Our policy on patient data

The high-quality population-based data held within UK cancer registries has played a vital role in cancer research both here in the UK, and around the world.  These datasets represent one of the most comprehensive collections of individual health data globally and offer an almost unparalleled opportunity for researchers looking to transform cancer outcomes. It is crucial that this vital source of information is protected.

However, despite the wealth of cancer data that the UK has - barriers to realizing its full potential exist; datasets are often incomplete; data access routes are slow and inconsistent; and data is often duplicated or siloed.  Our policy team works closely with researchers, patients, and the NHS to try and address these barriers, making research easier and more effective, driving forward patient outcomes.