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Organisations and resources

Find out about organisations, support groups, books, videos and other resources to help you cope with vaginal cancer and treatment.

Specific women's support organisations

Jo's Trust provides information about cervical cancer and a confidential medical enquiry service. They also support women with vaginal cancer. They have a website bulletin board where you can exchange experiences and information with others who have cervical cancer.

Helpline: 0808 802 8000

Tel: 020 7250 8311

Volunteer beauty therapists provide skincare and make up workshops for women undergoing cancer treatment. All guests are provided with a goodie bag. Set up by the cosmetics industry, this charity has been running for 12 years and workshops are held in 50 locations across the UK.

Tel: 01372 747 500

A patient led group which aims to promote understanding about pelvic radiation disease, a late effect of radiotherapy treatment. They offer support to patients and campaign for more research and better treatment for this condition. They mainly focus on bowel problems caused by pelvic radiotherapy.

Tel: 01372 744 338

A free and confidential service for women who've had early menopause.

A charity that provides information about women's health issues.  They've a team of specialist nurses and medical advisers to answer email enquiries for a £10 donation. They produce a range of factsheets including hormone replacement therapy, menopause, hysterectomy and ovarian cysts.

Tel: 01628 890 199

General support organisations

Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website, our news and resources, and our range of health awareness leaflets.

Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.

If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.

Offers counselling and psychotherapy. Also can provide details of local counsellors.

Tel: 020 8543 2707

Macmillan Cancer Support provides practical, medical and financial support and campaigns for better cancer care. It provide booklets on cancer and treatments and runs a helpline providing cancer information and benefits advice. 

Macmillan CancerLine: 0808 808 0000 (Mon to Fri, 9am to 8pm; information available in other languages)
Textphone: 0808 808 0121

Information on sexual problems that can affect both men and women. They provide lists of local specialist practitioners, as well as factsheets on problems such as erectile dysfunction (impotence).

Tel: 020 7486 7262

Books about vaginal cancer

Sally Haslett, Molly Jennings, Hilary Walsgrove and Wendy Weatheritt
Beaconsfield Pubs Ltd, March 2010
ISBN 978-0906584620

A practical guide about the different types of hysterectomy operation. This book is not geared towards vaginal cancer, but you may find some of the information useful if you're having surgery.

Booklets and factsheets

  • Understanding radiotherapy (also on CD)
  • Pelvic radiotherapy in women - possible late effects (also on CD)
  • Pelvic radiotherapy in women - side effects during treatment
  • Understanding lymphoedema
  • Life after cancer treatment
  • Coping with advanced cancer (also on audiotape)
  • Controlling the symptoms of cancer
  • Lost for words – how to talk to someone with cancer
  • How are you feeling? Coping with the emotional effects of cancer
  • Sexuality and cancer
  • Coping with fatigue (also on audiotape and CD)
  • Talking to children and teenagers when an adult has cancer (also on CD)
  • Talking about your cancer (also on audiotape and CD)

A range of downloadable factsheets and information relating to cancer and treatment.

Videos of people's stories

Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.

Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.

Find local cancer support and information services

NHS Choices has a service that tells you about local information and support.

Information and help

Dangoor sponsorship

About Cancer generously supported by Dangoor Education since 2010.