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Follow up

You'll have follow up appointments and tests after treatment for pancreatic cancer.

Why you have follow up appointments

You have follow up appointments to check how you are and whether you have any problems or worries. They also give you the opportunity to raise any concerns you have about your progress.

What happens

Your doctor or nurse examines you at each appointment. They ask how you are feeling, whether you have had any symptoms or side effects and if you are worried about anything.

You might also have tests at some visits.

Tests

Tests may include:

  • being examined by your doctor
  • blood tests
  • CT scan
  • ultrasound scans

You won't have all these tests at every visit to your specialist but your doctor will probably examine you and ask of you have had any symptoms or are worried about anything.

Blood tests

You are likely to have some blood tests at each appointment. These test your general health.

You might also have a test for a protein called CA19-9. This is used as a tumour marker, which means that it can be a sign that pancreatic cancer cells are present in the body.

If your CA19-9 levels are going up it could be a sign that your cancer has come back or is growing.

Where you have appointments

You might go for check ups at the surgical outpatients after surgery. You go to the cancer clinic if you have had chemotherapy or radiotherapy. The surgeon and the oncologist might share your follow up. This means you see the surgeon sometimes and the oncologist at other times.

Contact your doctor or specialist nurse if you have any concerns. You should also contact them if you notice any new symptoms between appointments. You don’t have to wait until your next visit.

If you are worried

Many people find their check ups quite worrying. A hospital appointment can bring back any anxiety you had about your cancer.

It can help to tell someone close to you how you’re feeling. Sharing your worries can mean they don’t seem so overwhelming. Many people find it helpful to have counselling after cancer treatment.

Patient led follow up

Some hospitals are trying out a new way of running their check ups. This system leaves it to you to take the lead in arranging to see your doctor or specialist nurse.

When you first finish treatment, your hospital arranges your appointments. But once your doctors are happy with your progress you can arrange them yourself. You can do this as often as you feel you need to.

You might want to make an appointment if you:

  • have noticed a change in your body that worries you
  • feel it is time you had a check up, even though you don't have any particular worries

In some situations, your specialist will ask you to book in for a particular test every so often.

This system means you can organise appointments to suit your own health needs. It also means that clinics aren’t full of people who might not need to see their doctor. This helps the hospital to keep waiting times short, so you can get an appointment quickly when you need one.

Information and help

Dangoor sponsorship

About Cancer generously supported by Dangoor Education since 2010.