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Resources and organisations

Find support organisations, books and other resources to help you cope with cancer of unknown primary (CUP) and its treatment.

Cancer Research UK information and support

Cancer Research UK is the largest cancer research organisation in the world, outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through our website, which includes patient information and news and resources, and through our range of health awareness leaflets.

If you have a question about cancer, and you are in the UK or Ireland, you can contact our team of specialist cancer information nurses.

If you would like to talk to someone affected by cancer, share experiences or find information, you can visit our Cancer Chat forum.

Helpline: 0808 800 40 40
Admin phone number: 020 7242 0200

CUP and general support organisations

CUP Foundation,
The Fold,
Lower End,
Daglingworth,
Cirencester
GL7 7AH

A charitable support and information website for people with unknown primary cancer, and their carers. CUP also aims to raise awareness and undertake, promote and support research. There is information about uknown primary cancer, its treatment and research, and a message board where you can talk to others with unknown primary cancer.

This coalition of cancer charities raises awareness of less common cancers. It aims to move these cancers higher up the political agenda.

The name comes from the fact that 52% of cancer deaths are due to the less common cancers. This includes all cancers except breast, bowel, lung and prostate.

Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments.

Phone: 0808 808 0000 (Monday to Friday, 9am to 8pm; information is available in other languages)

Textphone: 0808 808 0121

The US National Cancer Institute website has a comprehensive section about cancer of unknown primary.

Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff.

You can join a support group, take part in weekly sessions like relaxation and stress management, or learn about nutrition and health. You can also visit just to have a cup of tea and a friendly chat.

The Gatehouse
10 Dumbarton Road
Glasgow
G11 6PA

Phone: 0300 123 1801
Email: enquiries@maggiescentres.org

Books

From National Cancer Institute, USA
Publisher: Progressive Management (26 Sep 2011)
Amazon number (ASIN) : B005QF0J7S

Authoritative information and practical advice about carcinoma of unknown primary (CUP) from the National Cancer Institute in the US. Only available as a Kindle edition. 

The book includes information about signs, symptoms, treatment options, clinical trials and outlook. It also includes a complete glossary of technical medical terms and current references. The book starts with basic information and advances to more detailed patient information, and then information for doctors.

You can also find a list of books about cancer, treatment and living with cancer on our general reading list. These books cover many aspects of cancer and its treatment. 

Booklets and factsheets

You can download (for free) or order factsheets and leaflets about various aspects of living with cancer and its treatment. 

Titles include:

  • Understanding chemotherapy
  • Understanding radiotherapy
  • Coping with hair loss
  • Coping with fatigue
  • Eating problems and cancer
  • Healthy eating and cancer
  • Physical activity and cancer treatment

These, and a wide range of other booklets and CDs, can be ordered via the Macmillan Cancer Support website. They can also be ordered by phone on 0800 500 800.

You can download patient information booklets from The Royal Marsden NHS Foundation Trust for free. These booklets cover many aspects of cancer and its treatment, including:

  • chemotherapy
  • radiotherapy
  • clinical trials
  • eating well when you have cancer
  • after treatment

Videos of people's stories

Hear what it's like to live with and beyond cancer, from people who've shared their personal stories on film.

Healthtalk has an online library of interviews with people who have lived for 5 years or more after a cancer diagnosis. See what they say about lifestyle choices, physical effects, work, family and more. 

Find local cancer information and support

NHS Choices helps you to find local cancer information and support.

Information and help

Dangoor sponsorship

About Cancer generously supported by Dangoor Education since 2010.