Find support organisations, books and other resources to help you cope with cancer of unknown primary and its treatment.
Cancer Research UK
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti-cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website, our news and resources, and our range of health awareness leaflets.
Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.
If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.
Jo's Friends – Cancer of Unknown Primary Foundation
Jo's Friends gives information and support to people with cancer of unknown primary, and to their families and carers. They aim to raise awareness of unknown primary cancer and promote research in this area.
This coalition of cancer charities raises awareness of less common cancers. It aims to move these cancers higher up the political agenda.
The name comes from the fact that 52% of cancer deaths are due to the less common cancers. This includes all cancers except breast, bowel, lung and prostate.
National Cancer Institute (NCI)
The US National Cancer Institute website has a comprehensive section about cancer of unknown primary.
Macmillan Cancer Support
Macmillan Cancer Support is a charity that gives practical, medical and financial support to people with cancer. Its helpline gives guidance on cancer and advice on benefits. It also publishes booklets about cancer and treatments.
Phone: 0808 808 0000 (Monday to Friday, 9am to 8pm; information is available in other languages)
Textphone: 0808 808 0121
Carcinoma of Unknown Primary (CUP): 21st Century Adult Cancer Sourcebook
Occult Primary Malignancy – Clinical Data for Patients, Families, and Physicians (Only available as a Kindle edition)
From National Cancer Institute, USA
Publisher: Progressive Management (26 Sep 2011)
Amazon number (ASIN) : B005QF0J7S
Authoritative information and practical advice about carcinoma of unknown primary (CUP) from the National Cancer Institute in the US.
The book includes information about signs, symptoms, treatment options, clinical trials and outlook. It also includes a complete glossary of technical medical terms and current references. The book starts with basic information and advances to more detailed patient information, and then information for doctors.
General reading list
You can also find a list of books about cancer, treatments and living with cancer on our general reading list. These books cover many aspects of cancer and its treatment.
Booklets and factsheets
Macmillan Cancer Support
You can download (for free) or order many factsheets and leaflets about various aspects of living with cancer and its treatment.
- Diet and Cancer
- Coping With Advanced Cancer
- Controlling Cancer Pain
- Lost For Words – How to talk to someone with cancer
- Sexuality and Cancer
- Understanding Cancer of Unknown Primary
- Understanding Chemotherapy
- Cancer Research Trials
- Understanding Radiotherapy
- Talking To Children About Cancer
- Talking About Your Cancer
The Royal Marsden Help Centre
You can download patient information booklets from The Royal Marsden NHS Foundation Trust for free. These booklets cover many aspects of cancer and its treatment, including:
- clinical trials
- eating well when you have cancer
- after treatment
Find local cancer information and support
NHS Choices helps you to find local cancer information and support.