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Resources and organisations

Find out about organisations and resources to help you cope and get contacts for mastectomy wear and prosthesis suppliers.

Cancer Research UK

Cancer Research UK is the largest cancer research organisation in the world outside of the USA. We fund research on all aspects of cancer from its causes to treatment and prevention.

We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We also have a range of health awareness leaflets.

Cancer Chat is a forum where you can share experiences.

Helpline freephone number: 0808 800 40 40

Administration phone number: 020 7242 0200

Breast cancer support organisations

Breast Cancer Now is a charity dedicated to funding breast cancer research. It was formed by the merger of The Breast Cancer Campaign and Breakthrough Breast Cancer in June 2015.

Tel: 0333 20 70 300

Breast Cancer Care provides breast cancer information and support across the UK. All services are free and include a helpline and a website. They offer practical and emotional support to people affected by breast cancer and partners. And information about mastectomy wear (including bras and swimming costumes). They have a range of leaflets and factsheets (also available in braille and audio CD's) 

Tel: 0345 092 0800

Against Breast Cancer is a charity based in Oxford. It funds breast cancer research into new treatments, earlier diagnosis and long-term survival. 

Tel: 01235 534211
Email: info@againstbreastcancer.org.uk

A support group for people diagnosed with inflammatory breast cancer. Offers support and advice during treatment and beyond. This is a closed group. You need to apply online to join.
 

Provides support and information if you are concerned about hereditary breast cancer. There is an email address and a telephone number for enquires. Outside office hours, there is a 24 hour answerphone to leave your message. 

Tel: 01629 813000 (helpline 24 hours)
Email: canhelp@btopenworld.com
 

The Haven offers free support, information and complementary therapies to people affected by breast cancer. They have drop in centres in London, Hereford, Yorkshire, Wessex and Worcester. They offer a programme to help you feel better and develop a healthier lifestyle. If you can't get to a Haven centre, they can offer help over the phone, the website and the Haven at Home DVD.

Tel: 020 7384 0099 
Email: info@thehaven.org.uk

General support organisations

Macmillan Cancer Support is a charity that provides practical, medical and financial support for people with cancer. They provide booklets on cancer and treatments and run helplines that provide cancer information and benefits advice. They have a wide range of factsheets, leaflets, audiotapes and CD's that cover breast cancer and treatment. Some factsheets are available in Bengali, Gujarati, Hindi, Punjabi and Urdu.

Tel: 0808 808 0121
Email: cancerline@macmillan.org.uk

This charity provides skincare and make up workshops for women undergoing cancer treatment. They have been running for 22 years and workshops are held in 86 hospitals and support centres across the UK. You can find your nearest workshop and read more about the work of the charity on their website.

Tel: 01372 747500
E-mail: info@lgfb.co.uk

Provides help, support and information for women who have early menopause.

Email: info@daisynetwork.org.uk

This is a national charity that offers information and support to anyone affected by lymphoedema. They run support groups, a helpline and a website. They also produce a range of information including 25 factsheets about lymphoedema and its treatment, 2 DVDs about self management techniques and a newsletter.

Tel: 020 7351 0990
Email: admin@lsn.org.uk 

Maggie’s is a national charity with centres across the UK. They offer care and support to people affected by cancer. Each centre is beside an NHS cancer hospital and is run by specialist staff. You can join a support group, take part in weekly sessions like relaxation and stress management or learn about nutrition and health. 

Tel: 0300 123 1801
Email: enquiries@maggiescentres.org

Healthtalk is run by the DIPEx charity. It collects people's experiences about cancer and other diseases in writing and as video clips. You can find out about people's experiences of tests, treatments and living with cancer. There is also a patient forum.

Email: info@healthtalkonline.orgorum

Switchboard provides support and information for lesbians, gay men, bisexuals and transsexual people. They offer a helpline everyday between 10am and 11pm. They also offer a chat and email service. 

Tel: 0300 330 0630

Email: chris@switchboard.lgbt 

Suppliers for women who have had breast surgery

Amoena makes and retails breast forms (prostheses), prosthetic nipples, mastectomy lingerie, nightwear and mastectomy swimwear. They also sell sports wear (active wear). They have stockist across the UK and you can also make online orders.

Tel: 023 80 270345 (9am-5pm)
Email: shop.uk@amoena.com

Betty and Belle is a lingerie shop where you can get expert bra fitting. They sell mastectomy lingerie, breast prostheses and swimwear, including non wired support bras and front fastening bras for after breast surgery. The collection is also available online. 

Tel: 0161 929 1472 (Tues to Friday 10am to 5pm, Sat 10am to 4pm)
Email: info@bettyandbelle.co.uk

A lingerie and swim wear boutique specialising in quality brands, plus size lingerie, swim wear, and mastectomy wear.

Tel: 01332 865554

An online supplier of breast prostheses,mastectomy bras and swim wear. It also sells front fastening bras for after surgery.

Tel:  0845 22 55 080

Sells mastectomy bras, swim wear, night wear and breast prostheses by mail order, online or by phone. Free returns service in UK. 

Tel: 0845 265 7595
Email: customerservice@nicolajane.com

Provides a range of mastectomy bras, night wear and swim wear. Has a shop in Seaton, Devon.

Tel: 01297 24440
Email: sales@bra4u.net

Makes breast forms and protheses. Also sells mastectomy bras, swim wear and tops. They offer a pocketing service for your own bras and swimsuits. Accepts orders by phone, mail or fax.  

Tel: 01295 220524
Email: info@silima.co.uk

Books about breast cancer

Emma Pennery, Val Speechley and Maxine Rosenfield
Class Publishing, 2008
ISBN-13: 978-1859591987

Contains information about the signs and symptoms of breast cancer. It offers guidance on the various forms of treatment and care, including surgery, radiotherapy and chemotherapy. It also gives information about complementary therapies, practical advice about managing life with and after cancer (diet, exercise, work and finances). And answers questions about relationships and family.

Terry Priestman
Sheldon Press 2006
ISBN-13: 978-0859699686

Coming to terms with a diagnosis of breast cancer isn't easy. This book gives reassurance and practical advice about getting on with life as normally as possible. It is helpful for friends and family as well as people with breast cancer.

John Link
Owl Books 2007
ISBN 0805082344

It is a book written by an American breast cancer specialist. It includes information on recent treatment developments. It is mainly for people with primary breast cancer.

Marisa and Ellen Weiss
Three Rivers Press 2010
ISBN-13: 978-0307460226

This American book discusses all the physical and emotional issues that you may have after finishing cancer treatment.

Katherine Locke
Need-2-Know, 2010
ISBN 1861440960

A book for women who have just been diagnosed with breast cancer. Written by a woman who has been through treatment for breast cancer. Provides information about what breast cancer is, how it is diagnosed and the treatment options available. It also talks about the emotional effects after a cancer diagnosis.

Briony Jenkins
BCM Publishing, 2014
ISBN-10: 0993070310

A personal story and guide to talking about cancer to children. Written by a woman diagnosed with breast cancer aged 43 when her son was 7 and her daughter was 3. The book has information about coping with treatment and coping emotionally when you have children.

 

Vladimir Lange
Lange Media, 2009
ISBN 9780981948904

A complete guide to breast cancer diagnosis, treatment, breast reconstruction, complementary therapies, research trials and coping with cancer. It is an American book, so some aspects are not relevant to UK readers.

Dick Rainsbury and Ginny Straker
Class Publishing, 2008
ISBN 1859591973

Written by a breast surgeon and breast care nurse. Gives information about breast reconstruction that aims to help women to make decisions about this type of surgery. It describes the surgical process, the possible benefits and problems. It also talks about psychological aspects of breast reconstruction, gives options for women who decide not to have reconstructive surgery, and explains how other treatments may affect or be affected by reconstruction.
 

Books about lymphoedema and early menopause

Peter Mortimer and Jacqueline Todd
Beaconsfield Publishers Ltd, 2007
ISBN-10: 0906584590

Explains the causes and symptoms of lymphoedema. Describes treatments, including massage, exercise, and the use of bandages and compression garments.

Evelina W. Sterling and Angie Best-Boss
Fireside Books, 2010
ISBN 9781439108451

An American book that has information on treatments and other ways of managing early menopause. As it is American, some of the options and resources may not be available in the UK.

Kathryn Petras
Avon books, 2000
ISBN 0380805413

Discusses the physical and emotional effects of early menopause and how to cope with them.

Biographies

Janet Rhys Dent
Radcliffe Publishing 2007
ISBN 1 84619 150 5

This is an easy to read book of one woman’s experience of breast cancer. As she considers the dilemmas and discoveries of the diagnosis, both inside and outside hospital, she reflects on what being a patient means, where she gets information and support and how her attitude to life and living changes.

Sylvia Mitchell
Available from:
32, Ratcliffe Road,
Haydon Bridge,
Northumberland NE47 6ET

A warm and humerous, but honest account of 1 woman's experience of breast cancer. The author has included a writing exercise at the end of each chapter, which many people may find helpful. The price is £6.99 (including postage and packing). All profits go to the Northern Cancer Support Group. 

Christine Rayner
Lucas Books, 2002
ISBN 1903797179

This is 1 woman's story of having breast cancer. It's easy to read and gives good explanations of tests and treatment. It explains the more unpleasant aspects of treatment in a non-frightening way. It has a strong spiritual focus and may not suit everyone but others may find it a useful source of support.

Sarah Jane Phillips
Published by the author 2013
ISBN 978-1482058116

This is a warm and easy to read book about a 36 years old woman’s experience of breast cancer (some 20 years after treatment for Hodgkin lymphoma). The author gives an honest and open account of her feelings and experiences during her diagnosis, treatment, and the early years following treatment. She describes what the tests and treatments involve, and offers insight into what it really feels like and how she coped at each stage. The author is very positive about the support she receives from her family and friends, and the health professionals involved in her care. Proceeds from the book will go towards the NHS trust where she had treatment.

Information for children and people with a learning disability

Sheila Hollins and Wendy Perez. Illustrated by Beth Webb
Gaskell, November 2000
ISBN 1 901242 53 6

The book tells a simple story about a women going for a mammogram and getting her result. It also explains what happens if you are called for further tests and how to look out for any changes in your breasts – being breast aware. 

National Health Service (NHS) Cancer Screening Programmes

This is a picture leaflet for women with a learning disability to tell them about breast screening. You can read or download this leaflet in PDF format on the NHS website. 

Gillian Forrest

Written by a psychiatrist who had breast cancer, Mummy’s Lump is a reassuring story, told in a familiar way for young children and is suitable for any family who needs to talk about a difficult subject like cancer. It covers diagnosis, going into hospital, treatments and hairloss. It helps children to understand what is happening.

Videos of people's stories

Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.

Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.

Go to the HealthTalk website

Find local cancer support and information services

NHS Choices has a service that tells you about local information and support.

Go to NHS choices website 

Last reviewed: 
08 Aug 2014

Information and help

Dangoor sponsorship

About Cancer generously supported by Dangoor Education since 2010.