Organisations, support groups, videos and books to help you cope with kidney cancer.
Cancer Research UK
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website, our news and resources, and our range of health awareness leaflets.
Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.
If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.
These organisations give you support through all stages of kidney cancer and its treatment.
Kidney Cancer UK offers support for patients and their carers. It helps them get reliable information about kidney cancer and its treatment, and establish a network of individuals and groups who can offer mutual support.
They have 3 local support groups, meeting in South East London, North East England (Sunderland) and the Borders.
Care line: 0800 002 9002 (Mon/Tue/Thur/Fri 10am-4pm, Wed 10am – 6pm, Sat/Sun 4pm – 6pm)
Tel: 0122 387 0008
Kidney Cancer Support Network (KCSN) is a patient led and managed kidney cancer charity in the UK.
The KCSN is focused on supporting patients, carers and immediate family members. They provide a patient friendly website featuring a unique clinical trials database together with daily news updates and an Information Hub full of books, leaflets and helpsheets.
They offer a “patient to patient” telephone and email support service. The KCSN confidential online support group is used daily by hundreds of kidney cancer patients and carers to share their knowledge and experiences and to offer friendship and support to each other.
Telephone: 01209 890 326
Facebook: ‘UK Kidney Cancer Support Network’
The US National Cancer Institute website gives comprehensive guidance on kidney cancer.
The Myrovlytis Trust is a medical research charity that promotes research into rare genetic disorders.
It runs a website focusing on Birt Hogg Dube Syndrome (BHD), a condition which increases the risk of kidney cancer. This offers support for BHD patients and encourages communication through an online forum. It also gives detailed information for people with BHD syndrome and their families, and for research scientists.
Tel: +44(0)20 7193 8921
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments.
Phone: 0808 808 0000 (Monday to Friday, 9am to 8pm; information is available in other languages)
Textphone: 0808 808 0121
Videos of people's stories
Hear what it's like to live with and beyond cancer, from people who've shared their personal stories on film.
Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more.
Books about kidney cancer
100 Questions & Answers About Kidney Cancer
SC Campbell, BI Rini, RG Uzzo and others
Jones and Bartlett publishers, 2009
This book gives a thorough explanation of the disease and describes the various treatment options. It includes real life stories from patients and caretakers who have had kidney cancer.
Some aspects of this US book may not be relevant to healthcare in the UK.
Find local cancer information and support
NHS Choices helps you to find local cancer information and support.