Find out about organisations, support groups, books, videos and other resources to help you cope with a brain tumour and treatment.
Cancer Research UK
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We are the European leader in the development of new anti cancer drugs. We fund research on all aspects of the disease from its causes, to treatment and prevention, education and psychological support for patients.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We do this through the About Cancer pages on our website.
Cancer Chat is our free online discussion forum for people affected by cancer. It is a safe space to talk to other people in similar situations, and find information and support.
If you have a question about cancer, you can contact our team of specialist cancer information nurses. Call free on 0808 800 4040, 9am to 5pm, Monday to Friday. To talk in your preferred language, ask for our interpreting service. Or you can send us a question online.
We also have news, health awareness leaflets and other resources on cancer.
Brain tumour support organisations
The Brain Tumour Charity is the world's largest dedicated brain tumour charity. It funds cutting-edge research, provides support and information services and raises awareness. It aims to reduce the harm brain tumours have on quality of life, and ultimately, to find a cure.
Support line: 0808 800 004
Braintrust aims to improve care, give support during treatment and help people affected by a brain tumour. It has a support line and organises regular meet ups in various areas of the UK.
Phone: 01983 292 405
This association offers support and information to people affected by an acoustic neuroma.
Freephone: 0800 652 3143
This project aims to increase the awareness of brain tumour symptoms in children and young people. To help improve the diagnosis of childhood brain tumours.
Phone: 01252 749 990
This foundation offers information and support for people with this type of brain tumour.
Helpline: 0117 370 1320 (Monday to Friday 10am to 4pm)
This orgainsation provides support and counselling. They are based in Scotland and run a number of support groups which meet there and throughourt the UK. There is a discussion group on their website. They have booklets and leaflets on brain tumours and living with a brain tumour.
Phone: 0131 466 3116
General support organisations
This foundation provides support and information for people with neurological conditions and their relatives. It also produces free booklets on these conditions including brain and spinal tumours.
Phone: 0808 808 1000 (Monday to Thursday 9am to 2pm, Friday 9am to 1pm)
Headway offers advice and support to people affected by a brain injury.
Helpline: 0808 800 2244
This charity gives practical, medical and financial support to people with cancer.
Macmillan Cancer Support produce a wide range of booklets, factsheets, leaflets and CDs about cancer and its treatment, in various languages. They also provide information for teenagers and young adults with cancer.
Their helplines give advice on cancer and benefits.They also have an online community group for people aged 16 to 24 who are living with cancer.
Tel: 0808 808 0000
Along with a comic book line, JumoHealth produces other products such as podcasts, videos, and games. They are all designed to help children, their parents and carers learn more about their health condition.
Tel: 020 7612 0370
Teenage Cancer Trust is a national charity providing specialist units, expert staff, support events, education and information for 13-24 year old’s diagnosed with cancer, and their friends and families.
The Teenage Cancer Trust also work closely with healthcare professionals and researchers to lead the way on developing cancer care for teenagers and young adults.
Books about brain tumours
Hodder & Stoughton 2005
Ivan Noble was a science jounalist for the BBC. He wrote a weekly column for their website about his feelings and experiences throughout his illness.
T Shiminski-Maher, Patsy Cullen and Maria Sansalone
Childhood Cancer Guides: 2001
This book has medical information about brain tumours. It is American so all the information might not be applicable to the UK.
Videos of people's stories
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
Find local cancer support and information services
NHS Choices has a service that tells you about local information and support.