Find out about organisations, support groups, books, videos and other resources to help you cope with bone cancer and treatment.
Cancer Research UK
Cancer Research UK is the largest cancer research organisation in the world outside of the USA. We fund research on all aspects of cancer from its causes to treatment and prevention.
We are also committed to producing high quality information for people affected by cancer, health professionals and the general public. We also have a range of health awareness leaflets.
Cancer Chat is a forum where you can share experiences.
Helpline freephone number: 0808 800 40 40
Administration phone number: 020 7242 0200
Bone cancer support organisations
This organistaion provides information, support and counselling for people with primary bone cancer and their families. They promote reseach into the causes and treatment of primary bone cancer in particular osteosarcoma and Ewing's sarcoma.
Telephone: 0113 258 5934
ROHBTS is a self help group for parents of children with bone cancer. They have now extended their support to all parents that are treated at Woodlands (ROH) as well as offering support for adults with sarcoma.
Telephone: 0121 685 4000
General support organisations
Macmillan Cancer Support
This charity gives practical, medical and financial support to people with cancer.
Macmillan Cancer Support produce a wide range of booklets, factsheets, leaflets, audiotapes and CDs about cancer and its treatment, in various languages. They also provide information for teenagers and young adults with cancer.
Their helplines give advice on cancer and benefits.They also have an online community group for people aged 16 to 24 who are living with cancer.
Tel: 0808 808 0121
This national charity provides specialist units, support, education and information for teenagers with cancer and their families. They also fund research into young people's cancers.
The Trust holds annual conferences for teenagers with cancer and the health professionals who look after them.
The Limbless Association produces a quarterly magazine and publications. It provides information and advice for people of all ages who have had amputations or who suffer a congential limb loss.
Telephone: 01245 216 670
Helpline: 0800 644 0185
This charity provides practical, clinical, financial and emotional support for children, young people and their families affected by cancer.
Telephone: 0300 330 0803
MediKidz is a medical education organisation. It works with healthcare professionals, families, children and patients to produce comic books to educate children about their health.
REACH offers support for families of children with deformities of, or diffuculty using, their hands or arms. They support research into the causes and treatment of upper limb deficiency.
Telephone: 0845 130 6225
This commercial company makes waterproof coverings for dressings or casts on the arms or legs. This means you can go swimming, take a bath or shower without worrying. They can also be used to cover PICC lines. Ask your specialist or nurse about getting one on the NHS or you can buy direct from the company.
Telephone: 0870 041 0150
The Disabled Living Foundation run a national helpline, an email and letter advisory service. They also have an equipment demonstration centre that can provide solutions for independent living.
Helpline: 0300 999 0004 (Monday to Friday 10am to 4pm)
Telephone: 020 7289 611
Books about bone cancer
Is a comic book for 8 to 15 year olds produced by Medikidz. It explains bone cancer (osteosarcoma).
Mary Self and Rod Chaytor
Publisher: Harper collins, Nov 2002
This is a story of one woman's fight with bone cancer. Mary Self was diagnosed with bone cancer in 1983. After an above the knee amputation and chemotherapy her cancer seemed cured. In 1999 her cancer came back. She had more treatment. But her doctors weren't hopeful the cancer would respond. She went on to beat the cancer. She is convinced that her faith helped her.
Books about cancer and treatment
Publisher: New Harbinger Publications, 1998
A guide that readers say they have found helpful. It Contains information about cancer treatment and tips to help you through treatment.
Videos of people's stories
Find out about the experience of living with and beyond cancer by seeing and hearing people share their personal stories on film. Healthtalk’s researchers created a library of interviews with people who have survived for 5 years or more after a cancer diagnosis.
Find out what people said about issues such as lifestyle choices, physical effects and the impact on work and family.
Find local cancer support and information services
NHS Choices has a service that tells you about local information and support.