with helpful tips and recipes.
Abby Bloch, Barbara Grant, Kathryn Hamilton and Cynthia Thomson
Publisher: American Cancer Society, 2009
An American book but most of the information is relevant to the UK. It covers issues such as preventing weight loss and coping with dehydration, fatigue, and infection. It also discusses eating problems and digestion issues, such as swallowing problems, feeling sick and dealing with mouth sores. Focuses on survivorship and how to eat well after treatment.
Videos of people's stories
Hear what it's like to live with and beyond cancer, from people who've shared their personal stories on film.
Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more.
Find local cancer information and support
NHS Choices helps you find local cancer information and support.