Find organisations, support groups, books, videos and other resources to help you cope with laryngeal cancer and treatment.
Cancer Research UK
Cancer Research UK is the largest cancer research organisation in the world outside of the USA. We fund research on all aspects of cancer from its causes to treatment and prevention.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We also have a range of health awareness leaflets.
Cancer Chat is a forum where you can share experiences.
Helpline freephone number: 0808 800 40 40
Administration phone number: 020 7242 0200
Laryngeal cancer support organisations
Promotes the welfare of people who've had a laryngectomy, and their families. Supports 80 local clubs and can arrange hospital visits before and after your operation. Produces a video and a range of booklets, including a handbook for people who've had a laryngectomy.
Tel: 020 7730 8585 (9am to 4pm, Monday to Friday)
Formed in 1985, to help provide support and understanding for people who have, or need, a laryngectomy. There is a magazine for members and a free book.
Tel: 01422 205 522
The UK professional body for speech therapists. They can advise on speech therapy services and give other information to people who've had a laryngectomy.
Tel: 020 7378 1200
This is an American organisation. They publish a newsletter online and have information about laryngectomy on their website.
Tel: 1 866 425 3678
General support organisations
Macmillan Cancer Support provides practical, medical and financial support and push for better cancer care. They provide booklets on cancer and treatments and run a helpline providing cancer information and benefits advice.
Macmillan CancerLine: 0808 808 0000 (Mon to Fri, 9am to 8pm; information available in other languages)
Textphone: 0808 808 0121
Provides support and information for people who have any form of facial disfigurement including disfigurement caused by cancer. They produce a booklet called 'When cancer affects the way you look', which you can download from the website. They now also provide the skin camouflage service. Trained volunteers teach people how to apply specialist cover creams.
Tel: 0300 0120 275 (support and advice line)
The contact details for the skin camouflage service are:
Telephone: 0300 0120 276
Quit is a helpline dedicated to helping people stop smoking. The helpline is staffed by counsellors who can give you advice on how to stop smoking. They can also send you an information pack.
Helpline: 0800 00 22 00 (7 days a week, 9am to 9pm. Closed only on Christmas Day and Boxing Day)
An American organisation with a support network for people with cancers of the head and neck. They have a survivour to survivour network and some useful information, including clinical trials and products that may be helpful if you've had a head and neck cancer.
Helpline: 0800 334 5551
This website has several message boards so people with less common or rarer cancers can get in touch with each other. Friends and families of people with rarer cancers can also use the message boards to share their experiences, give support or get advice from people in similar situations. The website also offers general advice and information.
Books about laryngeal cancer
John Diamond's brilliant, realistic and funny account of his diagnosis and treatment for laryngeal cancer.
Times Books, 1999
Practical advice and information, as well as reassurance about the problems caused by the loss of normal speech. It's written in a straightforward, humourous style and is illustrated with cartoons.
Free copies are available for patients and health professionals by emailing: email@example.com
Sydney Norgate and Dr Nicola Oswald
Cancer Laryngectomee Trust, 2nd Edition, 2013
Information about cancer treatments and how to manage problems with speech and swallowing. It includes exercises for improving speech and swallowing, and tips on tube feeding.
Jack E Thomas and Robert L Keith
Thieme Publishing Group, 2005
Comprehensive information for people who have cancer of the larynx,and their friends and family. This is an American book so some aspects of treatment and care may differ from what's available in the UK.
US Department of Health and Human Services, National Institute of Health, National Cancer Institute, S Smith (Editor)
CreateSpace Independent Publishing Platform (9 March 2012)
ISBN 13 978 1475010138
Booklets and factsheets
From Macmillan Cancer Support:
- Understanding chemotherapy
- Understanding radiotherapy
- Coping with hair loss
- Understanding cancer of the voice box (larynx)
- Coping with fatigue
- Diet and cancer
- Recipes from Macmillan Cancer Support
- Talking about your cancer
- Lost for words – how to talk to someone with cancer
- Sexuality and cancer
- Coping with advanced cancer
- Controlling cancer pain
- Understanding cancer research trials (clinical trials)
- Talking to children when a adult has cancer
- Work and cancer
- Travel and cancer
Videos of people's stories
Hear what it's like to live with and beyond cancer, from people who've shared their personal stories on film.
Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more.
Find local cancer information and support
NHS Choices helps you to find local cancer information and support.