Find out about organisations, support groups, books, videos and other resources to help you cope with penile cancer and treatment.
Specific support organisations and sites
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website, our news and resources, and our range of health awareness leaflets.
Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.
If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.
The American National Cancer Institute has detailed patient information on penile cancer. The information has no images.
Healthtalk is run by the DIPEx charity. It collects people's experiences about cancer and other diseases in writing and as video clips. You can find out about people's experiences of tests, treatments and living with cancer. There is also a patient forum.
There is a section about penile cancer.
Information on sexual problems that can affect both men and women. They provide lists of local specialist practitioners, as well as factsheets on problems such as erectile dysfunction (impotence).
Tel: 020 7486 7262
Gives information about the support and counselling that is available for people having difficulty with sex or relationships.
Phone: 020 8543 2707
Helpline: 0800 334 5551
This website has several message boards so people with less common or rarer cancers can get in touch with each other. Friends and families of people with rarer cancers can also use the message boards to share their experiences, give support or get advice from people in similar situations. The website also offers general advice and information.
Offers private and confidential counselling, and psychosexual therapy to help with relationship problems.
Tel: 0300 100 1234
General support organisations and sites
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments.
Phone: 0808 808 0000 (Monday to Friday, 9am to 8pm; information is available in other languages)
Textphone: 0808 808 0121
The Bladder and Bowel Community supports and connects people living with bladder and bowel disorders. Their confidential telephone helpline gives help in 10 languages. They can also advise you on stoma products.
The community can give you a Just Can't Wait toilet card. This gives you quick access to toilets when you're out and about in shops, cafes, pubs and so on.
The community was previously called the Bladder and Bowel Foundation.
Helpline: 0845 345 0165
Tel: 01926 357 220
Phone: 020 7250 8181 (Monday to Friday, 10am to 12.30pm and 1.30pm to 4pm)
National disability organisation. Formed in January 2012 through a merger of Disability Alliance, RADAR (Royal Association for Disability Rights) and National Centres for Independent Living. They provide a number of helplines for a variety of issues.
Books from libraries, bookshops or online booksellers
You can find a list of books about cancer, treatments, and living with cancer on our general reading list.
Dr Ian Banks
J H Haynes & Co Ltd (2004)
Written by a doctor, the Haynes Cancer manual is an optimistic book, featuring hints and tips for a healthy lifestyle as well as easy to understand information on all cancers affecting men.
Andrew Ko (Author), Ernest Rosenbaum (Contributor), Malin Dollinger (Contributor)
Publishers: Andrews McMeel Publishing, 2008
The author and contributors of this book are all American cancer specialists. The book covers how cancer is diagnosed, treated and managed day to day.
Leslie R Schover
ISBN 047 118 1943
This book has information on sexuality and fertility problems after cancer, and cancer treatment. It covers the physical and emotional effects of cancer offering some helpful, practical solutions to problems.
Booklets and factsheets from other organisations
Booklets from Macmillan Cancer Support
Diet and cancer (also on audiotape and CD)
Coping with advanced cancer
Controlling cancer pain (also on CD)
Sexuality and cancer
Understanding chemotherapy (also on CD)
Understanding radiotherapy (also on CD)