Organisations, support groups, videos and books to help you cope with mesothelioma.
These organisations give you support through all stages of mesothelioma and its treatment.
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website, our news and resources, and our range of health awareness leaflets.
Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.
If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.
The British Lung Foundation gives information on all types of lung conditions. It runs support groups across the country. It produces a newsletter and other publications, and raises funds for research into lung disease.
Tel: 03000 030 555 (Monday to Friday, 9am to 5pm)
A professional body for lung specialists. Its website has information about mesothelioma and lung cancer. It also has guidelines for managing mesothelioma.
The material is written for medical professionals. You might find the tone blunt and technical at times.
Great Britain's independent regulator for work-related health, safety and illness. The website includes guidance on asbestos use in the workplace and the laws on asbestos.
Tel: 0300 003 1747 (Monday to Friday, 8.30am to 5pm)
A resource for impartial, up to date guidance on mesothelioma. Mesothelioma UK helps develop specialist nursing practice and research. Your queries can be referred to a specialist mesothelioma nurse when you call.
Phone: 0800 169 2409 (Monday to Friday, 8.30am to 4.30pm)
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments.
Phone: 0808 808 0000 (Monday to Friday, 9am to 8pm; information is available in other languages)
Textphone: 0808 808 0121
The US federal government's agency for cancer research. Their website gives comprehensive information about mesothelioma.
Videos of people's stories
Hear what it's like to live with and beyond cancer, from people who've shared their personal stories on film.
Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more.
Books and factsheets
Lean on me
L Kember Publications (self published)
This book describes an emotional journey as Lorraine supports her husband with mesothelioma. It includes excerpts from Lorraine's diary. She describes the sense of helplessness she felt on his diagnosis, pain and managing symptoms. Her strength grows as she comes to realise that there is so much she can do to help to improve her husband's quality of life.
100 Questions and Answers about Mesothelioma
Harvey I. Pass, Amy Metula and Susan Vento (2nd edition)
Jones and Bartlett Publishers, 2009
This book has been recommended to us by a relative of someone with mesothelioma. It is a US book so some of the information does not apply in the UK.
British Asbestos Newsletter
A quarterly newsletter with updates on all aspects of asbestos, both legal and medical.
Download the handbook from the June Hancock Mesothelioma Research Fund for free, or buy a hard copy.
A free factsheet from Macmillan Cancer Support.
Mesothelioma publications from the British Lung Foundation
Get free guidance on living with mesothelioma.
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Find local cancer information and support
NHS Choices helps you to find local cancer information and support.