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Prostate cancer resources and books

Find out about organisations, support groups, books, videos and other resources to help you cope with prostate cancer and treatment.

Prostate cancer support organisations

Offers information and support to anyone with concerns about prostate cancer. Has a helpline and leaflets (send a large stamped addressed envelope please) and funds research into prostate cancer. Has a website with helpful information.

Email: info@prostatecanceruk.org
Helpline: 0800 074 8383

The National Federation of Prostate Cancer Support Groups is an organisation of over 80 UK patient-led prostate cancer support groups and acts as the voice of patients. It has a helpline and website and campaigns under the name Tackle Prostate Cancer.

Helpline: 0800 035 5302 – Monday to Friday, 9 to 9, 365 days a year
Email:  helpline@tackleprostate.org

Support organisations for specific side effects

The Bladder and Bowel Community supports and connects people living with bladder and bowel disorders. Their confidential telephone helpline gives help in 10 languages. They can also advise you on stoma products.

The community can give you a Just Can't Wait toilet card. This gives you quick access to toilets when you're out and about in shops, cafes, pubs and so on.

The community was previously called the Bladder and Bowel Foundation.

Helpline: 0845 345 0165
Tel: 01926 357 220
Email: info@bladderandbowelfoundation.org

The British Association for Counselling & Psychotherapy provide information about therapy and counselling. And you can look for a qualified therapists in your area on the website.

Telephone: 01455 883300 (open Monday to Friday, 9am to 5pm)
Email: bacp@bacp.co.uk

Gives information on support and counselling that are available for sexual difficulties.

Phone: 020 8543 2707
Email: info@corst.org.uk

Helpline for lesbian, gay, bisexual and transgendered communities in the UK. Gives advice and information. 

PO Box 7324
London
N1 9QS

Helpline: 0300 330 0630 (Daily 10am to 11pm)
Website http://switchboard.lgbt/

The LGBT provide information and support for the public and health professionals. They have produced a booklet about male cancers for the gay and bisexual men.

Tel: 0345 3 30 30 30
Website: https://lgbt.foundation/    
Email: info@lgbt.foundation

Offers private and confidential counselling, and psychosexual therapy to help with relationship problems.

Tel: 0300 100 1234

Relationship Scotland provide relationship counselling, family mediation, child contact centres and other family support services across all of mainland and island Scotland.

InfoLine: 0845 119 2020 (open Monday to Friday 9am to 5pm)
Email: enquiries@relationships-scotland.org.uk

A patient led group that promotes understanding about pelvic radiation disease, a late effect of radiotherapy treatment. They support patients and campaign for more research and better treatment for this condition.

Tel: 01372 744338
Email: info@prda.org.uk

Tel: 020 7486 7262 (Monday, Wednesday and Friday - 9am to 5pm)
Email: info@sexualadviceassociation.co.uk

Advice and leaflets on impotence and its treatment.

General support organisations

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer. Its helpline gives guidance on cancer and advice on benefits. They also publish booklets about cancer and treatments.

Phone: 0808 808 0000 (Monday to Friday, 9am to 8pm; information available in other languages)
Textphone: 0808 808 0121

Telephone helpline and online advice on all medical and healthcare matters.

Tel: 020 8994 9874 (6pm to 8pm)
Email: office@medicaladvisoryservice.org.uk

This is a detailed American site with information for both people with cancer and health professionals.

Has patient information about prostate cancer. This is an American website, not all the information is relevant for a UK audience.

Books about prostate cancer

Dr Tom Smith
Sheldon Press, 2010
ISBN 978-1847091048

Dr Tom Smith is the Guardian doctor. This book gives an overview of prostate cancer, describes the many treatments available, and presents the latest research.

Pamela Ellsworth
Jones and Bartlett publishers, Sudbury, MA (USA), 2008
ISBN 978-0-76375-2057

A detailed book about all aspects of prostate cancer. Has tips on ways of managing the effects of treatment such as erection problems and urinary incontinence. It is written for the American audience so some aspects are not relevant to UK readers.

Sheldon Marks
Da Capo Press Inc, 2008
ISBN 978-0738208398

Looks at coping with your emotions, dealing with changes to your lifestyle and treatments.

David Bostiwick
American Cancer Society, 2006
ISBN 0-944235-54-9

A comprehensive about prostate cancer, which discusses the latest advances in prevention, early detection, treatment options and how to cope with emotional stresses and physical side effects.

Peter Scardino and Judith Kelman
Avery, 2006
ISBN 978-1583332542

Written by a specialist in America, this book provides information about all aspects of prostate cancer, including prevention, treatment and self help tips.

Ralph and Barbara Alterowitz
Da Copa Press, 2004
ISBN 0-738207-89-6

A description of sexual changes due to prostate treatment. Written by a prostate cancer survivor and his wife. Discusses impotence in lay terms and has information on the treatments available as well as practical advice about lovemaking.

Margaret Rayman, Kay Gibbons and Kay Dilley, in association with the Prostate Cancer Research Foundation
Kyle Cathie, 2009
ISBN 978-1856268691

A cook book that provides recipes based on healthy eating guidance that may reduce the risk of prostate cancer. 

Books about cancer and treatment

Malin Dollinger, Ernest H Rosenbaum and Andrew H Ko
Publishers: Andrews McMeel Publishing, 2008
ISBN-13: 978-0740768576

Covers how cancer is diagnosed, treated and managed day to day.

Dr Terry Priestman
Sheldon Press, 2009
ISBN-13: 978-1847090805

Gives information about chemotherapy, its side effects, and how to cope with them. Also discusses the effect of chemotherapy on everyday life, including tiredness, sex life and fertility, social life, work, holidays, exercise and diet.

Dr Terry Priestman
Sheldon Press, 2007
ISBN-13: 978-0859699990

Gives information about radiotherapy, its side effects, and how to cope with them. Also discusses the effect of radiotherapy on everyday life, including social life, work, travel, exercise and diet.

Joanne Frankel Kelvin and Leslie B Tyson
Publishers: Jones and Bartlett Publishing, 2010
ISBN: 978-0763777609

An American book which gives both doctor’s and patient’s views on coping with the symptoms of cancer and the side effects of treatment. It has information about treatment for pain, nausea, tiredness, and other symptoms.

Information about eating well

Jane Freeman
Sheldon Press, 2012
ISBN: 978-1-84709-141-3

Written by a cancer dietitian, this is a practical handbook for people with cancer. Filled with helpful tips and recipes.

Jane Freeman
Sheldon Press, 2012
ISBN: 978-1-84709-141-3

Written by a cancer dietitian, this is a practical handbook for people with cancer. Filled with helpful tips and recipes.

Booklets and factsheets

These include

Know Your Prostate: a guide to common prostate problems
Understanding the PSA test: A guide for men concerned about prostate cancer
How prostate cancer is diagnosed
A Guide for men just diagnosed
Prostate cancer facts for gay and bisexual men
Managing side effects pack
The Tool Kit (a set of factsheets on prostate cancer)

Prostate Cancer UK have many publications, view the full list at Publications.

Controlling cancer pain (also on CD)
Controlling the symptoms of cancer
Coping with advanced cancer (also on CD)
 Healthy eating and cancer (also on CD)
Lost for words - how to talk to someone with cancer
Pelvic radiotherapy in men: managing side effects during treatment
Sexuality and cancer (also on CD)
Talking about your cancer
Talking to children and teenagers when an adult has cancer (also on CD)
Understanding early (localised) prostate cancer (also on CD)
Understanding locally advanced prostate cancer (also on CD)
Understanding advanced (metastatic) prostate cancer (also on CD)
Understanding cancer research trials (clinical trials)
Understanding radiotherapy (also on CD)
Understanding secondary cancer in the bone
Understanding the PSA test

Chemotherapy
Radiotherapy
Clinical trials

To order any of the Royal Marsden Hospital booklets please telephone freephone 0800 783 7176, or email patientcentre@rmh.nhs.uk.

An introduction to bladder control problems
Bladder control after a prostate operation
Pelvic floor exercises for men

Videos of people's stories

Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.

Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.

Go to the HealthTalk website

The Prostate Cancer UK website also has videos of men’s experiences at Real Life Stories.

Find local cancer support and information services

NHS Choices has a service that tells you about local information and support.

Go to NHS choices website 

Last reviewed: 
08 Aug 2016

Information and help

About Cancer generously supported by Dangoor Education since 2010.​